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ArtistDominic
New Member


Date Joined Apr 2006
Total Posts : 1
   Posted 4/19/2006 10:06 PM (GMT -7)   
hey this is great. I've never had this many CF resources at once, and I mean real resources from people who live it. I'm 23, 24 4-29, and i was diagnosed when I was 6months old.  I've had the ups and downs, lobectomy, polypctomy, embulizations, broncs, all that crap. anyways its never really talked about but I want to know what everyone's PFT numbers are just to see how different they are maybe becuase of age or whatever factors.
 
When I'm at my healthiest I run FEV- 82s and FV1-74s, when I need a cleanout probably around FEV-75-70 FV1-60-55...
 
If you're willing to share that would be great.  Plus i wanted to know what life is like with lower lung function/ oxygen/ lung transplant especially when a lung tx is needed with regards to indicators like PFT numbers.
 
Thanks
 
Dominic

Chaser
Regular Member


Date Joined Apr 2006
Total Posts : 91
   Posted 4/20/2006 1:18 PM (GMT -7)   
My FEV1 is 82, my FEVC is 83, and my FEV1/FEVC is 97. I haven't done pfts in about 2 years, so I'm hoping that when I go to do them next week they are higher.

Twinstride
Regular Member


Date Joined Sep 2005
Total Posts : 318
   Posted 4/20/2006 4:24 PM (GMT -7)   

tongue  Hi Dominic and Welcome to HW!

It's good to have your info in our CF Member room, so, that everyone can perhaps know you a little better and you know them.

Go to thread:  Sound Off:  CF Member Room and add yourself.

Again, Welcome!  yeah


Kathy, mom to identical twin boys with CF (10 yrs), daughter 21, grandaughter 3, Newborn grandson
 
If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough"...you would hear this twins mom "Across America" "YESSSSSSSSSS"!!.
 
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imondeck
Regular Member


Date Joined Apr 2006
Total Posts : 105
   Posted 4/21/2006 9:09 AM (GMT -7)   
How many times do you all do them at each visit? Is there a noticeable variation with each time (at same visit) when doing them?

Sandra
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