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I am from texas and have 3 children a son who does not carry the cf gene, my son who has c.f. and a daughter who is a carrier. i just wanted to chat with other who go through the same things that i do and also for my family who think i need to chat with other. i hope to here from you and make some new friends.
Hi I am Sea 2
Thanks for the welcome Twinstride and mommyscfbaby.
My grand daughter, Leah wcf is 15 weeks old and is an absolute treasure. She has vitamins, Ketovite, Flufloxicillin on a daily basis and 1 and a half Creon capsules with every feed. She has physio four times a day.
My daughter is amazing. She has shown such strength. Leah was born 45 minutes before her 21st birthday by emergency Ceasarian because of placenta preavia. That was scary enough for her as she was bleeding heavily and Leah was in distress in the womb. Then to be faced with a baby who you are feeding every couple of hours who doesn't put weight on and the midwives keep blaming it on the bad birth is so worrying. However, through it all she has been so brave. I really respect all you mums of lpwcf and pwcf who have the same to face every day.
If I appear to post at weird times it's because I live in the UK. But my brother lives just outside San Francisco so first thing in the morning here is a good time to ring him. It is 7:45 am here (a bit too late to ring now).
Post Edited (dmeyers email@example.com) : 5/29/2006 6:56:20 PM (GMT-6)
Hello Debbie and welcome! Let us know how the new study with the enzymes go.
Welcome Debbie to HW!
With time, things will get easier, I promise!! It will become a routine like brushing your teeth.
Enjoy your time here and thank you for the compliment!
We are here for you, hugs!
Grandma to Leah here. Last week she was supposed to weigh 11lb 13oz which was a massive leap in weight and seemed suspicious(from 10lb 6oz the week before). This week when she only weighed 11lb 2oz the clinic decided they had converted the kg to lbs wrongly last week. However, she is still heavier than a fortnight ago but not as much weight gain as we had hoped for. Got to remember though that Leah was fighting bronchiolitis so you can't have everything. On a more cheerful note Leah seems much happier again this week and is not coughing as much. We have bought an air purifier which seems to have stopped the morning coughing fits. Fingers crossed. Also she is having supplementary solids once a day now which seems to alleviate her constant hunger somewhat.
Just a natter, Sea 2