My Child's Tests

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New Member

Date Joined Oct 2006
Total Posts : 11
   Posted 10/14/2006 2:12 PM (GMT -6)   
I was curious because her one the doctors say she has been ruled out by 90% because she does not test positive in the 32, but another says that is not mecessarily so because 1) of her symptoms and 2) because there are more than a 1000 mutations and most do not have a "test" for them.  Thank you for your reply.

New Member

Date Joined Oct 2006
Total Posts : 11
   Posted 10/14/2006 2:13 PM (GMT -6)   
I did not meant o post that here-Sorry!

Regular Member

Date Joined Apr 2006
Total Posts : 105
   Posted 10/15/2006 9:45 AM (GMT -6)   
Hello.  Make sure your daughter is seeing a doctor that is familiar with CF and or affliated/accredited with/to a CF center.
I was told there are over 1500 mutations, with more being discovered every day.  I would give the sweat test another go (at an accredited center).
Did your daughter have a fecal fat/elastase test done yet?
Hang in there and hope you get some answers soon,  It is very frustrating not knowing what is wrong with your child.
Be who you are and say what you feel, because those who mind don't matter and those who matter don't mind. ~Dr. Seuss

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