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Twinstride
Regular Member


Date Joined Sep 2005
Total Posts : 318
   Posted 11/4/2005 7:56 AM (GMT -7)   
Hi Everyone,
 
Since CF individuals have club fingers, do you find that the fingernails don't grow?  My son was complaining about his nails not growing for a year now.  He is only 9 and noticed this about himself.  I told him...sweetie, it's probably due to your CF.  He is kinda clueless and thinks nothing is wrong with him....bless his little heart.  I have alot to tell them when they are ready.  It breaks my heart so bad.  :-)
Kathy, mom to identical twin boys with CF (9yrs), daughter 20, grandaughter 2 1/2, one on the way!
 
If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough"...you would hear this twins mom "Across America" "YESSSSSSSSSS"!!.
 
Moderator, Cystic Fibrosis.  "If there is questionable doubt, check it out"....with your healthcare provider!.  We are here to offer support, encouragement, and answer your questions as best we can.  Don't hesitate to step on in and enjoy!.


LittleBird
Regular Member


Date Joined Nov 2005
Total Posts : 36
   Posted 11/24/2005 12:44 AM (GMT -7)   
let me start by saying how lucky your sun is to be able to be clueless, I was never given that chance, I have always known the sevarity of my disease, I spent most of my childhood in the hospital untill around the time I was 9. Polmozyme came out when I was 5, before that point I was on oxygen all the time, I knew somewhere in me that I was going to die, and without polmozyme, no dout, I would have.
a few months ago I moved out of my parents house to go to collage. your children will have challenges, but they can still do anything.
because I was on oxygen when I was young, and still sleep with O2, my fingers arn't very clubed, though there is a little. my nails have never seemed to have problems growing, infact, I wish they would slow down. whatever the reson his nails don't grow, I don't think it is CF.

Tayra
Regular Member


Date Joined Nov 2005
Total Posts : 40
   Posted 11/26/2005 12:54 AM (GMT -7)   
Hi, I agree with Littlebird. Its likely NOT The CF thats cuasing his nails to stop growing, as I have no problems with this.

If he's really desperate to have finger nails, start making him Jello - the gelatin goes to strengthening your nails and making your hair shiny. You may want to consider (more?) multivitamins. Vitamins help with alot of strange things that you'd never think were related.

Twinstride
Regular Member


Date Joined Sep 2005
Total Posts : 318
   Posted 11/29/2005 3:35 AM (GMT -7)   
Most excellent info! Jello makes your hair shiny? WOW!. I didn't know that...lol. <Kathy...eating tons of jello!>.
Kathy, mom to identical twin boys with CF (9yrs), daughter 20, grandaughter 2 1/2, one on the way!
 
If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough"...you would hear this twins mom "Across America" "YESSSSSSSSSS"!!.
 
Moderator, Cystic Fibrosis.  "If there is questionable doubt, check it out"....with your healthcare provider!.  We are here to offer support, encouragement, and answer your questions as best we can.  Don't hesitate to step on in and enjoy!.


Tayra
Regular Member


Date Joined Nov 2005
Total Posts : 40
   Posted 11/29/2005 10:22 AM (GMT -7)   
Hi Kathy, I told my mom about your son's fingernail problems and she suggests he increase his intake of glycerine. IE - Any meds available in gel caps vs taking them in tablet form. You can buy glycerine supplements - if you find he's not getting enough in his jello.

She also suggests asking your GP if they have any ideas. But she also agrees it is likely not CF related directly. Possibly an absorption problem - but increasing his glycerine intake may help.
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