Hypertonic saline and young children???

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Regular Member

Date Joined Apr 2006
Total Posts : 25
   Posted 4/7/2006 6:52 PM (GMT -6)   
My two year old son went to clinic today. I asked the doctor if he could start the hypertonic saline. He said they did not give it to children who were not old enough to take a lung function test before and after. I was wondering if their is anyone else who has a young child who is using it. It kind of irritated me because if it helps as much as everyone is saying it seems to me like it would be even better to start little ones on it as soon as possible. I was just trying to figure out if I should persist on getting him on it. If anyone can help I would really appreciate it. Thanks Carrie

Regular Member

Date Joined Sep 2005
Total Posts : 318
   Posted 4/8/2006 7:34 AM (GMT -6)   

How ironic Carrie, I was just reading about this yesterday online and maybe perhaps can answer your question from a "medical" standpoint. 

From what I read.  In the studies on patients, giving two groups, one regular saline, one the hypertonic saline, it seemed as tho, the hypertonic saline did have better results, but, not without symptoms.  The symptoms were increased coughing, chest tightness, irritation in the airways.

Now being that a 2 yr old cannot exibit and speak of their symptoms, the physicians and care team would be hesitant to use this type of therapy.

So, with all that and said....it might be a good idea to try this when they are ready to introduce it to your child.  Try not to be upset, from what I read, there is other methods of treatment that might be as good or better with less symptoms at your 2 yr olds age and can tell you when he/she is having a reaction or complications to the treatment that is given.

One example...my twin boys are 10 yrs old.  They have minimal lung damage.  The lung transplant specialist coordinator which is their regular pulmonary doctor says that they need to be started on a treatment to "deter" further changes in their lungs.  His choice of treatment is:  Pulmozyme, which costs $1,666.00 without insurance.  Now, if he thought that hypertonic saline was the way to go, he would have chosen a cheaper, less en-expensive way of handling their progression of the disease.  I hope I have made some sense of this for you.

Never give up hope! we will soon get there!.

Kathy, mom to identical twin boys with CF (10 yrs), daughter 21, grandaughter 3, Newborn grandson
If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough"...you would hear this twins mom "Across America" "YESSSSSSSSSS"!!.
Moderator, Cystic Fibrosis.  "If there is questionable doubt, check it out"....with your healthcare provider!.  We are here to offer support, encouragement, and answer your questions as best we can.  Don't hesitate to step on in and enjoy!.

Regular Member

Date Joined Apr 2006
Total Posts : 25
   Posted 4/8/2006 7:43 AM (GMT -6)   
Kathy...Thanks for your reply and yes it did make sense. From what I have read about the hypertonic saline I had the idea that it was basicallly without side effects. That is why I thought it would be better for my son to be on that instead of another medicine. So thanks for shedding some light on the matter!! Carrie

New Member

Date Joined Jun 2006
Total Posts : 5
   Posted 10/10/2008 4:30 AM (GMT -6)   
Hi there.. Hannah is now nearly 4 and has been on pulmozyme since August 2006.

New Member

Date Joined Oct 2008
Total Posts : 3
   Posted 10/31/2008 1:21 PM (GMT -6)   
I'm 25 and I can say that starting hypertonic saline was the best decision ever! my lung function jumped from 68% to 80%. I feel it helps clear mucus in my lungs. I still take pulmozyme but I don't feel like it does anything for me. So as soon as your little guy can get on hypertonic saline i would do it! Saline is natural and salt is healing. There can be some side effects like blood in the sputum. I had that every now and then when I first started but that went away. If it's too harsh they can give 3% instead of 7%.

New Member

Date Joined Oct 2008
Total Posts : 8
   Posted 11/2/2008 2:17 AM (GMT -6)   
im 13 and i do hypertonic salene and its great it helps your lungs open up and gets you to cough up stuff wich is really good! :) thx :) megan
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