Hello everyone. I have CF. I'm 24 years old and was diagnosed in 1981 at 4 months of age. I have severe problems. However I pride myself in having good lung function and keeping a positive attitude. Except when I'm sick. But even then I still try. :) I have the Delta F508 as well - THANK you Scottish Ancestors! And yes this is the common one. The only benefit to having the common variety is the likelyhood that a cure will be found and tested for it first (because it is so common!).
It is my personal opinion that how you do in later life has alot to do with how you were managed as a child (physio daily, meds on time, aggressive treatment of any problems, and isolation from other sick people).
I have noticed a very strong co-relation between the cystics who are deathly sick and passing away at young ages with cystics who go to (went to) those terrible CF camps. Good idea, but bad practice (what better way to swap lung buddies than to share a cabin!). Also getting close to other cystics in real life is another no-no. Thankfully I do not have other cystics in the family or I am sure I would be alot sicker than I am. I try and stay 5 feet away from any other cystics. Thusfar its kept me relatively healthy.
Post Edited (Tayra) : 11/26/2005 1:09:09 AM (GMT-7)