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butterfly-babe
New Member


Date Joined Oct 2006
Total Posts : 12
   Posted 10/11/2006 7:37 AM (GMT -7)   
heyy im new here is their anyone else who is 15 or around that age? i really im glad i found this syte as it does help to see what other people feel about cf and sieng if they share the same problems well hope to hear from you lot x

Melli_lilroo
New Member


Date Joined Jul 2006
Total Posts : 10
   Posted 10/12/2006 12:46 AM (GMT -7)   
Hi butterfly babe I too am 15! My names mel or melli nice to meet you :)  how is your health going? do you have msn?there is also a chat feature of this site so i might see u there some time. bye!!
Melissa - 15 y/o
Conditions: Cystic Fibrosis, Asthma
Meds: Cotazymes Forte, Pulmozyme, Symbicort, Ventolin, Azithromicyn, Acidophilus, Hypertonic Saline, Tobramycin, Colistin, Ciprofloxacin, salt tablets, VitABDECK.


butterfly-babe
New Member


Date Joined Oct 2006
Total Posts : 12
   Posted 10/12/2006 8:33 AM (GMT -7)   
hey Melli_cureCF nice to meet you 2 :D yeah i have msn! thankyou for the reply! Im ok in my self a little chesty at the mo but nothing to bad
my msn addy is e.natale@hotmail.com if you want to add me! Bye for now x

Audz
Regular Member


Date Joined Oct 2006
Total Posts : 24
   Posted 10/13/2006 2:12 AM (GMT -7)   
Hey, my names Audrey and I'm 15 too :P. Btw, my msn is audz_rofl@hotmail.com

MissAlexsBP
New Member


Date Joined Nov 2006
Total Posts : 8
   Posted 11/11/2006 8:50 PM (GMT -7)   
Hello!
 
My name is Alex and I am actually 18 years old, but if you ever want to talk or anything feel free to contact me! =0) If you want to just put in the subject 'CF' or something like that.  I'll admit that I'm a bit clicker happy with deleating email/online adresses that I don't know.
theblackparade888@yahoo.com and my aol im is alexband1001, although I'm not on that very frequently.
 
Good Luck!!
-Alex
 
 

mellowyellow
New Member


Date Joined Jul 2006
Total Posts : 9
   Posted 1/5/2007 12:19 PM (GMT -7)   
hey butterfly-babe this is Andrew im 20/m with cf im new to this site as well if you would love to talk plz E-MAIL me at www.ada2005@mounet.com if would like to chat my name is Andrew ok :-)
butterfly-babe said...
heyy im new here is their anyone else who is 15 or around that age? i really im glad i found this syte as it does help to see what other people feel about cf and sieng if they share the same problems well hope to hear from you lot x

mellowyellow
New Member


Date Joined Jul 2006
Total Posts : 9
   Posted 1/10/2007 9:38 AM (GMT -7)   
hey im a 20 year old that has cf my name is Andrew and i have had this illness every since i was a baby i mainly stay in the hospital most of my life but thats life but anyways im on a transplant for 2 new lungs i have been on it for 7 yrs then i got off of it and now back on it hoping it want take forever if anyone would like to write me heres my e-mail frog_ada@yahoo.com

bjmb_sanders
New Member


Date Joined Jan 2007
Total Posts : 1
   Posted 1/18/2007 4:08 PM (GMT -7)   
Hi. My name is Jessica, 22yrs. old, and I have 2 boys...ages 4 & 2. I seen that this sight may be the one I need to use to talk to other people with Cystic Fibrosis. March of '06, my youngest son got diagnosed with CF and its been pretty hard on us since then. He was constantly in the hospital with pneumonia and other breathing problems. He is doing somewhat better with that but with the help of breathing treatments 6 times a day. The question that really concerns me as of right now is, he just turned 2 in November and he is not up with his weight like he should be. He only weighs about 20 lbs. We have talked about a feeding tube (mickey button) with his doctor and still he doesn't seem like that would help him. He also doesn't understand that I live with my son 24/7 and he doesn't know how much food intake he is actually getting...and to be honest, he is not getting much at all. He eats cereal in the morning for breakfast and that's all he ever wants. That's not like him at all...If someone could please just contact me and let me know what you think about my situtation or ways that I may get him to eat better..I would greatly appreciate it!!!
jezka_sandaz@yahoo.com or http://www.myspace.com/jessica_reenae
Thanks So Much!!
xoxo

survivinwithCF
New Member


Date Joined Jan 2007
Total Posts : 4
   Posted 1/18/2007 7:13 PM (GMT -7)   
hey im new to this to, im 15 and im up for a talk! please get back to me!
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