Living with CF,turning 18..and can't help thinking...am I at midlife?

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missy6
New Member


Date Joined Mar 2006
Total Posts : 11
   Posted 3/16/2006 1:18 PM (GMT -7)   
hi everyone
I was diagnosed with CF since i was to so it is a part of me.I have been blessed to be doing as well as i have been doing but but today is my 18 birthday and i am thinking alot of the same things as a previouses writer is thinking.do u think it would be smart for me to have any children...i have always wanted to be a mother but i don't want to leave my kids without a mother.Is it normal to be scared to die?
 
missy tongue
HI Everyone


Twinstride
Regular Member


Date Joined Sep 2005
Total Posts : 318
   Posted 3/16/2006 11:10 PM (GMT -7)   
Missy,

Happy Belated Birthday! Hope your day went well.

Regarding how you feel with having children, I can't help you because I have boys that will never be able to bear children, but, I do hope that you listen to your heart here when thinking about having children. What do you think is the best situation. Only YOU know your condition at this time.

Heartfelt hugs to you.
Kathy, mom to identical twin boys with CF (9yrs), daughter 20, grandaughter 2 1/2, one on the way!
 
If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough"...you would hear this twins mom "Across America" "YESSSSSSSSSS"!!.
 
Moderator, Cystic Fibrosis.  "If there is questionable doubt, check it out"....with your healthcare provider!.  We are here to offer support, encouragement, and answer your questions as best we can.  Don't hesitate to step on in and enjoy!.


Robertson
Regular Member


Date Joined Nov 2005
Total Posts : 21
   Posted 3/31/2006 1:26 PM (GMT -7)   

Hi Missy

Let me tell you something. You can have a long life ahead of you. In Sept. I will turn 43

all you have to do is take care of yourself and do everything those doctors tell you.

Make sure you try to eat even if you don't want to. I eat probably 4 to 5 times a day, it doesn't have to be a full meal everytime but you have to keep nurished.

And to Kathy, not every male is sterile. I have a healthy 16 year old son. I also know alot of women who have healthy children. All you have to do is talk to your doctors when you plan to start a family.

Keep your spirits up Missy life is to special to worry. tongue

HAPPY BIRTHDAY WITH MANY MORE TO COME


pour on the fat and hope for the best


Twinstride
Regular Member


Date Joined Sep 2005
Total Posts : 318
   Posted 4/1/2006 6:53 PM (GMT -7)   
Robertson said...

And to Kathy, not every male is sterile. I have a healthy 16 year old son. I also know alot of women who have healthy children.

Hi Robertson,
 
I just read your opening post about yourself and noticed that you have CF and did have children?  Is this true, they are your very own?  The doctors have told me that my twins (who have CF) will be sterile.
 
All I can say is:  WOW! and I better be a extra cautious parent when my boys hormones kick in.... tongue


Kathy, mom to identical twin boys with CF (10 yrs), daughter 21, grandaughter 3, Newborn grandson
 
If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough"...you would hear this twins mom "Across America" "YESSSSSSSSSS"!!.
 
Moderator, Cystic Fibrosis.  "If there is questionable doubt, check it out"....with your healthcare provider!.  We are here to offer support, encouragement, and answer your questions as best we can.  Don't hesitate to step on in and enjoy!.

Post Edited (Twinstride) : 4/1/2006 7:07:08 PM (GMT-7)


Angela13
New Member


Date Joined Apr 2006
Total Posts : 13
   Posted 4/3/2006 9:37 PM (GMT -7)   
Hi Missy

Hey how's it going. Personally I think you should just plan your life how you want to live it. The only deadlines you have, are what you create in your mind. I believe power of suggestion is a POWERFUL tool, thoughts are things, and so think the way you want to live your life, not the way people say you should.

I had a sister who passed of CF, and that was a couple years ago, knowing what I know now, I wish I could have told her this same thing, that i'm telling you.

take care

-angela

Post Edited By Moderator (Admin) : 4/4/2006 9:52:38 AM (GMT-6)


Robertson
Regular Member


Date Joined Nov 2005
Total Posts : 21
   Posted 4/8/2006 12:43 PM (GMT -7)   
Yes, it's true I have a healthy 16 yr. old son. and yes all by myself. besides my wife he is the greatest thing to happen to me.
pour on the fat and hope for the best


Twinstride
Regular Member


Date Joined Sep 2005
Total Posts : 318
   Posted 4/9/2006 8:01 AM (GMT -7)   
WOW WOW WOW!. There is hope for my boys!.
Kathy, mom to identical twin boys with CF (10 yrs), daughter 21, grandaughter 3, Newborn grandson
 
If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough"...you would hear this twins mom "Across America" "YESSSSSSSSSS"!!.
 
Moderator, Cystic Fibrosis.  "If there is questionable doubt, check it out"....with your healthcare provider!.  We are here to offer support, encouragement, and answer your questions as best we can.  Don't hesitate to step on in and enjoy!.


stephen101
New Member


Date Joined Jan 2006
Total Posts : 19
   Posted 4/10/2006 12:04 PM (GMT -7)   
Kathy i know a few men with cf that have had kids naturally...... in fact i know a 2 cfers that had a kid together naturally!! now that is awesome!

Twinstride
Regular Member


Date Joined Sep 2005
Total Posts : 318
   Posted 4/11/2006 7:22 AM (GMT -7)   
WOW!
Kathy, mom to identical twin boys with CF (10 yrs), daughter 21, grandaughter 3, Newborn grandson
 
If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough"...you would hear this twins mom "Across America" "YESSSSSSSSSS"!!.
 
Moderator, Cystic Fibrosis.  "If there is questionable doubt, check it out"....with your healthcare provider!.  We are here to offer support, encouragement, a shoulder to lean on, and answer your questions as best we can.  Don't hesitate to step on in and enjoy and remember!  "Never give up hope for a cure" one day we will get there!".  

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Chaser
Regular Member


Date Joined Apr 2006
Total Posts : 91
   Posted 4/17/2006 11:55 AM (GMT -7)   
Twinstride - not sure if your boy's doctor told you this, but not all male CFers are sterile. 95-98% of male CFers are sterile, but 2-5% can have children naturally. I know it is a small percentage, but it does happen. Men with CF can also have children by a procedure called IVF. This is where they take sperm from the male and insert it into the females eggs. I belong to another CF forum, and there are a few men on there who have had children naturally (these men have CF). There are also a few men on there as well who have had kids through IVF. So its not all hopeless. Maybe your boys will belong to that 2-5%.
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