Hi Martha, Welcome to Healing Well!
In answer to your questions:
I don't believe I have made an major desicions in regards to looking at how the furture may effect me. I've done the opposite, and rather than looking forward to my future, I try and only think about now, and how I can help me now. When I did used to give myself goals, they were always getting broken, and I always got disappointed because I couldn't quite reach where I expected myself to be.
With life expectancy, I try to see is as a target age to get to. I've beat 2 life expectancy's now, at 5 and 12. I can't stay very positive about what the future holds, or the life expectancy, because I have seen CF friends who have reached 31, one in there 50's, but far too many in there 20's. The CF life expectancy is an average, so I know that for all the really young people I have know who have died, there must also be the same amount of old people with CF.
I am a very CF thinking person. Everything I do in my life has something to do with CF in it. If I go out to the shop, I have to consider exactly how my lungs are feeling, or what level of tiredness I'm at before I even consider going. I don't like showing total weakness in public. If I don't look at every aspect of how I feel before leaving the house, it's more of a shock and worry when say, my chest starts playing up.
I find myself panicking a lot, if I'm not expcting something to happen.
I also have to be on constant alert for infection signs. I prefer to spot signs before an infection starts to actually effect my chest. That way IV antibiotics can kick in before it really starts too effct me fully.
Ermmmmmm............................Can't think of anything else you might want to know, but if you think of anything you want to know more about
, feel free to ask. I'm happy to answer any questions you want answering.
Co-moderator in the: Cystic Fibrosis Forums
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild liver cirrohsis, mild osteopenia. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ciprofloxacin, Ursodeoxycholic Acid, Saline neb/PEP system, Piriton, Mirtazapine, Diazepam, slow-sodium, Skandishake and Fresubin.
Had a Port-a-cath fitted on chest wall since Nov 05