Cystic Fibrosis and having children.

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koalaz2004
New Member


Date Joined May 2007
Total Posts : 5
   Posted 5/16/2007 10:43 PM (GMT -7)   
I was just wondering where I could find more information as to how Cystic Fibrosis affects the chances of having children and the chances of having a child when you have Cystic Fibrosis. If anyone could lead me in the right direction I would be very greatful; thank you for your time.

Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 5/17/2007 1:33 AM (GMT -7)   
Hi!
There is a book out called Growing Older With CF: A handbook for adults.

Found a website where you get it free, you just have to register, it's a trust worthy website IMO. They've helped me out in the past, although, I don't use the site anymore.:
http://www.mycysticfibrosis.com/growing_older.asp
Although the free offer is only available to US residents.

It has some useful information in there, I've had mine a good few years, and it's much read by me and my fiance.

Here's a review of the UK version:
http://www.iacfa.org/pub/edition_61/article_11_61.htm

There's also a bit on this link on page 15, under the heading fertility:
http://www.cftrust.org.uk/aboutcf/publications/factsheets/Finding_Out_Nov_06_-_For_web.pdf

I know a few people with CF who have had kids no problem. My friend Charlie, now has a 1 year old, she struggled a lot during pregnancy and it has had a detrimental effect on her health, but she doesn't regret it for a minute. You do have to REALLY take care of yourself during pregnancy to keep your lung function, and there's a few medications you can't take unless under special circumstances. I was advised that you need a lung function of at least 60% before even considering having a child. You also need a carrier test on your partner, to make sure there is no risk of your child having CF.


Co-moderator in the: Cystic Fibrosis Forums
 
It's true!: Smile and the whole world smiles with you. Frown and the world turns upside down
 Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild liver cirrohsis, mild osteopenia. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
 Allergies: Any dressing except Mepilex border. Even plasters make my skin blister. Hayfever, Tazocin, Colomycin, Ibruprofen, Asprin, Codeine.
 


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 5/18/2007 6:38 PM (GMT -7)   

Hello Koalaz

Welcome to Healing Well.  I am Kitt .

I have a good friend who has had no problems with her pregnancy and I also have a close friend that is a respiratory therapist. They agreed  Cystic fibrosis in all degrees of severity is not a strict contraindication for pregnancy, especially if disease is mild; pregnancy by itself does not appear to adversely affect patients with CF. Pregnancy could proceed normally in women with normal lung function, but could adversely affect mild and moderate lung disease due to CF and should be avoided when patients have pulmonary hypertension or cor pulmonale, and when reduced lung function is predicted. Ideally, all pregnancies should be planned with prior counseling and be monitored by dedicated CF teams.

I would encourage you to seek the counseling as the more informed you are will help you make the right decision for you.

Please keep posting and let us know what you learn.  Share it here so other may benefit.

Let us support you.


Respectfully
Kitt

Moderator Prostate Cancer

Depression 25 years, Husband Crohns Disease 30 years
My Father and his 5 siblings all died of Cancer.
______________________________________________________
"If you doubt you can accomplish something, then you can’t accomplish it. You have to have confidence in your ability, and then be tough enough to follow through.” 
~Rosalyn Carter


VMN162802
New Member


Date Joined Dec 2008
Total Posts : 8
   Posted 12/29/2008 9:37 AM (GMT -7)   
Koalaz,

Hi my name is Vickie and I have 2 wonderful children! I never got diagnosed till after the pregnancies but I had no problems at all!!! They were both a healthy weight and size. Now that I was diagnosed I have had them tested and they are gene carriers. They will need to test their spouses before they have kids but they have life and to me that's the greatest gift I could give them!! I think you should talk it over with your doctor because of all the medication your on but I say good luck and keep me posted!!!
I am 33 years old and was just diagnosed 6 years ago. I have two boys Michael who is 13 and Nathan who is 10. I'd love to meet some new people in the same boat I'm in and make new friends. Please feel free to write me anytime!!!
 
Vic
 
Meds: Zithromax, Cymbalta, Centrum, Calcium, Vit.D, Aquadeks, Lisinopril, Trazadone, Doxycycline, Augmentine, Bactrum, Avelox, Vit.C, Ibprofen, Furosimide, Cephalexine, Pulmazyme, Albuertol, Flonase, and finally Advair.
 
Lung capacity is 19%, O2 365 days a year.


Vanishing2pink
New Member


Date Joined Apr 2009
Total Posts : 2
   Posted 4/30/2009 8:13 AM (GMT -7)   
Hi I was also wondering about CF and pregnancy. My finacee and I would like to have children together but he has CF. What I was wondering is that if I would get tested and am not a carrier of the gene and we would go ahead and get pregnant would our child have CF or just possibly be a carrier? Your help would greatly be appreciated!
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