Well first of all, i would think any one who has cf would be offended by this post. Dont you think we think about dying all the time? i have just recently been dx with cf i watch my lil sis die from it..we all have one life..does your friend judge u on how long your gonna live or what health problems you have? how is that right? omg that is so unbelievable. i am having trouble admitting i have cf and adjusting to this whole new life and everyday i wonder how long am i gonna live..am i gonna get to see my son graduate or not..i cant even believe someone would have the guts to write a letter like that here..what if your friend could see the future and lets say, he sees you getting hit by a car in about 4 years so he breaks the friendship, wouldnt u be asking him what kind of friend would he be? how can someone who is thinking about ditching their"friend" b/c of medical reasons be classified as a true friend? and my dad wonders why i dont tell my friends. im not stupid. yall r all alike..but yet u r sooooo healthy..i would never ditch ne one no matter what the circumastances are. just remember one thing b4 u make the stupidest mistake of your life..he can live longer than u..u never know (being healthy) when your time is to go. as well remember a true friend is always there no matter what..if you r really a friend to him maybe u need to think about the reason u were or are gonna dump him..is a chance of dying worth it? we all healthy or not cf or not have a chance of dying in our sleep..
make the right choice and be a real friend
until next time
Since Stacy's post has no periods to seperate the interpretation of her post here and all caps, it can easily be misunderstood. Please, be a little patient with her. She is not wanting to loose her friend, she is very scared of what OTHER people are informing her of and the outcome of her friend. Perhaps thats why she is here on Healing Well.
My guess is this, she will stay to the very end and find out how to deal with what a CF person goes thru now rather than later.
There's one vital thing I neglected to say, caught up in my memories as I was; and that is, of all the metabolic disorders that need some kind of a magic fix, Cystic Fibrosis is the one that leaps to my mind as having the most promising therapies in the pipeline.
Admittedly, I'm no endocrinologist, nor even medically trained, so my knowledge of the whole panoply of genetic disorders is incomplete; but I read reports of scientific papers on a weekly basis talking about gene therapies, and new techniques for delivering the specific genes needed for treating CF are in development. Most medical research reported as a potential cure is actually "if, maybe, then someday, perhaps". The one I'm thinking about particularly is known to work at delivering genes effectively in other situations; that's a whole lot more hopeful than normal. Okay, you wouldn't want to be holding your breath while it comes to fruition - but over a timescale of years, I'd sure as heck be thinking about my pension if I was a CF sufferer.
I think I have to agree with everyone who has posted a responce so far. as somone with CF I can tell you that there are 2 big fears when meeting and telling new people about CF. First is that they will be afrade to get close to me (maybe part of the resion I have never had a decent boyfriend) and second, that they will feel sorry for me and cling to me because they think I need a friend. it frustrates me to no end that people are so afrade of losing me that they won't even try being friends!
that being said, I have many friends who have CF, and have had some of them die. I myself have been very close to death from CF on 3 occations, and I can tell you that it is much harder to watch a frind suffering and dieing, then it is to be the one in the hospital bed.
my advice to you is to go to a CF website, learn all you can about it. then go to him and find out about his life with CF. be suportive, and make sure that there is much more to your relationship than simply discussing CF. and finally, stick with him through everything, to the very end!