is it worth it for me to get tested for cystic fibrosis?

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Bbasta
New Member


Date Joined Sep 2016
Total Posts : 1
   Posted 9/6/2016 12:49 PM (GMT -7)   
I am an 18 year old male and i know that its uncommon for a diagnosis to be this late but i was reading up on CF in my class and i got to thinking about the odd chance that i might have it. I have had "Asthma" my entire life pretty severe asthma. I have an at home nebulizer and have always had awful breathing problems and been in an out of ER's. I get sinus in infections religiously and my friends have always known me to be the one that is always sick because i get so tired and weak when i get infections and miss lots of school. On top of that i have never been able to put on weight. Im 6"2 and have never been over 150lbs. I have had bad stomach problems over the years and finally told a doctor last year i told him about my stomach pain constipation diaharea and mucus/ fat in my stool. He did a colonoscopy and it came back clear. I know it might seem like im reading into it too much but is it worth consulting a doctor?

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13730
   Posted 9/7/2016 7:48 AM (GMT -7)   
Hello Bbasta & welcome to Healing Well. I do not normally post here but I do read many of these forums. You mentioned getting sinus infections frequently, have you spoken to your dr about them? He/she can rx a prescription to help ward off the seasonal allergies that lead to sinus infections. There are also many OTC meds that can help.

Personally, I think you are over thinking CF. This is something the drs would have picked up on when you were young. As far as your asthma goes it sounds like its not being kept under very good control & that is a must.

If it would make you feel better to see a dr about CF then perhaps go see a dr. Only you can decide that. Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

Believingjesus
New Member


Date Joined Apr 2016
Total Posts : 4
   Posted 9/19/2016 6:36 PM (GMT -7)   
Hi Bbasta! I'm sorry I just saw your post. Yes you should definitely get tested for cystic fibrosis! There is another forum about cf and there are so many people diagnosed with cf in their twenties, thirties, forties, and even a few in their fifties! And there are many people who displayed symptoms like you that their doctors totally missed and they found out much later in life. They test now for cf when a person is born but they just started doing that not too many years ago and I'm pretty sure they didn't do it when you were born. It sounds so much like you have cf but I really hope you don't. You DO need to get tested. You could look up cystic fibrosis clinics in your area (they are usually at major hospitals in bigger cities) and easily get tested. If you do have cf there are medicines you really need to be on to help your pancreas when you eat to digest your food and also many medicines for your lungs. I hope you go ahead and get tested because all your symptoms sound like cf but I hope it isn't.

Post Edited (Believingjesus) : 9/27/2016 12:36:57 PM (GMT-6)


JaSanne
Veteran Member


Date Joined Oct 2006
Total Posts : 2062
   Posted 11/14/2016 8:00 AM (GMT -7)   
Hi, I know this is an older post, but in case you're still checking in here, I encourage you to talk to your doctor about your concerns, specifically mentioning the GI problems. CF can be overlooked or misdiagnosed, especially if it's a milder form of the disease.
Female, late 50s--CD over 45 yrs; Hemi-colectomy '01; spinal cord injury '01; fistulae since '97; enteropathic arthritis
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