thanks emily, was good to hear from you.
with your CF do you find it hard for you to tell people about it? and if you do why you think the main resons are? basicaly im lookinf for how it affects you in these areas (listed below) any feed back is welcome
- your competency : socialy,physicaly, academicaly, and work related.
- your capacity to have meaningful relationships
- purpose and fulfilment
- acceptance of the world
i know they sound like big things, but basicaly im just wondering if you feel that your CF effects you socialy, in your relationships,your independance,how you see your self,your values etc
if you get what i mean.
i am sorry to pry, but i don want to understand the way it effects people. Weather it only be in a small way or in a larger way.
Thankyou so much Emily.
P.S - others feel free to post :D
Thankful For Your Help!
Hello Hayley and welcome to Healing Well!
My youngest child, son Treyson has CF, he is entering adolescence and emotions are changing.
You are getting a wealth of knowledge and feedback here. The young women here are an inspiration to life and I think you will get some insightful answers for your assignment. Good luck!
Hello, my name is Deirdre. I'm 18 - about to turn 19 in just a few short weeks! I'm a freshman in college, and about to finish my first year! woo hoo!! anyhow, I was only diagnosed with cf the summer of my junior year in high school. It was pretty insane, and I think the only reason I got through is because I was in a sort of denial about it all, and I mean, I'm only just getting over this denial now. I was always sick in one way or another growing up, and since the first grade I was living with what my doctors thought was just asthma and allergies. Anyway, i went in for a sinus surgery and my docs decided to give me a sweat test, and that's how I came to be diagnosed. I am fortunate enough to say, at least, that i only have a mild case of cf. It's so weird to me because it feels like such an insignificant part of my life. I mean to say, I'm relatively healthy (although there's always room for improvement) and I never miss much school at all, and I am able to have an active social life. When I think about it , it's just so strange to consider that all the things I have ever dreamed of may not quite come true simply because I've got this sort of expiration date, I guess you could say. I do want to get married and have children and have a successful career, and I am going to try for it to the best of my ability, but i'm sure you can imagine the shock of realizing that things just may not work as I had always hoped simply because I was born with this thing called cf. I must say that it is quite intimidating to think that people might not be willing to form relationships with me because my illness might make them uncomfortable, but we've all got to face some sort of rejection at one point or another. Of course, I have to admit that as I come to terms with cf and am beginning to accept it as a part of my life, it is the reaction and judgement from other people that makes me hesitant to explain what I've got. So, I just avoid the topic if I can help it. I know that I have this chronic cough that can sometimes get pretty nasty, but otherwise, I feel that there is no reason for anyone to have suspicion of something being "wrong" with me. So, I'm taking things pretty well right now. The most absolutely terrifying thing to me at this point, however, is how I might very well die a young and possibly painful death (perhaps i'm being a bit dramatic, haha). Anyway, I feel like I'm rambling a bit, and I may or may not be making the most sense at this point (it is really late right now, too), so feel free to email me any questions if you'd like more specific answers to your questions. Otherwise...maybe I'll post some after thoughts later. Okay. Good night!
Seven days without laughter make one weak.