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Regular Member

Date Joined Jan 2006
Total Posts : 47
   Posted 3/16/2006 12:39 AM (GMT -6)   
has anyone ever sat and thought about what they want to accomplish before they go? what kind of fun things you want to exp.? or just to see? i figured out mine. 1) i want to make sure my son is taken care of
2) i want to start him a trustfund
3)i want to make sure my family is ok
i dont know..i know my time is limited more now than ever and i was just many people with cf think about these things? or am i just weird? i dont like to think about dying. but the age 25 is coming and im only given to live til 30 if that. im getting scared and worried. i have all these emotions going on in my lil head right now.i been having some really weird dreams about dying but i wont tell my dad, hes stressing out enough. and well my bf left.  he said its getting to scary for him. i been sick atleast once every 2 weeks. i been so frkening weak. i can barly breath..i dont know just me being me..always thinking about bad things..hope yall have a great weekend.

kristins mom
Regular Member

Date Joined Sep 2005
Total Posts : 27
   Posted 3/16/2006 3:23 PM (GMT -6)   
i personally don't have CF but my daughter did. She was 10 years old, diagnosed when she was 2 1/2 and I must admit, learned to cope with it quite well. No, I don't think you're weird, it's only natural to fear the unknown and having CF only intensifies matters. My daughter taught us to take life one day at a time and it helped us get through the hard times after she left us. I am so sorry that your bf left but don't assume your dad will falter in his support for you. It's very scary being a CF parent but I can tell you from experience that sometimes the biggest stress comes from knowing something is bothering your child but not knowing what. We tend to think the worse, that we are being "protected" from worrying which makes the fear and imagination race out of control. Besides, he may be trying to hide his own fears and concerns to "protect" you. Support is very important to your care, you must take care of yourself mentally as well as physically so PLEASE find someone you can share your feelings, worries, fears, anger, etc. with. I won't tell you that it will make everything all better but it will give you both the strength to face whatever lies ahead-good or bad. I pray you feel better soon and will never give up the prayer for a cure but until then, I think I can say for everyone on this forum that we are all here for you anytime, if you need someone to talk to, cry with, vent on, or laugh with--you aren't alone. So hang in there and keep on being you!!!

Regular Member

Date Joined Sep 2005
Total Posts : 318
   Posted 3/17/2006 1:14 AM (GMT -6)   
Kristins Mom....I couldn't have said it better. Thank you for being here for her.

Heartfelt HUGS! to both of you!.
Kathy, mom to identical twin boys with CF (9yrs), daughter 20, grandaughter 2 1/2, one on the way!
If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough" would hear this twins mom "Across America" "YESSSSSSSSSS"!!.
Moderator, Cystic Fibrosis.  "If there is questionable doubt, check it out"....with your healthcare provider!.  We are here to offer support, encouragement, and answer your questions as best we can.  Don't hesitate to step on in and enjoy!.

New Member

Date Joined Mar 2006
Total Posts : 11
   Posted 3/23/2006 3:09 PM (GMT -6)   
Hey Tricia! I worry about it all the time. I cross my fingers that I am the exception to the statistics, but it's so hard to ignore them. I worry a lot about not getting to accomplish everything that I want to accomplish, and I spend so much time worrying that I have a hard time even setting goals for myself. I have been trying to get out of this negative mindset, but it's just so hard..especially as I get older. I'll be 20 in a month, and I just wish that I could be in elementary school forever. I should really make a list of things I want to do, and make it a point to start doing them. For some reason, I just find it easier to sit around and dwell, rather than take action. I read a quote the other day online that I really liked and understood. It was by a woman named Mary Kay Ash and said, "Aerodynamically, the bumble bee shouldn't be able to fly, but the bumble be doesn't know it so it goes on flying anyway." Sometimes I wish I was the bumble bee! I wish I didn't know everything I know about CF, because I feel like the facts are what keep me from flying like the bumble bee! Okay, now I'm just getting cheesy-out-of-control, but I just wanted to let you know I completely understand! I joined this forum in the wee hours of the morning today, so I am still trying to figure it all out. Good luck achieving your goals!!! Take care!

Drew (the girl)
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