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Sylvanis
New Member


Date Joined Oct 2005
Total Posts : 7
   Posted 10/14/2005 1:54 PM (GMT -7)   
Hi Everyone

I am new to these forums, I kind of found them by accident, a series of coincidences…

Anyways I know a little more about CF , and I’m gonna go through and see if I can give some advice or help to anyone with questions about CF. I had a sister who had Cystic Fibrosis, she was a great spirit, lively, energetic…HAD to be the center of attention! (haha) she couldn’t’ sit still…even when she was in the hospital (which was most of the time, for months at a time). Her name was Beth, and she passed away last year, May 3, she was only 23. She mostly had problems with her lower half, and it wasn’t until the end, that her lungs just couldn’t handle it anymore. When she was born, in 1980, her parents, (she was my step-sister) found she had a very salty taste to her skin, and tests were done and that’s when they found out she had Cystic Fibrosis. So she knew all her life ( of her limitations…but that did NOT stop her from accomplishing all that she could!!) I seriously think that doctors should not put a cap on how long a person with Cystic Fibrosis should live. I believe its all in the mind, if you believe you will have a long healthy life, that will undoubtedly help that person live a longer life!

What bothers me is that I am now 24 and I pretty much know I will live a long life, and I don’t have her to share it with. She was my best friend, (we met at age 8) we both got our parents together, and always thought it would be awesome if we ever became sisters…and that happened, in 92 my mom and her dad got married! Then we hit our teenage years…and despised!!! Each other (haha). But thank god, once again when we were older, I think around 18 is when we really started talking to each other again, and then we were the best of friends once again. Sadly though, she was getting sicker each year. She was with a guy who treated her life gold, I really thought highly of him, but for some reason (probably because of her degenerating health) he left her…well I think it was a mutual breakup. I could understand him not wanting to be part of that…loosing his first love. But then when poor Beth was in the hospital, she found out the worst kind of news anyone could get, her ex boyfriend, was now dating her BEST friend….it was only a couple months later, that she passed. I think however, that wherever she may be, that she would rather her lover and her best friend be together out of anyone in this world. (I’m still not entirely pleased though…but I’m human…HAHA!)

I like to talk about Beth, because it means I will NEVER forget her!

In today’s world, scientists are getting closer to finding a cure for CF, and there are much better ways in treating it, so DON’T GIVE UP! There is actually someone else in my family Megan, who I believe is 10 now, and she has CF.
 
Thank you again everyone, take care!

-Angela

Post Edited By Moderator (Admin) : 10/14/2005 3:47:15 PM (GMT-6)


Admin
Forum Administrator


Date Joined Jan 2003
Total Posts : 9658
   Posted 10/14/2005 2:48 PM (GMT -7)   
Angela, Please no advertising, soliciting or fundraising in the forums.  See the forum rules.

Peter Waite, Founder/Editor
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Twinstride
Regular Member


Date Joined Sep 2005
Total Posts : 318
   Posted 10/15/2005 3:31 PM (GMT -7)   

Welcome Angela!

I'm sorry you lost your best friend Beth.  We are here to lend a shoulder in time of need. 

 


Kathy, mom to identical twin boys with CF (9yrs), daughter 20, grandaughter 2 1/2, one on the way!
 
If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough"...you would hear this twins mom "Across America" "YESSSSSSSSSS"!!.
 
Moderator, Cystic Fibrosis.  "If there is questionable doubt, check it out"....with your healthcare provider!.  We are here to offer support, encouragement, and answer your questions as best we can.  Don't hesitate to step on in and enjoy!.


Sylvanis
New Member


Date Joined Oct 2005
Total Posts : 7
   Posted 10/16/2005 8:02 PM (GMT -7)   
Thanks all, glad to be hear with ya'll :)

-Ange
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