New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

kait86
New Member


Date Joined Aug 2006
Total Posts : 16
   Posted 8/27/2006 11:50 AM (GMT -7)   
Hi everyone, i'm 20 years old and I was born with cf. I was diagnosed because I had a meconimileus when I was born. I was wondering if anyone else had this and how their doing with managing their weight. I have always struggled with my weight and I have tried everything possible to maintain it. I am 20 years old at 5' 1 and I weigh around 100lbs. This is not a horrible weight but if I get sick or something I lose and I have to worry about putting the weight back on and its a huge stress. I would also not mind gaining an extra 5 or so pounds. I would love to hear what other people are doing and how they manage. You can also im me at sweety8828 if you want.

Thank You, Kaitlyn

gamejunkie
New Member


Date Joined Jun 2005
Total Posts : 3
   Posted 9/1/2006 2:05 PM (GMT -7)   
hi my name is stephen im 15 with cf. im 5'5 and 105lbs, it is hard to keep it up,but when i got my g-tube it realy helped. but think of it this way you will never be called fat and if you are its a complement. lol

kait86
New Member


Date Joined Aug 2006
Total Posts : 16
   Posted 9/5/2006 5:00 PM (GMT -7)   
Hi! Yeah I had a ng tube for 10years. I never liked it though. It always made me feel horrible and I didn't gain that much weight with it. I guess it helped keep the weight I had but for 10 years I would have liked to see a better result. Glad its working for you though.
 

LittleBird
Regular Member


Date Joined Nov 2005
Total Posts : 36
   Posted 9/14/2006 8:01 PM (GMT -7)   
hello, I was diegnosed because of meconimileus as well, I have a very short smal intestine because of it. I am now 19, 4'9", and 83 pounds. keeping wait on is very hard, and somthing I have to think about every day, I can easily lose about 3 pounds in one day, I eat as high of callore food as I can, and I have a g-tube that I put formula through at night, just to maintain my very low wait.

$Bach30
New Member


Date Joined Sep 2006
Total Posts : 1
   Posted 9/15/2006 10:27 PM (GMT -7)   
Hey, I had a meconimileus as well. I am 23, 5'11", 150 lbs and a bit on the slender side. I recently got sick and due to my job and other obligations I wasn't able to give myself any healing time until I had dropped about 15 pounds. This has happened a couple times before. So right now to get the weight back I've just been counting calories. I figured out how many I was eating on a daily basis then added 500 and watched for a week or so to see if there is weight gain, if not I add another 500 calories. Adding calories are hard but there are certain shakes, health bars and foods that can add quite a few calories without adding a lot food.

kait86
New Member


Date Joined Aug 2006
Total Posts : 16
   Posted 9/21/2006 4:35 PM (GMT -7)   
Thanks for your suggestion $Bach30. Thats a good idea, i always try to eat high calorie foods but i never know how much i'm really taking in. One thing that will be hard with that is that I gravitate towards the lighter and healthier foods, alot of those don't have high calories. Do you find this too? I'm curious how other people with a meconimileus feel when they eat because sometimes I just dont want to put another thing in my mouth becuase my intestines are killing me but at the same time I am so hungry. I was on a no white flour and sugar diet I felt so good but I lost weight. I'm thinking of doing it again and making sure I find more high calorie foods. just wondering if anyone else feels the same way.

kristins mom
Regular Member


Date Joined Sep 2005
Total Posts : 27
   Posted 9/22/2006 8:55 AM (GMT -7)   

 

Hi kait86-have you inquired about high calorie foods at your CF center?  They were able to provide me with alot of recipes for everything from drinks to deserts that were high calorie and quite tasty.  My daughter was such a picky eater, it was hard to find anything appealing to her but I had quite alot of success with those recipes.  I felt comfortable using them since that had come from the CFF. 


blackdodge
Regular Member


Date Joined Sep 2006
Total Posts : 36
   Posted 9/22/2006 9:26 PM (GMT -7)   
HELLO, Im 33 I have had a G -tube for 10 years, yes sometimes I hate it, any1 ever wake up with the formuala all over the place?
my family and sometimes even me credits it in saving me, when I needed that xtra boost of energy. it has hepled me to maintain some good weight. Im 130 I would like to see at least 145 someday

kait86
New Member


Date Joined Aug 2006
Total Posts : 16
   Posted 9/24/2006 12:51 PM (GMT -7)   
Yea I have talked to a cf nutritionist (sp) but they recommended foods that I don't eat. I'm a fairly healthy eater and they were recommending things with high fructose sugar, alot of diary which makes my mucus very thick and things that my body does not feel good eating. I'm trying something new now no gluten products which alot of people do if they have intestinal issues like chrons disease and cf. So I'll see how that goes and if anyone is interesting I can let you all know too. Thanks for the suggestions I have gotten so far.

kait86
New Member


Date Joined Aug 2006
Total Posts : 16
   Posted 9/24/2006 12:53 PM (GMT -7)   
blackdoge I know exactly what you mean about the formula all over. I hate that, it's all sticky and feels gross.

blackdodge
Regular Member


Date Joined Sep 2006
Total Posts : 36
   Posted 11/3/2006 11:06 PM (GMT -7)   
Hello Bach30, what did you eat to get your weight up to 150 pounds? thats like my ideal weight.

Chaser
Regular Member


Date Joined Apr 2006
Total Posts : 91
   Posted 11/3/2006 11:53 PM (GMT -7)   
You should try eating a lot of peanut butter, peanuts, or anything with protien. That helps with weight gain.

blackdodge
Regular Member


Date Joined Sep 2006
Total Posts : 36
   Posted 11/4/2006 7:14 PM (GMT -7)   
alot of peanuts, to bad i hate peanut butter

Chaser
Regular Member


Date Joined Apr 2006
Total Posts : 91
   Posted 11/5/2006 12:02 PM (GMT -7)   
You just need extra protein then. Eggs, you could get protein powder, cheese, etc.

adorable787
New Member


Date Joined Nov 2007
Total Posts : 2
   Posted 11/5/2007 1:06 PM (GMT -7)   

hello! im 20 a yr old female, 5'1 and weigh about 97 lbs. i am getting a g-tube in 3 weeks and was wondering about how much weight it would make me gain. i am excited about getting the tube and hoping to gain atleast 10 lbs. has anyone received good results with a g-tube?

 


Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 11/5/2007 4:39 PM (GMT -7)   
Hi adorable, welcome too healingwell!

I don't personally have a g-tube, and have never actually had one, as I find scandishakes very nice and easy too drink and get addicted too, plus i eat bucketloads of sugar.

I have a few friends though, who have all had very good experiances with over-night feeds. One of my friends finds that he gains weigth brilliantly on the feed, but if he tries too stop it, then he loses weight again.

I have heard reports also, that if you only have a poor appetite, because ou get full quick, it can stretch your stomach, so meals aren't as tough, and you can manage more in one sitting.

I hope it works for you, and that you can gain some weight.
Gem

Oh, and reading the rest of the post, it caught my attention. The reason being, is before CF patients were put on a high fat diet (before proper enzymes were invented, back in the 70's-80's I think). People were put on a zero fat, high protein diet. People managed to survive that. But I must say, looking back to then, a lot of kids with cf found there bodies couldn't cope on such a diet. I personally say-a good rounded diet, with lots of protein, and the right amount of enzymes too accomodate for any fat you have, and high-calorie- seems too work the best for me. I also have a LOT of sugar, and have developed a very sweet tooth, due to me finding it the best for gaining weight.

 


Co-moderator in the: Cystic Fibrosis Forums
 
 Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild liver cirrohsis, mild osteopenia. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
 Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ciprofloxacin, Ursodeoxycholic Acid, Saline neb/PEP system, Piriton, Mirtazapine, Diazepam, slow-sodium, Skandishake and Fresubin.
Had a Port-a-cath fitted on chest wall since Nov 05

Post Edited (Darkies Gem) : 11/5/2007 4:48:56 PM (GMT-7)


adorable787
New Member


Date Joined Nov 2007
Total Posts : 2
   Posted 11/6/2007 10:58 AM (GMT -7)   
Darkies Gem, i am not able to eat loads of sugar because i also have cf related diabetes. therefore i must consume sugar in small amounts but still try to gain weight. so, i am really hoping that the g-tube will be a life saver! also, i noticed that you take mirtazapine. do you take that as an appetite stimulant or for some other reason. i recently was put on mirtazapine to increase my appetite but it didnt work. it just made me crazy!

Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 11/6/2007 12:08 PM (GMT -7)   
Hiya!
I'm on Mirtazapine, for depression. It does have the bonus effects of making me hungry and making me sleep though. It works really well for me, although, don't know of anyone else, who gets the good effects out of them, excet people who want too lose weight lol.
 
Usually I remember to include advice for people wih CFRD, but forgot this time-sorry. Obviously don't go with the whole sugar diet.


Co-moderator in the: Cystic Fibrosis Forums
 
 Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild liver cirrohsis, mild osteopenia. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
 Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ciprofloxacin, Ursodeoxycholic Acid, Saline neb/PEP system, Piriton, Mirtazapine, Diazepam, slow-sodium, Skandishake and Fresubin.
Had a Port-a-cath fitted on chest wall since Nov 05

Post Edited (Darkies Gem) : 11/6/2007 12:14:18 PM (GMT-7)

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 10, 2016 12:06 AM (GMT -7)
There are a total of 2,735,768 posts in 301,330 threads.
View Active Threads


Who's Online
This forum has 151433 registered members. Please welcome our newest member, teenujohn.
184 Guest(s), 5 Registered Member(s) are currently online.  Details
Georgia Hunter, Job_the_Phoenix, holo100, Sheeks175, julymorning


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer