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Hi Only A my name is Heather and i have a son who is 3 months old with CF.We found out he had it when his newborn screening came back positive at 8 days old.I know I feel better when I chat with other people it just remindes you other people are out there going through some of the same stuff and your not alone.I see your son is alot older than mine, has he been relitively healthy? So far our son has not been sick ( praise the Lord). Well just wanted to let you know I'm here to chat if you need to.
Welcome OnlyA! I too have an 11 year old son with cf, he is my youngest of 4 children. He goes to see his pulmo for his 3 month checkup this Tuesday the 23'rd. Hoping for a good visit as he has been healthy except for weight issues and being tired. Also need to ask about "white patches" appearing on his face.
Hope your son comes home on Monday and again, welcome!
LET ME KNOW about THE WHITE PATCHES AS ADAM SOMETIMES GETS THOSE ALSO... I JUST ASSUMED IT WAS BECAUSE HE WAS NOT GETTING ENOUGHT VITAMINS.
HE IS DOING WELL AND READY TO COME HOME HE IS BORED TO TEARS...WHERE ARE YOU FROM?
White patches/ spots can be from a number of things. I always get these when my enezymes are low or if the vitamins,zinc or calcium is low. but i dont get them on my tummy they are on my legs. i dont know if its the same thing for all of ya or not but look at ya kids fingernails. do u see white dots/spots there too? if you do im betting its the vitamins but im not a doctor or a kid so it may be diff for them. do any of ya with kids with cf or anyone who has Cf get hair on your tummy? if so what is that from???