Welcome tlmjos to HW,
First of all, by your description is it possible they did blood work to test for the mutations? If so, this might mean that your baby is carrier status only. My daughter was tested by blood tests for all the mutations and she is positive for carrier status the same genetic mutation my boys have with CF. The Delta F508. She is not affected with any symptoms and she does not have cystic fibrosis. My boys sweat test was definately "positive" in the 90's and have symptoms of the disease.
Please check with your physician again or seek a genetic physician for possible carrier status only.
Hope this helps.
Kathy, mom to identical twin boys with CF (9yrs), daughter 20, grandaughter 2 1/2, one on the way!
If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough"...you would hear this twins mom "Across America" "YESSSSSSSSSS"!!.
Moderator, Cystic Fibrosis. "If there is questionable doubt, check it out"....with your healthcare provider!. We are here to offer support, encouragement, and answer your questions as best we can. Don't hesitate to step on in and enjoy!.