Getting real bad stomack build up/pain for 7 mnths now...

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New Member

Date Joined Oct 2006
Total Posts : 1
   Posted Today 2:23 AM (GMT -6)   
Hi. I am 29 and have only had chest complaints until this yr. I don't no why but does anyone have stomack pains where it seems over a series of days you get constipated, not totally though. Had barrium meal tests, didn't show up anything. These really effect daily living. You can't eat, sleep and function much at all. They think it might be 'DIOS' (something intestinal obstruction syndrome??? The doc has me on lactulose (light laxitive). It helps short term, but not every time. And it is very embarrassing to take as you cant control ur bowels. It like I go from 1 extreme to the other.

Also. This has created severe depression for me as I haev had to give up work and I lost my gf of 4 yrs as it was becoming to much for her.I meet girls real easy as I don't at all look like I suffer from CF. I'm a personal trainer. I weight 80kg and am 176cm. I can run really well. Like 4 km in 18 mins. And i can squat and bence press 150kg. I train every day of my life.Sometimes twice, which I've been doing for 10 yrs now. Sometimes I wounder why I do it. I've had 2 gf of 4 yrs leave me cos of cf.I just meet a really lovely girl, but because of this new problem in my stomack I even more scared to have someone new in my life.I sabotage most opportunities i have cos I just find it easier, but we all deserve to have someone special and we desire it as much as the next person. I have a graphic design degree and I want to do a yr at teachers college then teach pe n design at High school. But I feel so sick right now. The time and energy to train seems to be all I can manage, yet I have so much ambition. I don't no how to live my life anymore. When girls tell you that living with you is like living in a black hole. It hurts. Is it fair to let ppl in our lives like this. Should we just have fun in not worry about a future. But then that compromises some chance at attracting a girl (cause they want a normal life). I just dont no anymore. I'm a fighter tho. Dispite my girl leaving me I still managed to qualify for pulmozym? I ran my little ass off. I am at home again. God 29 unemployed at home. I'm too embarrassed to tell a girl that, after all that I achieved this doesn't seem fair. I no that you guys out there are more than likely going through the same. I'm so sorry4that. I wish we could all be so happy. If anyone wants to be fit and strong I can definately help. You have to be very motivated for me to help you though. I think I can slow your lung deterioration. I have asthma and it helps to run. Even if you can't make it to the end of th road. You will if you just do a little more each time. Please give it a go. Its nice to breath again!!!

God I ***** I know. My anxiety levels get high when girls are involved. Also I drink about 8 jim beans R2Ds each weekend. Does anyone know if that is good or bad or alright.

Take care.

Regular Member

Date Joined Oct 2006
Total Posts : 24
   Posted 10/30/2006 3:18 AM (GMT -6)   
Maybe you should try a different enzyme? I remember I switched from cotazym to creon and it totally stuffed everything up because I was taking to many but then I switched again to a lower strength or something and my stomach was ok again. Yeah, it's hard finding someone who will love you that much to put up with CF but there are people out there who do it. A lot of Cfers suffer from depression, I think we've all been there and it sucks when you know you're not going to live as long as everyone else, maybe you should talk to your doc about it to get some help. Also with the alcohol, mass alcohol consumption isn't good for anyone, but I don't think once a week is to harmful. But you got to be careful because sometimes the antibiotics don't agree with the alcohol.

Regular Member

Date Joined Apr 2006
Total Posts : 91
   Posted 10/30/2006 12:08 PM (GMT -6)   
I would also suggest maybe getting your enzymes changed. It could be that they are too strong for you, or maybe you're taking too many? As for alcohol, drinking once and a while isn't too bad, but alcohol does lower the levels of GSH in our systems (GSH acts as an anti-inflammatory), and this could cause inflammation in your lungs and other areas of the body. Plus alcohol dehydrates you as well.

basketball mom
New Member

Date Joined Jul 2006
Total Posts : 3
   Posted 11/28/2006 7:19 PM (GMT -6)   
My son has SUFFERED from DIOS for years.  He has been hospitalized MANY times, suffered the insertion of NG tubes, and had laxative forced down his throat.  We were very discouraged and did not know what to do next.  The doctors could not supply a "real" answer and the situation grew more furstrating.  The docs kept saying it was Irritable Bowel Syndrome and this diagnosis was not sufficient for us.  A Gastro. doc suggested taking a medicine called Elavil (amitriptyline), a antidepressant.  I refused this medicine and increasingly became more angry, myself.  I felt as if the docs were saying my son was crazy or depressed and this was the farthest thing from the truth.  Well...I relented, and my son started on a small dose at bedtime.  After being hospitalized with debilitating pain over and over, he has NOT even had a complaint since starting the Elavil.  I wish I had been more compliant earlier!
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