Hello Eye2797! You got some good advice from Darkies Gem. I would definately have your son tested at an accredited CF center (sweat tested), there are other tests too. Fecal fat test, chest xrays, nasal potential difference test and genetic testing . Did your son happen to have nasal polyps with any of his sinus surgeries? Does he taste saltly or does his hands and feet prune easily when exposed to water?
Good luck and keep us posted! Hugs.
with his second surgery he had a large polyp removed in the sinus that you could see just by looking in his nose. Since than which was in janaury he has had polyps and than just today we are told he has little polyps starting. So he is now on nasal sprays. We just got off of antibiotics. I cant say he is salty, He does sweat a ton when he goes to sleep. I will watch his fingers and toes in the water.
His ENT we see, keeps telling us its allergies but a blood test done for allergies instead of all the needle sticks, he was very young. showed only some minor allergies nothing to be concerned about.
I just feel like I go in a cirle with this. I dont know who to talk too, how hard to push, what to say. I dont want to be like this overreacting mother, He was born at 24 weeks weighing only 1.7 pds. he is overall a normal child, but I will say he is sick most of the time.
His first 3 years of life he was always sick, mainly respitory, now he is sick mainly with sinus and cough stuff.
I just dont know what to think anymore. test for allergies, test for CF, someone mentioned getting an immune check
Hey Krista, I'm Caitlin. I was dignosed with cf when I was 4 and I'm only 16 now, but reading everything you've been saying I would go ahead and at least mention cf to your son's doctors if not get him tested, I mean you can never be too safe and he definatly seems like he has a few symptoms. But what I was going to say involving his sinus problems, this wont help the infection, but have you ever heard of nose irrigation? I've had to have 3 sinus surgeries and I've also had polyps, but I started doing nose irrigation with an irrigation machine about a year ago and so far I haven't had to have another sinus surgery, and actually my sinus doctor has noticed a big difference and said I have no problems right now. So I just wanted to give you that small tip, I hope it helps and good luck with everything!