Hi there, and welcome to healing well, hope you manage too get some good answers too your questions!
How awful too be diagnosed so late in life! It must be such a shock, especially as it's not even been thought about before now. Hopefully now that you're on the right treatment, things will start looking up for you!
The TOBI is becoming standard treatment for psudomonas, some clinics are currently also trialling, 1 month TOBI, 1 month Colomycin (AKA Colistin or Promixin). That way there isn't a gap where you're having no treatment.
I don't know too much about bronchiectasis, so can't really say much about it.
I have had rifampacin in the past, but can't remember anything except that it turns your wee red.
I really do feel for you though. It's bad growing up with CF, but at least you have an idea about what too expect. It must be awful knowing it's been untreated for 48 year's, and only just finding out what too be expecting.
Hope this now is the answer too your medical team being able to help and treat you better!
Co-moderator in the: Cystic Fibrosis Forums
Woe to the child which when kissed on the forehead tastes salty. She is bewitched and soon must die.
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild liver cirrohsis, mild osteopenia. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Tobi nebuliser, Serevent, Salbutamol, Sertraline, Odansetron, Nefopam, Ciprofloxacin, Ursodeoxycholic Acid, Omeprazole.
Had a Port-a-cath fitted on chest wall since 11th Nov 05