Hi there, firstly, welcome to Healingwell! I hope you are able to find the answers and support you need here.
The heel prick test is 95% accurate. More about
the heel prick test and it's accuracy can be found here: http://www.cyh.com/HealthTopics/HealthTopicDetails.aspx?p=114&np=304&id=1466
Your child is definately showing signs of CF, and the quicker it gets diagnosed, the quicker correct treatment can begin. Another test definately wouldn't be a bad idea, and will at least help too rule out CF.
My friends girlfriend has severe asthma, and does have similar symptoms as CF patients. She is admitted to hospital, to treat chest infections, just as much as me and my friend. Her inhalor doesn't work when her asthma gets bad, neither does her nebuliser, and she has too ring emergancy services. She doesn't have bowel problems though.
Hope some of this helps, and hope things get better soon! Wishing all the best for your daughter, and for you and your family.
Feel free to ask any questions.
Co-moderator in the: Cystic Fibrosis Forums
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild liver cirrohsis, mild osteopenia. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ciprofloxacin, Ursodeoxycholic Acid, Saline neb/PEP system, Piriton, Mirtazapine, Diazepam, slow-sodium, Skandishake and Fresubin.
Had a Port-a-cath fitted on chest wall since Nov 05