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New Member


Date Joined Nov 2005
Total Posts : 1
   Posted 11/18/2005 5:30 AM (GMT -7)   
 

Post Edited (EternalFate84) : 12/10/2011 12:33:49 AM (GMT-7)


Twinstride
Regular Member


Date Joined Sep 2005
Total Posts : 318
   Posted 11/18/2005 4:05 PM (GMT -7)   
Hi and welcome EternalFate84 to HW!

I do notice this with my twins. Not sure if it has anything to do with CF per say, but....its a very good question to ask.

Again, welcome!
Kathy, mom to identical twin boys with CF (9yrs), daughter 20, grandaughter 2 1/2, one on the way!
 
If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough"...you would hear this twins mom "Across America" "YESSSSSSSSSS"!!.
 
Moderator, Cystic Fibrosis.  "If there is questionable doubt, check it out"....with your healthcare provider!.  We are here to offer support, encouragement, and answer your questions as best we can.  Don't hesitate to step on in and enjoy!.


Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 11/18/2005 4:07 PM (GMT -7)   
I know that pruniness is common even in the healthiest individuals.  I am CF-free and get pruny within a couple of minutes of being in the shower! 

Tayra
Regular Member


Date Joined Nov 2005
Total Posts : 40
   Posted 11/19/2005 12:30 PM (GMT -7)   
Hello. I have CF and I have always gotten pruned fingers and toes. It has to do with the sodium balance (cystics have high sodium).

I would figure that people with high salt in their bodies (be them cystics or not) would also have this same pruning effect. Though with cystics it seems to happen alot faster!

SaraandDustin
New Member


Date Joined Sep 2005
Total Posts : 4
   Posted 11/20/2005 9:07 AM (GMT -7)   
My boyfriend has CF and he gets pruny within mintues of being in the shower!

Twinstride
Regular Member


Date Joined Sep 2005
Total Posts : 318
   Posted 11/23/2005 6:26 AM (GMT -7)   
My twins get pruned fingers within minutes also of being in shower. And being in the pool....I have to make them sit out a bit. Its like it just wilts them away with pruneness.

One more thing to add to being in the pool....my twins kinda turn blue in their lips, fingers, and feet. When I see this hapenning its time to get out of the pool for a while.
Kathy, mom to identical twin boys with CF (9yrs), daughter 20, grandaughter 2 1/2, one on the way!
 
If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough"...you would hear this twins mom "Across America" "YESSSSSSSSSS"!!.
 
Moderator, Cystic Fibrosis.  "If there is questionable doubt, check it out"....with your healthcare provider!.  We are here to offer support, encouragement, and answer your questions as best we can.  Don't hesitate to step on in and enjoy!.


LittleBird
Regular Member


Date Joined Nov 2005
Total Posts : 36
   Posted 11/24/2005 12:10 AM (GMT -7)   
yeah I do that too, I know it has somthing to do with the salt, but I am not sure what

123456jrd
New Member


Date Joined Dec 2008
Total Posts : 1
   Posted 12/23/2008 6:41 AM (GMT -7)   
I am really concerned after reading all of these comments. Does anyone know if CF could be the cause of pruned hands almost immediately after coming in contact with water? I have never had this problem until just a few months ago. Now as soon as I touch water my hands become pruned and stay that way for a while. Could some one please give me some advice?
Thanks!

Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 12/23/2008 6:57 AM (GMT -7)   

Welcome to Healing Well :-)

I notice my fingers go pruny really quickly. I've just had a bath, and as the water touched my fingers they started. My fingers end up quite sore and delicate after a bath.

This topic has been on another forum I visit, about a year ago I think. We generally accepted between us, that our hands go pruny, and we can't stop it from happening. If it starts to effect your hands, makes them dry or you get peeling dermatitus, or it bring you out in any form of rash, ask your doctor for a cream to help-like E45 or Diprobase or steroid based hydrocortisone if it's becoming unbearable. Otherwise, it's just one of those things with CF, that noone can explain 100%, and as long as it's not causing problems you're ok.

Hope this has answered your question.

Hope you're ok, and not suffering too much with the cold weather (if you have it where you live of course, some places are nice and hot all year round it seems.)

Merry Christmas

Gem


Moderator of the Cystic Fibrosis Forums
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ursodeoxycholic Acid, Saline neb/PEP system, Mirtazapine,slow-sodium, Skandishake and Fresubin.
Had a Port-a-cath fitted on chest wall since Nov 05
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Sometimes, I feel that I should go and play with the thunder - then I get scared and run away.

Post Edited (Darkies Gem) : 12/23/2008 7:01:58 AM (GMT-7)


hazer
Regular Member


Date Joined Jul 2008
Total Posts : 33
   Posted 12/27/2008 9:37 AM (GMT -7)   
when ever gypsy gets outta the bath her fingers and toes do be so pruned alot more then mine would. i dont know mybe it has something do do with the higher leval of salts in her skin thats what i tought but id say im completely wrong.

diddles
Regular Member


Date Joined Mar 2007
Total Posts : 35
   Posted 1/3/2009 2:32 AM (GMT -7)   
no, i don't get pruned fingers. i heard somewhere that pruning is due to dehydration, but i don't know for sure.

sasha12
New Member


Date Joined Jan 2009
Total Posts : 6
   Posted 1/25/2009 8:13 PM (GMT -7)   
very interesting question! funny you say that, because both my brother and i (with cf) get pruny fingers very easily, and our friends (without cf) don't. we just touch the bathtub water for a minute and our hands and fingers look like raisins or something. it would be interesting to know if there was a connection with this and cf or if its just an odd coincidence...

lifetolove
New Member


Date Joined Sep 2009
Total Posts : 4
   Posted 9/17/2009 3:51 PM (GMT -7)   
Wow this is interesting. I have notice this with me too I have CF and just washing dishes after dinner my hands are all pruned and it does become a little irritating. I have mentioned it to my family but they think I'm trying to get out of washing dishes :) I will have to tell them. I tried to figure out why this happens and like others have said I think it has to do with the salt and water balance in our bodies. It makes the most sense when you think about it. I never asked my doctor though, maybe I will next visit.

KS

Abbs
New Member


Date Joined Sep 2009
Total Posts : 11
   Posted 9/28/2009 2:39 PM (GMT -7)   
This is interesting... I always get pruny hands, I didn't know it was because of CF. It's nice to know there's other people out there.
Seriously, five minutes in a bath/shower/pool and my hands and feet get wrinkly. It happens to my twin sis too....

flames23
Regular Member


Date Joined Jan 2010
Total Posts : 44
   Posted 2/22/2010 2:55 PM (GMT -7)   
I've suffered from 'prunisitis' as my girlfriend calls it since I can remember. At least 23 years that I can remember, and I'm 28 now.

It takes about 20 seconds from when I turn on the hot water in the shower. It does not happen with cold water unless it's for at least 10 minutes, which obviously doesn't happen often.

If I'm swimming in salt water; however, it doesn't happen at all.

I have never been diagnosed with Cystic Fibrosis; however, and am wondering how many people here have had it without having CF?

Anyone get any relief from any type of treatment? It's incredibly annoying, and a big reason why my showers have lasted for 3-5 minutes for so many years.

hazer
Regular Member


Date Joined Jul 2008
Total Posts : 33
   Posted 3/30/2011 5:36 AM (GMT -7)   
my daughter has cf and she does b like a prun getting out of water. always wondered if it was cause of the cf.i was thinkin it could b caused cause of the extra salt in her skin(just a idea,prob wrong)

rhi18
New Member


Date Joined Jun 2011
Total Posts : 3
   Posted 6/22/2011 5:18 PM (GMT -7)   
i do, but i never thought it was related to CF just thought i had the shower too hot or too cold or spend too much time in the pool.
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