Mayo Clinic-Rochester,MN

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katlover
New Member


Date Joined Aug 2007
Total Posts : 2
   Posted 8/30/2007 9:34 AM (GMT -7)   
I have a question for a 27 year old male that was born with CF.  Has anyone had excellent results in going to Mayo Clinic?  New treatments? What Dr? Transplant? How to gain weight?  Any help would be great!

Post Edited (katlover) : 8/31/2007 6:50:50 AM (GMT-6)


Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 9/1/2007 8:36 AM (GMT -7)   
Hi there welcome to healingwell!
I'm not quite sure what mayo clinic is, I live in England, so am not very clued up on things elsewhere.
Is this a question posed too a certain person from this certain clinic, or would you just like general advise? I could probably give you a few weight gain tips.
 
Hope you're well!
Gem
Co-moderator in the: Cystic Fibrosis Forums
 Woe to the child which when kissed on the forehead tastes salty. She is bewitched and soon must die.
 Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild liver cirrohsis, mild osteopenia. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
 Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ciprofloxacin, Ursodeoxycholic Acid, Saline neb/PEP system, Piriton, Mirtazapine, Diazepam.
Had a Port-a-cath fitted on chest wall since Nov 05


katlover
New Member


Date Joined Aug 2007
Total Posts : 2
   Posted 9/1/2007 9:26 AM (GMT -7)   

Gem,

Mayo Clinic is in Rochester,MN.  It is a place where alot of people go that are at their last rope for medical help.  I think there are other Mayo Clinics in the USA.  But, this is the closest one to us.  I know according to their internet sight one of the Drs. was educated in England.  Yes, any info would be so helpful! 


Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 9/2/2007 1:43 PM (GMT -7)   
For me, I find that constant snacking throught the day, is better than a big meal. Your body only has too try to digest smaller bits at a time that way.When trying too recover lost weight after a bad infection. I tend too have 1-4 small meals a day. Any meal I miss I replace with a skandishake. I snack on wotsits or fruit or even salad with cheese or a high fat dressing to dip into. Again, if I don't fancy eating anything, I have a Fresubin drink. I like them, as there not very thick and easy too drink.

Sugar is awsome, if you can actually have it. You don't really have to have any enzymes to digest sugar. It's something too do with the way it's digested. It turns into fat. Obviously not good if you're diabetic aswell though. And you should brush your teeth more regular if you do go for the high sugar diet.

I haven't found a way too getting enough salt into my system with food yet. Last summer, I was adding loads of salt to absolutely everything, but I was still loosing much more than my body needs to run. I find the only option for me is slow sodium tablets, when it's particularly hot, and I'm starting too feel sleepy.

If you want any more info on anything, feel free to ask. It's what I'm here for, I will try to answer things as bestI can:)

Hope you're well
Gem!
Co-moderator in the: Cystic Fibrosis Forums
 Woe to the child which when kissed on the forehead tastes salty. She is bewitched and soon must die.
 Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild liver cirrohsis, mild osteopenia. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
 Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ciprofloxacin, Ursodeoxycholic Acid, Saline neb/PEP system, Piriton, Mirtazapine, Diazepam.
Had a Port-a-cath fitted on chest wall since Nov 05

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