Are the doctors just that bad or..

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nike_j
New Member


Date Joined Jul 2007
Total Posts : 6
   Posted 7/14/2007 11:44 AM (GMT -7)   
<rant>I've heard of people diagnosed with CF as late as XX years pretty late like 40's etc im sure even later.
now it only I who are bitter when people diagnosed later complain. I know they have had it their entire life but obviously not bad enough to be hospitalized (or maybe its just case by case). BUT some people try to cheer me up and say oh my (brother sister cousin friend) has cf and their 36,40 etc, meanwhile im at age 25 and getting a transplant. it urks me. for some reason. like if i were to meet someone id have to hold my tongue id think as to all the crap ive been thru
diabetes, meningitis, kidney disease, rejection from friends & women, shortness of breathe, having to wear 02 at night to breath, seizures stroke and all because of cf

Im stronger because of it, but its so hard to ust bite my tongue when i hear of such things.
</rant>

Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 7/19/2007 5:58 AM (GMT -7)   
I get where your coming from.

My parents are always trying to make me feel better with that. All these people have lived blah blah years, and are still good.
A lot of people I know past there 40's though, were diagnosed late really late, or had a lung transplant.

It is hard to bite your tongue, but at the same time, I can only be happy for the people who have lived longer than the expectancy. Because even if they have still suffered from CF.
A lot try to live there life as fully as possible. Knowing that things could have been so much different. I don't feel angry at them, for actually being able to live a full life.

I do feel angry at my parents though, as they're those sorts of people, who just make you feel like your making everything up. Infact just last week, my mum text me, while i was in hospital on iv's, to say that I should be more like my brother who just gets on with life, and holds down a job, and never whinges.
What she forgot to mention was that Nick also only has once yearly IV's, isn't colonized with psudomonas, doesn't HAVE to do physio everyday, takes half the amount of tablets as me, and also doesn't have a neuro condtion aswell as CF.

My rant is, that people just SHOULDN't be compared to anyone else, because it makes you feel so louzy about yourself.

All I can say now is just ignore those ignorant people, and look at things you CAN do.
Try to set yourself goals, that realistically you can reach. Even if it's something as simple as drinking a full skandishake. You'll feel better for it. As sometimes, people jus keep on putting you down more and more, and you can't see any good about yourself.


I know this post has gone around in a very large circle, and cover's things you've not even ranted about, but it does all fit together somehow:)
Co-moderator in the: Cystic Fibrosis Forums
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nike_j
New Member


Date Joined Jul 2007
Total Posts : 6
   Posted 7/19/2007 11:13 AM (GMT -7)   
well i really appreciate the answer for a while i htough i might be crazy cause no one would touch my post with a 10 foot stick
im definitely not angry so much at the people with cf were a lifelong team. its just the ignorance of some people.
but just balancing health with life is just so hard at times
i mean we ould all do every treatment 100% of the time and never leave our houses
but what would we have to look foward to , doctors appointments lol
im just glad i continue to have the strength and that we all do cause imight be small but when im on prednisone i feel so strong mentally that id try to take on someone 6 foot 5 And 300 lbs - :)
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