Hi Lucy's mom,
Since I am a parent of twins with CF, I can help here. In infancy, the first thing you would notice is: extremely hard to burp...working and working just to get a burp, without help, the baby cannot burp on it's own and possibly screaming or turning blue with the pain after eating. The bowel movements, will be of a stringy, fatty look, very abnormal looking. If there is a gas problem, I can give you some advice to help with that, but, only if you ask. At 4 months old, I was litterally sitting my twins on the toilet to help with gas movement, I was a desperate mom. With both screaming and turning blue at the same time!! oh boy.....I just sat and cried.
When the baby is of a older age, the color of the bowel movements are a greasy orange color, it will float in the toilet, be of a consistency that is NOT formed.
But, when in doubt, check it out!. You always can do a sweat chloride test for a little over 100.00 covered by insurance plans.
Let me know if I can be of more assistance.
Kathy, mom to identical twin boys with CF (9yrs), daughter 20, grandaughter 2 1/2, one on the way!
If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough"...you would hear this twins mom "Across America" "YESSSSSSSSSS"!!.
Moderator, Cystic Fibrosis. "If there is questionable doubt, check it out"....with your healthcare provider!. We are here to offer support, encouragement, and answer your questions as best we can. Don't hesitate to step on in and enjoy!.