Help Me Raise Awareness For CF Sufferers

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New Member

Date Joined Jul 2007
Total Posts : 1
   Posted 7/6/2007 4:44 AM (GMT -6)   

Hi Everyone.


My 8 year old niece has cystic fibrosis & has not been very well lately, so I created a website for her to try to cheer her up & at the same time raise awareness for CF sufferers, basically she is trying to collect as many Hi’s as she can & raise public profile to this illness, its free.


Thanks for taking the time to read my post.

Forum Moderator

Date Joined Feb 2007
Total Posts : 1050
   Posted 7/19/2007 8:15 AM (GMT -6)   
That's a brilliant little site Mark, what a good idea!
Co-moderator in the: Cystic Fibrosis Forums
 Woe to the child which when kissed on the forehead tastes salty. She is bewitched and soon must die.
 Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild liver cirrohsis, mild osteopenia. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
 Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Tobi nebuliser, Serevent, Salbutamol, Sertraline, Odansetron, Nefopam, Ciprofloxacin, Ursodeoxycholic Acid, Omeprazole.
Had a Port-a-cath fitted on chest wall since 11th Nov 05

New Member

Date Joined Nov 2007
Total Posts : 19
   Posted 11/9/2007 3:30 PM (GMT -6)   
I dropped in and sent her a little message. I think its really great what your doing for cf!
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