I just joined this forum to find help on behalf of my friend who resides in prince edward Island. Her son is three years old and currently lying in a hospital bed as we speak with his organs shutting down. He has shown the signs and symptoms since he was born and his doctor has neglected proper treatment by saying he is fine. Just by looking at him you can see without a doubt that he has it. He looks to be the size of a one year old and is three and is extremely thin. My friend is only 20 years old and has no one to turn to. Her mother passed away five years ago and she is by herself trying to cope with her situation. I would love to be there but I am from ontario and just found out this morning of her sons condition. He has not been treated for this condition for his doctor said nothing is wrong with him.
She was told this morning that he definatly has the condition but it seems like there is no one on the island that knows everything about this condition.
I called macmaster hospital and they told me at information to wait until monday and pick up a phamplet at a local clinic. A PHAMPHLET!!!!!!!!!! This child is dying! I need to find her help and I have been calling numbers upon numbers and nothing. He doesnt have alot of time, especially to sit in a hospital for testing when there are doctors out there who know what to do. Does anyone on here know where I can get information??? I would really appreciate it and I know my friend would as well.