I agree the pictures are very very refreshing. I have a habit of going through a lot of the CF video's when I'm sad.
I'm not the person who did the video, no. The person he did is also called Gemma though.
She did another Youtube video, that had a really good idea behind it. The idea was, you sent in a picture of you. For every picture you sent, you also had to send a pound. The pictures got put on a slideshow, to show a happy CF world type thing.
I'm on there aswell somewhere.
Th video's here, She's stopped adding photo's to it now though:
You may be able to spot me if you watch it. I'm lucking very red white and piratey sat infront of a tent:P
My cold is not going well. I'm still really bunged up and tired and breathless. Hardley eating, as I start choking when I try, so on 3 skandishakes a day, as i can just sip them. My weight is going up because of this though, which is good. I think it's because they take a definate amount of creon to digest, so I manage not to have too little, like sometimes I do when I misjudge a meal.
I'm guessing instead of clicking post reply, you clicked on new topic instead. Nothing to worry about
though, as I've done it myself plenty of times before:P
Yes, males with CF do have a harder time on the having kids front. It's something to do with pesky mucous blocking tubes and stopping things from leaving I think. Most males with CF have a normal sperm production, but they just can't get through the mucousy barrier. A lot find that having kids the normal way is hard. And can have some sort of sperm retrieval thingy.
I'm not very good on my Geography at all. Infact, I failed the subject very very misrably. So I'm going to take a guess at Africa. Take no offence if I'm wrong. It's just my geography skils and from what you said, making the answer somehow. Either that or Austrailia, as that's all the way on the other side of the world.
Your right about
the Caucasions thing. There has been a lot of theories into how CF came about
. Most of them are Western and Caucasion I believe.
Oh, and growing up and school, almost missed that bit:
For some reason all of the people in my year and classes and even in other years. Had no problem with me taking my meds in class or my meds in general. I had a couple of friends who stuck to me like glue when I had my tablets and things, and when in primary school I had friends who'd help me split my tablets into a yoghurt.
The people who seemed to have the problem with it all, were the adults. They made sure I went to them on my breaks to have my tablets. Dinner times were horrible in secondary school for both meand my brother. We had to chose out the most fatty things, so was always asking the fat content, and what sort of milk was used in the puddings today. The diner server's got used to us after a couple of years, but dinner adies would not accept that me and my brother were having our creon with our meals , whether they liked it or not. about
once a month the argment cropped up, I'm sure it must have been PMT week for the whole of the dinner ladies or soemthing.
They had been sent letters and had meetings with my CF nurse many a time. But even as I got to the last year. They still had a problem with it. Luckily I wouldn't back down, and went ape at my brother. As he felt so intimidated and was sick of the scene the dinner ladies caused. He just gave up the fight, and didn't bother having any of his meds throughout the days at school. Me being the stubborn
cookie that I am, just wouldn't let them win like that. It was my health not there's they were playing with.
Another problem I had in school was that I had a lot of temperature flunctuations, and was on daily laxatives for years.
I had notes stuck into my daily planner, so during lessons, I could easily escape to the toilet, have energy drinks or chocolate and carry my mobile phone in my bag during lessons.
I was covered for everything except the cold.
I wouldn't have a school jumper, they weren't in anyway cool, you got laughed at if you wore one, plus they cost £14 a jumper, as you could only have the ones they sold. The amount I would wear one was so minimal, it seemed like a huge waste of money. Along with this, I could only have short sleeved shirts in summer, as I had to be as cool as possible when it was warm. As I started to dehydrate at the drop of a hat.
A few teachers had problems with this, when I was cold though. The trouble is, it could be a boiling hot day, and I could be tired, and then I'd suddenly be absolutely freezing and shivering. My skin all over was cold, and if they took my temperature, it also showed to be low. Even if it was the hottest day of the year.
Now I've explained why I didn't have a school jumper. But I always had a coat on me, as it was cold in the morning walking to school.
I would refuse to take my coat off if I was cold. The headteacher wasn't happy about
this, but he agreed it seemed the only answer. Plus when I was cold the shivering distracted me so much, I may aswell have been sent home, as I wasn't able to take any information in, never mind write things down.
A couple of teachers really really hated this though, and would start up a right fuss when I woldn't take my coat off. Generally if I knew I was cold, I wouldn't even try and take my coat off when I got in the classroom, as it only made me shiver harder. The amount of times the tacher just went strawberry red, and shouted at me to get to the medical office then, was unbelievable. Luckily the school nurse was used to this, and had a blanket and hot water bottle in a cupboard for me. I slept the lesson out, and was usually ok to go to the next one.
Things have changed nowadays though, my sister goes to the same school, with a lot of the same teachers. There a lot better than they were. She doesn't have CF, so obviously doesn't need the same things. But she does have the same temperature control problems as me, and the teachers are a LOT different about
Bah, I've babbled on again:P
I love typing when I have a sore throat:P
Co-moderator in the: Cystic Fibrosis Forums
It's true!: Smile and the whole world smiles with you. Frown and the world turns upside down
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild liver cirrohsis, mild osteopenia. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Allergies: Any dressing except Mepilex border. Even plasters make my skin blister. Hayfever, Tazocin, Colomycin, Ibruprofen, Asprin, Codeine.