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kristins mom
Regular Member

Date Joined Sep 2005
Total Posts : 27
   Posted 4/25/2006 11:39 AM (GMT -6)   
 Sorry if I missed it but has a CH chatroom schedule time ever been decided?  I really think it could be helpful if there was a time we could "meet" and perhaps learn some new ideas that would help each other.  I have learned there are some things that work quite well for CFers that you don't hear about in the clinics, but once you bring it up to the doctors, they say it may help but won't harm.  Sometimes experience is the best teacher.  Please keep me posted.

Regular Member

Date Joined Sep 2005
Total Posts : 318
   Posted 4/25/2006 2:28 PM (GMT -6)   

Hi Kristins Mom,

At this time, we have no chat room schedule.  If enough people are interested in coming to chat at a certain time, then we will set it up on the calender. 

The room had been slow and is increasing with new users lately.  If we set up a time, it would only be for an hour or so to have a timely chat for everyone to meet.  Perhaps at that time, we can have a topic to discuss.

*Discussion is open*  Everyone put your two cents worth in....whadya think!.  LOL.  yeah

Kathy, mom to identical twin boys with CF (10 yrs), daughter 21, grandaughter 3, Newborn grandson
If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough" would hear this twins mom "Across America" "YESSSSSSSSSS"!!.
Moderator, Cystic Fibrosis.  "If there is questionable doubt, check it out"....with your healthcare provider!.  We are here to offer support, encouragement, a shoulder to lean on, and answer your questions as best we can.  Don't hesitate to step on in and enjoy and remember!  "Never give up hope for a cure" one day we will get there!".  

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New Member

Date Joined Jan 2006
Total Posts : 19
   Posted 4/26/2006 1:56 PM (GMT -6)   
Dear Kristins mom,

Good idea as I too was wondering how we could chatand kathy setting aside a particular topic is a great idea!!
      cf is a part of me but dont define who I am

dmeyers 118
New Member

Date Joined May 2006
Total Posts : 13
   Posted 5/29/2006 7:46 PM (GMT -6)   
hi i am debbie my grandson has cf we have been at it for 2 years he is doing well at 39lbs he eats everything i would love to talk to you, my daughter is doing a great job with him i help out as much as possible we are having trouble with the vest he hates it we keep on going breathing treatments we do them twice a day, he is trying new enzymes a new study from childrens hosp in cinn we start this soon it suppose to be easier on his stomach will be intouch thanks debbie have a great nite.
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