Sandra and Vera thanks for your replies. Actually somehow feeling worse today, as picked up another cold which suddenly started this afternoon. My immun esystem must have taken a major battering at some point. I'm really interested now to see the results of my sputum (horrible word) sample and blood test to check my infection markers. I have a feeling there's something there not seeing. Hopefully they'l
open there eyes soon and spot something.
I never had an eating problem when I was younger, although my brother did. Rather than eat, he used to make himself throw up if my mum tried to force feed him. All he would eat willingly was chocolate and would drink loads of Fresubin nutritional drinks. When he was about
7, he wouldn't eat his dinner, but somehow managed to scoof through a full huge tin of quality streets that he'd snuck to his room.
He was the one with the bowl blockage problems, whereas I suffered a lot more with my chest. Strangely though, I've always been on more Creon than him. Were both on Creon 10,000 as both me and my brother noticed bowl problems when we tried to go up to any of the higher dose tablets.
The Omeprazole is good as it usually soaks up the acid, making breathing easier. I always have problems with my eating if I have the slightest breathing trouble.
I am especially havng problems now with my eating. To make sure I keep my weight up, I tend to only cook and eat stuff I fancy if I'm not feeling hungry. In the past doing this, I've managed to get through 4 bowls of apple crumble and custard, when everything else i tried to eat was making me naseuas and full.
If I am struggling with my weight. Everything I do force down, has a LOT of calories to it. I add full-fat cheese to most measl. Cream cheese and real butter along with grated cheese and beans on jacket potatoes.
I count on my nutritional drinks to give me my main source of nutrition. That way, my food can just be high calorie without me also having to worry about
the general nutritional values.
I add sugar to absolutely any dessert and have 6 in my coffee. MY dietician has informed me that my sweet tooth is the best thing for me, as sugar stores as more fat than eating the same amount of fat.
Me personaly, I can't eat if I'm not hungry, or I end up feeling nauseas. If I try force fed when naseuas I end up being sick, and then I struggle even more over the next couple of days.
I have been grilled over my eating methods before, but as I say it does work for me, and now I'm using these methods. I haven't actually lost weight in a couple of months, it's staying exactly the same, rather than plummeting like it was doing.
Hope this helps. I think I am actually going to go pass out somewhere. I've not been near anyone with a cold today, yet since this afternoon I've been full of one. Can'thave my nebuliser, as struggling breathing as it is. Going to please the hospital no end I'm sure, but ah well. There not the ones who have to talk more tablets to counteract the effects of the neb.
Oh, there was a trick to being able to tell what it's like to breath through CF lungs. It was hold your nose and breathe through a normal sized drinking straw for 1 minute. I actualy physically can't do it. Probably because my lungs are bad to begn with:P
PS: There's a post here, with some of my recipes on it:
Hope your all well:)
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It's true!: Smile and the whole world smiles with you. Frown and the world turns upside down
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild liver cirrohsis, mild osteopenia. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Allergies: Any dressing except Mepilex border. Even plasters make my skin blister. Hayfever, Tazocin, Colomycin, Ibruprofen, Asprin, Codeine.