I have only been into hospital for CF three times? I don't think that any of the times were for actual CF, i've had phneumonia, osteomyletis, peri-arthritis and Sudamonus. I swim heaps and do lots of sport. I've just recently got off 7 months of antibiotics. It seems that one thing after another just keeps coming at me. I go into the hospital for a breathing test, weight, height and just general checkup every three months. The hardest part i find is how to tell people who ask what your taking tablets for! My closest friends know and they respect it and sometimes help me to remember to take my medicines...which is great! My parents always go on how lucky I am to have only had a couple of problems. I havn't done physio in a while because the swimming seems to clear out my lungs well. Well hope that this has helped.
I've had my fair share of hospital appointments and visits. I didn't cope well with shared care between hospitals, and much preferred it just going to an ordinary CF unit, even though it is 2 hours away. While I hate the wards in my hospital though, it's my only choice at the moment, as it's dangerous for me to do home IV's. Although for my last stay, I was totally self-medicating, which went very well.
I find living with CF hard, made harder by raised CPK levels, which is currently stood at me having some form of Muscular Dystrophy, until they get the full results from a muscle biopsy they took a while ago. I end up feeling guilty that it's not just me having to cope wth my CF, but my boyfriend too.
I'm actually currently waiting for a taxi to take me up to the hospital, as I have stomach ache. I'd usually just let it go away, but I've had it for a few months, and Paul (the boyfriend) has been so worked up about it, he's had a panic attack yesterday at work, due to stress. Meaning I now have to go have it checked out
My treatment annoys me, there's far too much, it consits of:
Creon 10,000 at meal times, flucloxacillin, sertraline, salbutamol, vitamins A,D and E, Ursodeoxychloric acid, Colostin(promixin/colomycin) INeb nebuliser, domperidone, omeprazole, fresubin, seretide and physio therapy using a PEP mask.
Erm, I hope this is the sort of stuff you wanted. I wasn't sure.
I could talk about my CF and everything for ages,if I had a subject to start it on
Post Edited (Darkies Gem) : 2/13/2007 5:32:37 AM (GMT-7)
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