looking for fellow cf'rs

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grl22
New Member


Date Joined Apr 2006
Total Posts : 11
   Posted 4/10/2006 10:28 PM (GMT -7)   
Hello fellow CF'ers,
                  Hi i found this site about 2 weeks ago n this is the first post i've sent i have cf and cfrd, i'm 22 next month (May) and live in australia my health is currantly verry up and down.
                  I am hoping to make some new cf friends but haven't yet seen any online sad   So i'm asking you to come out of hiding and meet me yeah  I will try be a fun and entertaining friend to any one who is willing to do the same yeah                   I will get back to every one who writes me i would like to say eventually in deep hope there are lots of replys tongue
 
                well i'll be waiting eyes   and waiting
                           hope to hear from you soon
      My name is Neely xx

Twinstride
Regular Member


Date Joined Sep 2005
Total Posts : 318
   Posted 4/11/2006 7:30 AM (GMT -7)   
Hi Neely and welcome to HW!.

I can help you. If you make your way over the thread:

Sound Off: CF Member Room, you will find alot of people have entered their info there about themselves.

Oh yea, don't forget to add yours so we know a little bit about you.
Kathy, mom to identical twin boys with CF (10 yrs), daughter 21, grandaughter 3, Newborn grandson
 
If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough"...you would hear this twins mom "Across America" "YESSSSSSSSSS"!!.
 
Moderator, Cystic Fibrosis.  "If there is questionable doubt, check it out"....with your healthcare provider!.  We are here to offer support, encouragement, a shoulder to lean on, and answer your questions as best we can.  Don't hesitate to step on in and enjoy and remember!  "Never give up hope for a cure" one day we will get there!".  

To support HealingWell.com, follow the link below or click "Donate" on the top menu: 

http://www.healingwell.com/donate/


grl22
New Member


Date Joined Apr 2006
Total Posts : 11
   Posted 4/11/2006 1:18 PM (GMT -7)   
hi kathy,
      Thankyou for your welcome and reply apreciate it, only i can't find the part you are talking about i remember stumbling across it when i first took a look around but i cant remember how i did. I'm pretty new to all this confused
      I'll keep looking tho i'm sure i'll get there in the end lol x x x

Renegade Man
New Member


Date Joined Apr 2006
Total Posts : 6
   Posted 4/11/2006 7:24 PM (GMT -7)   
hi grl22
I'm knew at this also. I,m trying to find adults wiith CF. I'll turn 40 on April 15th but i've never had anybody with Cf to share the same things I'm going through.

grl22
New Member


Date Joined Apr 2006
Total Posts : 11
   Posted 4/11/2006 9:47 PM (GMT -7)   
hello Renegade Man,
                     Thank you for your reply it's muchly apreciated. Happy 40th birthday for the 15th. There is nothing i would like to her more than your story i think each CFer has such a unique strory, we are in simular situations but every one has such differant views and feelings. I know i'm one who feels as much as a love my family and friends they just don't REALY understand not a like a fellow CFer,
                   Welcome to this site i hope you find what you are looking for, it would be great to hear more from you :-)

Robertson
Regular Member


Date Joined Nov 2005
Total Posts : 21
   Posted 4/11/2006 10:48 PM (GMT -7)   

:-)  Hi Neely

Mark here 42 w/CF Welcome. Theres alot of great people here to get to know. you shouldn't have any trouble making friends


pour on the fat and hope for the best


grl22
New Member


Date Joined Apr 2006
Total Posts : 11
   Posted 4/11/2006 11:41 PM (GMT -7)   
Hi Mark
      Thank you for your reply, you are right i haven't had any problems making friends every one is very friendly and welcoming. I have heard so many brave and intresting stories already. I am really enjoying getting to know the ppl here at HW yeah      Well i hope to get to know you and every one here better :-)

Twinstride
Regular Member


Date Joined Sep 2005
Total Posts : 318
   Posted 4/12/2006 4:40 AM (GMT -7)   
Hi Neely,

Each topic listed here in the category of Cystic Fibrosis, is considered a thread. A thread contains many replies to a topic.

"Your topic" looking for fellow CF'ers.
"My topic or thread" Sound Off: CF Member Room. I will bump it up for you.

Hugs!
Kathy, mom to identical twin boys with CF (10 yrs), daughter 21, grandaughter 3, Newborn grandson
 
If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough"...you would hear this twins mom "Across America" "YESSSSSSSSSS"!!.
 
Moderator, Cystic Fibrosis.  "If there is questionable doubt, check it out"....with your healthcare provider!.  We are here to offer support, encouragement, a shoulder to lean on, and answer your questions as best we can.  Don't hesitate to step on in and enjoy and remember!  "Never give up hope for a cure" one day we will get there!".  

To support HealingWell.com, follow the link below or click "Donate" on the top menu: 

http://www.healingwell.com/donate/


Robertson
Regular Member


Date Joined Nov 2005
Total Posts : 21
   Posted 4/14/2006 10:29 PM (GMT -7)   
So Neely
How is the CF centers, and insurance there in Australia. Do you find that the doctors know allot about CF scool
pour on the fat and hope for the best


grl22
New Member


Date Joined Apr 2006
Total Posts : 11
   Posted 4/15/2006 12:26 AM (GMT -7)   
Hello Mark,
          Here i find the cf dr's to be really great they are very helpfull in majority of aspects. I have never had a problem with any of my treatments or dr's (cept i was on timentin and alergic to it) they treated me well they don't seam to treat you as a number but as a person the generaly show an intrest not in in my care but also in my life. they know what cf is does and can do and do there best to keep me informed.
          I'm not sure exactly how the insurance is or if it is one. We have medi-care and on that we don't need to pay for treatment and the treatment thats is paid for we get back of medi-care. i hope that answers your question :)
 
x x x Neely
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