moody 13 year old!

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New Member

Date Joined Mar 2006
Total Posts : 2
   Posted 3/22/2006 6:18 PM (GMT -6)   
Hi everyone, I'm new here and just wanted abit of advise really. My son has cf and recently caught pseudomonas again. He had 2 weeks in hospital and seemed really down. 2 weeks on and he still seems really down. He hates anything to do with cf, does not want anyone to know he has it and does not even want to talk about it. I know that alot of it can be his age, but I was wondering if any kids his age and older felt like this and how long it lasted. How do you think positive, how do you cope? confused

Regular Member

Date Joined Nov 2005
Total Posts : 36
   Posted 3/22/2006 7:44 PM (GMT -6)   

oh goodness yes I felt the same way. I am now 19 and still have my monents! I have alwyas been very heavily effected by CF and have had several resistent starnds of psudimonis (sorry I don't remember how to spell that) since I was 3 years old. I grew up with the hospital being a large part of my life, alwyas 2 week stays, and I have never spent more than 4 and a half months strait out of the hospital. eveyone knows I have CF and alwyas has, it isn't so much that I didn't like talking about it, but that I didn't like peoples reaction. at that age when you tell people about it they tend to over react or not care. the hospital can be a very depressing place, for me the third day I am there is always the worst of them all. as much time as I spend there I can't say it gets much easer, but as you get older you learn that is just a fact of you life, you learn how to get other things done while you are there, and to have minimal impact of you life. last time I was in the hosital (last week actually) I had a friend in the hospital, it was her birthday, so the 3 of us about the same age who have known eachoter for a long time, got a cake, we eat it outside because we all have differnt things that we don't want to make eachother sicker with. I spent the weeks leeding to my senior prom in the hospital as well. my mother bought me 9 pairs of shoes, and the nurses all helped me pick the ones that I should wear, mom took the rest back. the point of the stories is that you don't have to miss out on all of life when you are in the hospital, you just have to go about it a little differently. as your son gets older he will learn that and that will make his life a little easer. my advice to you is to expect him to get down, and let that be okay. CF sucks and the people who can except that be suportive and don't spend their life trying to cheer me up when I am upset are the people who are most imortant to me, and the ones I talk to when I need to talk.

best of luck to you and your son 

New Member

Date Joined Mar 2006
Total Posts : 4
   Posted 3/27/2006 1:07 PM (GMT -6)   
Hi im 13 and i went through the same stage. It only took a brief look around a few websites like this one to realise that im not alone and that life is only what you make it. My mum did what she could but at the end of the day, it was me who had the problem and i was the only one who could to sort it out. She was there for me though, and she suggested looking around a few websites. Now I feel on top of the world! (Most of the time!!)
All you need to do is to be there to catch him when things get tough. I really hope all goes well. I think we all know how hard it is. So just keep up the good work ur already doing and im sure all will go well. As for the moody bit, arn't we all like that sometimes anyway?
good luck,

Regular Member

Date Joined Jan 2006
Total Posts : 47
   Posted 4/10/2006 10:00 PM (GMT -6)   

Well i dont know about ne body else but as for me, i hate talking about Cf even tho i know i have, it took me awhile to even accept it after seeing what it did to my sister. i dont want to be treated any differnt than anyone else. i know my own limitaions. i dont care what i have im gonna fight and one day i will beat it. if its the last thing i do i will help find a cure somehow someway. cf isnt gonna get the best of me and as for the people i did tell well where r they now? they left they all ran. like im not scared? everyday i think about it. how long will i live? will i see my sons first date graduation first job? i dont even wanna talk about it cuz when i do people get scared and leave besides i dont like dwelling on things. i love life. but im not moody only when im alone and my sons asleep. does this help any?


Regular Member

Date Joined Sep 2005
Total Posts : 318
   Posted 4/11/2006 9:13 AM (GMT -6)   
Hi Persona,

Welcome to HW. Perhaps the clinical care center social worker will have some ideas for you.

I know that my twins don't like taking their enzymes in front of anyone or even letting anyone know they have CF.

At the clinical care center, they have workbooks for your sons age group, ask them, perhaps this will help to cope.

Again, Welcome!
Kathy, mom to identical twin boys with CF (10 yrs), daughter 21, grandaughter 3, Newborn grandson
If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough" would hear this twins mom "Across America" "YESSSSSSSSSS"!!.
Moderator, Cystic Fibrosis.  "If there is questionable doubt, check it out"....with your healthcare provider!.  We are here to offer support, encouragement, a shoulder to lean on, and answer your questions as best we can.  Don't hesitate to step on in and enjoy and remember!  "Never give up hope for a cure" one day we will get there!".  

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Regular Member

Date Joined Feb 2007
Total Posts : 43
   Posted 2/7/2007 8:28 PM (GMT -6)   


I know EXACTLY how he feels. I'm almost 14 (in about a week) and when i had phsuedamonus I didn't want to take the meds because I couldn't go to New Zealand and would be on them for 6 months. Also I had to take Tobramicine (which is inhaled) and it was FERAL! I eventually got it changed to something that doesn't taste like anything. My parents always lecture me on how I should take better care of myself and to take my meds. But I have trouble remembering when to take them. tongue

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