Check Out This New CF Website

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momof3boys1girl
Regular Member


Date Joined Apr 2006
Total Posts : 25
   Posted 4/21/2007 8:13 AM (GMT -7)   
Hi! It has been awhile since I posted on this forum but I wanted to let you guys know of a new website just for cf. This website was created by a very dedicated mother of a 2 year old son with cf. This website features nutrition and cf and alternative ways to deal with this disease. It also features breastfeeding the cf infant. It is for people of all ages who deal with this disease. Check it out...you will be glad you did. cfnutrition4life.com
 
Thanks,
Carrie

hlobubbles
New Member


Date Joined Sep 2004
Total Posts : 1
   Posted 5/8/2007 6:01 AM (GMT -7)   
Carrie: Would you happen to know a place where there is a cystic fibrosis chat room? I have looked everywhere, I really need someone to talk to that can relate. Thankyou, Heather

Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 5/8/2007 7:09 AM (GMT -7)   
There is one on here if you haven't already seen it. There's also www.pwcf.net 
 
The trouble is, for some reason, CF chat rooms don't tend to be all that busy. There is another website, where there's usually always people online: www.cftrust.org.uk It's a busy site, so you tend to get responses to things quicker, and reliable information. It is UK based, but I know there's a few people from other countries who visit the site.
 
Hope this helps!
It's true!: Smile and the whole world smiles with you. Frown and the world turns upside down.
 Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild liver cirrohsis, mild osteopenia. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
 Allergies: Any dressing except Mepilex border. Even plasters make my skin blister. Hayfever, Tazocin, Tobromycin, Ibruprofen, Asprin, Codeine, Mirtazapine.
I have a pretty little port-a-cath on left side of chest wall

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