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butterfly-babe
New Member


Date Joined Oct 2006
Total Posts : 12
   Posted 5/1/2007 5:43 AM (GMT -7)   
hi - Im 15 and weigh about 77llbs. doctors want me to have a gastro for overnight feeds. Does any one have or had a gastro and did it help? any feedback or comments much appreciated.  

koalaz2004
New Member


Date Joined May 2007
Total Posts : 5
   Posted 5/3/2007 6:24 PM (GMT -7)   
My brother actually has CF just like I do. He actually has a GI Tube, from what he has said to me about it is that it's not all that bad. The surgery doesn't take that long to recover from and the benefits are great. He wakes up in the morning and straps his tube on while finishing up his school work then does his vest and heads off to school. When he gets back home at night he does another feed from the bag and then goes off and plays video games. I talked with him and he says its really not all that bad. Hope that helps.

blackdodge
Regular Member


Date Joined Sep 2006
Total Posts : 36
   Posted 5/4/2007 10:29 PM (GMT -7)   
I have had a g-tube for the past 11 years, I am 33, it has helped to give me the xtra energy and nutrition to maintian my weight when I get sick and cant eat, I think its the best thing I ever did, I  think you should do it, my doctors wanted me to get one, but I made the final decision. I will be honest with you it will be painful after you have it done, if you have to cough be ready, but I promise u the pain does go away, I was in the hospitol for a month, the doctors wanted to get my lungs cleared out b4 I had it done. if u have any questions please feel free to ask.

butterfly-babe
New Member


Date Joined Oct 2006
Total Posts : 12
   Posted 5/5/2007 1:41 PM (GMT -7)   
thanx guys comments appreciated really helped, think i will go for it !

bluedevil
New Member


Date Joined Oct 2007
Total Posts : 5
   Posted 10/31/2007 8:17 AM (GMT -7)   
                                         hey everyone im Andrew and im from virginia i have had a g-tube since i was 5 and its been a drag its hard to keep from going anywheres after night because thats when i get hooked up on my feeds so i know what your going through just like me i got diagnose when i was just a baby im a diabetic sorry bad speller i have to take inslin every night

~*Melissa*~
New Member


Date Joined Oct 2007
Total Posts : 5
   Posted 11/1/2007 8:33 AM (GMT -7)   
Hello! Well...there's a lot of good and bad about a g-tube. I got one in 4th grade, I'm 19 now. I didn't want one, but my parents and doctors convinced me to get one, I don't remember my weight...wasn't very good though. I drove 4 hours away to get surgery, and I was terrified. I'm not going to lie the surgery was pretty painful. I woke up and had to cough a lot, I found that holding a pillow to your stomach while you cough helps. Walking to the bathroom hurt too. I went home after a day or two, I probably wasn't ready...but I was ready for some real food. It feels a lot better after awhile. Your skin tries to still grow around it though, so for awhile I had to take this q-tip with medicine on it that burned the skin to stop it from growing.

After I got used to all this I gained a lot of weight. I took 3-4 cans of Nutren per night. It took awhile in the morning for me to be able to eat because I was so full, sometimes I would get sick. I finally got up to 99 pounds around 8th or 9th grade, then I stopped gaining weight. I never could reach my goal of 100 pounds. Then, "lucky" me got strep throat and I lost 10 pounds. No matter how hard I tried I couldn't get in the 90's. again.

At that age, I was starting to look at my body, and I was trying to fit in. The g-tube made me self conscious, because it looked like I had a big lump in my stomach. I started taping it down to my stomach to make it less noticeable. When one would go bad it would leak, and it was embarrassing in the middle of the class when this happened. Sometimes it would leak for no reason, ruining my shirts. I would make excuses saying that I spilled something on myself. It was also not doing any good by this time, because my weight had stayed the same for a couple years. I stopped taking it as much because it made me sick in the morning, and I started eating more. In 10th or 11th grade I quit taking it for several months and saw the same results as when I had it in, I wasn't losing weight.

I finally convinced the doctor to let me remove it, much to his disaproval. I told him if I had to get a transplant in the future, I could always get a new one. Maybe I shouldn't of done this, but I'm so much more confident and happier now, and I haven't lost any weight since. I still weigh in the mid 80's and I'm 5' and 19 years old. I may be scrawny, but I'm happy and I eat more than anyone I know. If it had continued to help me gain weight, I might still have it, but after awhile, on me, I noticed that it stopped helping.

I'm not trying to scare you with all my talk about how much I hated the thing, I'm just trying to get you to see the whole picture. Doctors don't always let you in on the grim details. If it will help you any, and they can get money from it, then they see it as a good thing. I've noticed that a lot of doctors look at ways to heal you physically, but they don't really look into how it will affect you mentally.

Perhaps you should try it for a few years, at least until you get a healthier weight. If you have any questions my e-mail is ditzydancerof06@aol.com.

Melissa

cheerchix
New Member


Date Joined Nov 2007
Total Posts : 3
   Posted 11/26/2007 11:02 AM (GMT -7)   
I have a g-tube and im 14 .
im 72 pounds now and I have had it for a couple months.
The g-tube was painful at first.
I got sick and getting up out of bed made me feel like i was gonna throw up and made me dizzy.
My doctors said I would be gaining like 10 pounds a month, i gained 4 in 3 months, but I gained those pounds in the hospital.
My doctors said it would work like a miracle, my doctors lied, they pressured me to get it and i hate it.
It puts a lump in the shirt and I think everyone can see it.

Babi Shea
New Member


Date Joined Jan 2008
Total Posts : 5
   Posted 1/29/2008 3:15 AM (GMT -7)   
Hi I am Sheana. I am 19 and have a g-tube. I have had it for 6 years && at first I was afraid to get it not only was I self consious but I scared about getting it put in!! I do my tube feedings at night they start at 10:00pm and the rate it goes in is 90 and I use 2cal 3 cans. I only weigh 82.7 Ibs && like I said I am 19 that is <b>TINY</b> for my age.. but I have never met a person that has a g-tube like me!! that is kool.. um bluedevil do you have a myspace or umm yahoo mesenger or aim if so please let me know thank you!
Babi Shea

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