hospitalization question

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New Member

Date Joined Aug 2007
Total Posts : 1
   Posted 8/4/2007 2:19 PM (GMT -6)   
I'm a 24-year-old woman with CF, looking at going into the hospital for a basic clean-out (a couple IV drugs and extra vest/nebulizer treatments) next month. I've done this a few times before, but since the last time I was in the hospital (2003) my family and I have heard conflicting information how safe it is for people with CF to stay in the hospital. I had IV's last year, but my doctor had me do them at home, mostly to allow me to keep eating like a good cystic, but also because I might have gotten exposed to bacteria or other bad something if I had been admitted. Now, the same doctor is saying it's time for a week-long hospitalization. And one of the rules through all my hospitalizations has been that I get my own room, again for bacteria-spreading concerns, but a nurse in my clinic has also tossed that out the window, saying it doesn't really matter. I want my clean-out, but I want it to be as risk-free as possible, and all this back and forth has got me worried. Has anyone else talked about this with their doctor? Should I be concerned?

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Date Joined Feb 2007
Total Posts : 1050
   Posted 8/5/2007 5:40 AM (GMT -6)   
Hi jglow, and welcome to healing well!

Wow, this sounds bad!
When you are in hospital there is always an increased risk of infection. To reduce this risk, our team make sure we always get our own room, and our own shower and toilet, if possible.

These are pretty much the CF Trust guidelines for the rest of the UK aswell.

So we eat more when were in hospital, were also given free reign in the canteen. We also have our own CF kitchen on the ward were usually put on (This is a health and safety risk, as staff won't keep it sterile. But it helps with eating, and we can make our own shakes up, when we want them.It also gives us something too do when board, nothing as fun as cleaning the kitchen, then shoving black paper towels under cleaners noses.)

As I say, this is all thanks to the CF Trust, and pretty much all hospitals across the UK that have a CF center have the same things.

Now, I'm not sure on whether you can actually demand things where you live. We can basically demand anything that might help us heal quicker. Been in a bay, especialy on a chest ward, will not benefit your health.

There is no real excuse for them not putting you in a seperate room, as it's not as if they haven't got enough time to place you. It's only short notice, when they have to admit you straight away at our hospital, that they even consider putting you in a bay.

We can always opt whether we want treatment at home or in hospital (although it takes a bit more persuading for the hospital route). If you're already feeling tired, and worn out from infection, sometimes you need that bit of extra help to make sure you get all your doses on time.

You can always do exactly the same stuff at home though. You can make sure you use your vest and nebs, whenever you need them.
If you think you have the energy to really be rigorous with your treaments, and your IV scheduale, ask the doctor, he can only say no. If he does sayno, ask him why not. Soemtimes you have to be real assertive with doctor's.
Even my CF consultant, I have to shout at a bit to get him in gear.

Don't feel bad about asking for things, as at the end of the day, it's your health, and you have the right to demand everything to look after it.

Hope it gets sorted soon, and keep us posted
Co-moderator in the: Cystic Fibrosis Forums
 Woe to the child which when kissed on the forehead tastes salty. She is bewitched and soon must die.
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Had a Port-a-cath fitted on chest wall since 11th Nov 05

New Member

Date Joined Oct 2006
Total Posts : 12
   Posted 8/6/2007 3:16 PM (GMT -6)   

hiya i also have c.f i go into hsptl every three months for a week to 2 weeks and have my own room and the nurse's tend to be catious of spread of infections/cross infections with other cf's  and are always very careful, i have been going into hsptl for atleast 5 yrs and have never found i have caught any infections (fingers  crossed) i can see that y you are worried but sometimes hospital is the best way forward just for a great tone up!! i always feel much better after coming out

hope this helped xxx


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