DESIGNING NEW THERAPY VEST!!>>> need to know what people like and dislike :)

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CarolynnS
New Member


Date Joined Jan 2006
Total Posts : 1
   Posted 1/27/2006 9:34 AM (GMT -7)   
Hi, my name is carolynn i am an Industrial Design student from milwaukee WI. I do not have CF but my Boyfreind and his brother both do. For my Senior Thesis i am redesigning "the vest".

I was wondering if people could tell me the problems they have occured with thier vest or any respritory therapy at all... or have seen with thier family memebers.

What do you like about the vest you have,
Which vest and other theropys do you use.
Is it hard for you to use..
Where in the house do you do the therapy.
Do you travel with the vest? Is it difficult?
Do you find it effective?
Dose it hurt to bad?
Dose your medi-port get in the way.
If you are female dose it hurt the breast area?
Dose it ride up?
Is it not vibrating enough on places you need it to?
Dose it work for you?


Any thing anyone can tell me will be most helpful and greatly appreiciated. I know thier are many individual proplems with current models and i would like to attend to those. I will keep every updated on the progress made on my design Hopefully it will be th next best thing hehe.... THANK YOU


god bless ,

Carolynn

Twinstride
Regular Member


Date Joined Sep 2005
Total Posts : 318
   Posted 2/10/2006 4:45 PM (GMT -7)   
bumping this thread up!
Kathy, mom to identical twin boys with CF (9yrs), daughter 20, grandaughter 2 1/2, one on the way!
 
If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough"...you would hear this twins mom "Across America" "YESSSSSSSSSS"!!.
 
Moderator, Cystic Fibrosis.  "If there is questionable doubt, check it out"....with your healthcare provider!.  We are here to offer support, encouragement, and answer your questions as best we can.  Don't hesitate to step on in and enjoy!.


jennashanks
New Member


Date Joined Feb 2006
Total Posts : 2
   Posted 3/1/2006 2:02 AM (GMT -7)   
 well im from scotland, GB and my fiance has CF.
We have nevr heard of this type of therepy. Can u give me more info on it and where i can maybe get one pls :)

Tyler
New Member


Date Joined Mar 2006
Total Posts : 5
   Posted 3/14/2006 2:55 AM (GMT -7)   
I have had CF my whole life (almost 19 yrs.), and have tried most of the different therapy devices and methods. I can tell you first hand that the vest holds a special place in my heart: there is absolutely NOTHING that I hate worse than that wretched device. Here are the problems that I have with it:

1) It is too LOUD. If I have to use that thing for 30+ mins., it could at least be quiet.

2) It is VERY HEAVY. CF patients are not very strong due to their lack of nutrition, and with the bad lungs on top of that, the vest becomes exhaustive to move.

3) In my opinion, it doesn't work very well to begin with. Maybe I don't have the pressure set at the right level, or maybe it's because the actual vest that I use is (way) too small for me, but it does not make me cough. Ususally the only way it will make me cough is because I have to move that machine.

4) Once again, this could be caused by the size that I have not being big enough, but it does indeed ride up terribly. I constantly have to pull it back down.

5) It doesn't help with the lower part of my lungs, although I think that IS from the size issue. (I never bothered to get a bigger size because I don't like it so much, and I am pretty noncompliant as well).

6) The bulb that you have to press can deflate through normal use. Also it is rather difficult to connect the bulb to the machine, it just doesn't ever seem to want to lock, although this might just be a problem with my particular machine.

All in all, even with the small size, there is absolutely nothing that I find advantageous with the vest over manual percussion.

As I said, I don't have the right size and I am noncompliant, but no one else has given you an answer so far, and I have used the vest. This is also a first hand account from an actual CF patient, so I do think that my opinion should have SOME bearing.

If you would like to talk to me further, you are welcome to email me: tylerkirby@gmail.com

Personally, I would like to talk to you and hear your ideas on the subject.
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