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birb's mom
New Member


Date Joined Nov 2005
Total Posts : 4
   Posted 11/1/2005 6:50 PM (GMT -7)   
My 24 year old son who lives with me is going on home IV therapy.  He is due to have a  2 week course of Vancomycin (MRSA)and Tobramycin (for pseudomonas) then back to the clinic for another check up.  He has had the pseudomonas but the MRSA is relatively new.  Can anyone tell me their experiance with dealing with MRSA?  I also have a younger son (by 18 months) also with CF living at home.  
 
HELP confused
Cheryl
 

Twinstride
Regular Member


Date Joined Sep 2005
Total Posts : 318
   Posted 11/4/2005 7:49 AM (GMT -7)   
Hi Cheryl,

I am so sorry to hear of 2 children with CF. I have twins with CF and this is difficult to deal with.

From working in a laboratory, I do know that MRSA is very hard to get rid of.

Do you have to keep your children apart?
Kathy, mom to identical twin boys with CF (9yrs), daughter 20, grandaughter 2 1/2, one on the way!
 
If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough"...you would hear this twins mom "Across America" "YESSSSSSSSSS"!!.
 
Moderator, Cystic Fibrosis.  "If there is questionable doubt, check it out"....with your healthcare provider!.  We are here to offer support, encouragement, and answer your questions as best we can.  Don't hesitate to step on in and enjoy!.


birb's mom
New Member


Date Joined Nov 2005
Total Posts : 4
   Posted 11/27/2005 11:18 AM (GMT -7)   

Besides having separate rooms I do not keep my children or should I say young men.  My older one the one with MRSA however is meticulous and very careful about keeping things clean.  The younger however could care less about these things and doesn’t get the infections the older one does.  Go figure.  Do you keep your twins apart?  If so how do you manage it?

 

 

confused  

Cheryl


Twinstride
Regular Member


Date Joined Sep 2005
Total Posts : 318
   Posted 11/29/2005 3:21 AM (GMT -7)   

No Cheryl,  I never have kept them seperate from anything.  Now, one time one was sick really bad and he felt bad, so, what I did was kept the sick one in my room and sprayed lysol throughout the house a couple of times a day and the other one never got sick.  I was thinking to myself about what my grandmother always said...spray lysol a day keep the bugs away!.  I am starting to believe this...lol.

On the normal tho, when one is sick....I can expect the other one right behind him to get sick within the next week or so.


Kathy, mom to identical twin boys with CF (9yrs), daughter 20, grandaughter 2 1/2, one on the way!
 
If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough"...you would hear this twins mom "Across America" "YESSSSSSSSSS"!!.
 
Moderator, Cystic Fibrosis.  "If there is questionable doubt, check it out"....with your healthcare provider!.  We are here to offer support, encouragement, and answer your questions as best we can.  Don't hesitate to step on in and enjoy!.


birb's mom
New Member


Date Joined Nov 2005
Total Posts : 4
   Posted 12/1/2005 11:29 AM (GMT -7)   
My two rarely passes anything back and forth besides the chicken pox, which they shared with their other brother and myself. Also as far as I know (he goes to the clinic when his Pancrease runs out and doesn’t share much information) my younger child with CF does not have pseudomonas or MRSA.

My older son has only one week to go on his IV antibiotics. His Pulmonary functions test is much better but not up to base line. The Doc is saying he thinks it is more the pseudomonas that was the culprit rather then the MRSA.

Have you children ever have IV’s at home? This is my sons second time the last being when he was a bit younger then your children.

Cheryl

Twinstride
Regular Member


Date Joined Sep 2005
Total Posts : 318
   Posted 12/2/2005 7:42 AM (GMT -7)   
No Cheryl....I am a panicky mom and gets ahold of their problems early. We have not been on home antibiotic IV yet.
Kathy, mom to identical twin boys with CF (9yrs), daughter 20, grandaughter 2 1/2, one on the way!
 
If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough"...you would hear this twins mom "Across America" "YESSSSSSSSSS"!!.
 
Moderator, Cystic Fibrosis.  "If there is questionable doubt, check it out"....with your healthcare provider!.  We are here to offer support, encouragement, and answer your questions as best we can.  Don't hesitate to step on in and enjoy!.


JAWZ
New Member


Date Joined Dec 2005
Total Posts : 4
   Posted Yesterday 12:49 AM (GMT -7)   
I AM A 31 YEAR OLD MAIL WITH CF. AND I HAVE MRSA I GO INTO THE HOSPITAL EVERY FEW MONTHS FOR WHAT I LIKE TO CALL TUNE UPS. THEY THEN PUT ME ON I.V. ANTIBIOTICS AND MY TESTS COME BACK POSITIVE WITH MRSA. I DONT BELIEVE THAT IT GOES AWAY FULLY,BUT SMALL AMOUNT STAYS...AND I PRETTY MUCH JUST WAIT FOR THE LEVELS TO GO BACK UP THEN GO IN FOR ANOTHER TUNE UP.. I USED TO LIVE IN NORTHERN CALIFORNIA. BUT RECENTLY MOVED TO HAWAII,WITH MY PARENTS. AND I AM FEELING BETTER HERE THAN IN THE COLDER WINTERS IN CALIFORNIA... DO NOT LET MRSA STRESS YOU OUT.....

Lauren Michelle
New Member


Date Joined Jan 2006
Total Posts : 19
   Posted 1/6/2006 4:50 PM (GMT -7)   

hi cheryl

ive never had Mrsa, but i have psuedamonis and still do. 

Sorry im not of more help.

 

Good Luck. 
i'll be praying for you!!


Lauren M Kelly
 
Proverbs 3:5-6
Trust in the Lord with ALL of your heart and rely not on yourself, in all times, acknowledge him. And he will make your paths straight.
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