Question concerning B. Cepacia

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Tayra
Regular Member


Date Joined Nov 2005
Total Posts : 40
   Posted 4/8/2007 11:11 PM (GMT -7)   
Hello all. I'm sure you've all seen my posts before so you probably figure that I think I know it all! (which I don't, I just know what works well for me!) On that note, I'm here to reassure you that I DON'T know it all - with a question / concern.

I've been made aware recently that there's another girl who moved here here to my small town and she has CF & B. Cepacia. I have CF with plenty of lung involvement (staph and a cold currently) but no B. Cepacia. I do not want to meet this girl in person and risk getting it. (my team and my parents believe the best way for cystics to talk is online - and I'm in total agreement!)......

But - I want to know - does anyone know what the risk of cross contamination would be if I were to use our communal swimming pool? I have no guarantee if she does or does not I cant get ahold of her contact info to ask directly - my CF team told me "its a water-based organism" - but didn't really give me a clear yes or no on it. Has anyone brought any similar concerns up with their teams? If so - what was their answers?

My current standpoint is - I don't want to risk it - BUT - I cant live my life in a bubble, and I really miss swimming (lifeguard for 2 years, then moved here, swam a little bit, but then the pool was shut for 8 months for renovations, and now its opened but I really dont want to risk getting bugs that I really dont need ;) LOL

Anyone have any thoughts?

Thanks in advance!

Pigalit
New Member


Date Joined Oct 2004
Total Posts : 14
   Posted 4/10/2007 3:54 PM (GMT -7)   
ok personaly i wouldnt risk it.in my opinion the swimming pool is a breathing ground for bugs.dont people wear those little booties to protect them from getting verrucas??swiming is good for breathing but if it is at risk of picking up any bugs i would take up jogging instead and maybe cycling out in the nice fresh air!!i presume you dont live near the sea cuz if you did i would say swim there!but then again it is your decision and if your immune system is good it could be fine but if it was me i wouldnt do it!!
Claire


Tayra
Regular Member


Date Joined Nov 2005
Total Posts : 40
   Posted 4/13/2007 11:50 AM (GMT -7)   
Thank you, thats pretty much the decision that I had come to, its nice to hear someone else take the same position. :) *hugs*

Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 4/16/2007 1:42 PM (GMT -7)   
B Cepcia is pretty much bred like Psuedomonas and pretty much all bugs I think. It's warm moist environments that posethe biggest risk. The worst place for this is jacuzzies and steam rooms I believe. They also say against dry air saunas, but I find they really move stuff off your lungs. The trouble is, if there are other people in there with you, then it's the water vapours from there sweat rising into the air which then creates an infection risk. Same goes for aromatherapy rooms.

I got told at my clinic that a normal swimming pool poses little risk, but I still wouldn't like to risk it myself.
Swimming is brilliant excercise and does take less strain on your joints than going on cardio machines and the like.
It's obviously just weighing up the pro's and con's to swimming. I believe it's a lot to do with the filteration system of the pool. I could never go in any ofthe pools near me, as the water is constanstly being circulated round without being filtered. Perhaps ask your team what there thoughts on the matter are?
It's true!: Smile and the whole world smiles with you. Frown and the world turns upside down.
 Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild liver cirrohsis, mild osteopenia. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
 Allergies: Any dressing except Mepilex border. Even plasters make my skin blister. Hayfever, Tazocin, Tobromycin, Ibruprofen, Asprin, Codeine, Mirtazapine.
I have a pretty little port-a-cath on left side of chest wall

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