My mom 62 diagnosed with CF, questions.....

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sammcgee
New Member


Date Joined Jun 2007
Total Posts : 1
   Posted 6/7/2007 9:48 AM (GMT -7)   

My mom has been living with bronchiectasis since she was 18. Now at 62 she was, as she put it, drowning. We rushed her to the hospital and both lungs were full of puss and mucus and she is being treated for Pseudomonas, staph, and double pneumonia. then the doctor said she had cystic fibrosis. She is so very thin and now anemic.

 

Is this something she was born with and just misdiagnosed as a young child? Her sister was also diagnosed with bronchiectasis and she is now having bouts with her pancreas which seems to me that is a sign of CF as well. What are the chances of 2 sisters having bronchiectasis- rare, right? But 2 sisters with CF would be more likely.....
Any bronchiectasis patients who have discovered they really had Cystic Fibrosis?

Post Edited (sammcgee) : 6/7/2007 6:58:41 PM (GMT-6)


blackdodge
Regular Member


Date Joined Sep 2006
Total Posts : 36
   Posted 6/7/2007 10:16 PM (GMT -7)   
wow 62 and found out she has CF. yes she was born with it, its a genetic disease. both parents need to carry the defective gene. I am a 34 male and have it. at least now she can get the treatment she needs. hope she is doing great.

Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 6/10/2007 2:56 PM (GMT -7)   
That much be an awful age to find out you have CF.

Looking on the internet earlier, it seems most bronchiectasis treatment is pretty simular to CF treatment, with chest physio and antibiotics.

I mean there is the pancreas side of things with CF. But I've known a couple of people who's gone through life with CF, without needing anything to aid digestion. Maybe now that your Mum and Aunty are older, there experiancing more problems with there pancreas than they did earlier. It may have been unnoticably mild when then they were younger.

Wish all 3 of you the best. Hope they manage to get even closer treatment to what they both need. 62 is a good age:)
Co-moderator in the: Cystic Fibrosis Forums
 Woe to the child which when kissed on the forehead tastes salty. She is bewitched and soon must die.
 Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild liver cirrohsis, mild osteopenia. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
 Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Tobi nebuliser, Serevent, Salbutamol, Sertraline, Odansetron, Nefopam, Ciprofloxacin, Ursodeoxycholic Acid, Omeprazole.
Had a Port-a-cath fitted on chest wall since 11th Nov 05

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