help i have questions

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mummyally
New Member


Date Joined Oct 2007
Total Posts : 2
   Posted 10/25/2007 1:57 AM (GMT -7)   
hi new here   was looking for clues after hospital nurse mentioned CF yesterday, i will give you a bit of backgroud which might help.
 daughter was diagnosed with Asthma 2 years ago at 14 and since have had lots of hospital admisions this time shes been in for 17 days on iv meds,they reduce them and she becomes unwell again  her inhalers don'tr seem to control asthma she also has bowel problems from the age of 2,yesterday the Nurse asked if she had been tested for CF. now i am sure she had the heel prick test as ababy and i was wondering if a mild form of CF shows in that test  help
a worried mum

Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 10/25/2007 4:16 AM (GMT -7)   
Hi there, firstly, welcome to Healingwell! I hope you are able to find the answers and support you need here.

The heel prick test is 95% accurate. More about the heel prick test and it's accuracy can be found here: http://www.cyh.com/HealthTopics/HealthTopicDetails.aspx?p=114&np=304&id=1466

Your child is definately showing signs of CF, and the quicker it gets diagnosed, the quicker correct treatment can begin. Another test definately wouldn't be a bad idea, and will at least help too rule out CF.

My friends girlfriend has severe asthma, and does have similar symptoms as CF patients. She is admitted to hospital, to treat chest infections, just as much as me and my friend. Her inhalor doesn't work when her asthma gets bad, neither does her nebuliser, and she has too ring emergancy services. She doesn't have bowel problems though.

Hope some of this helps, and hope things get better soon! Wishing all the best for your daughter, and for you and your family.
Feel free to ask any questions.
Gem
Co-moderator in the: Cystic Fibrosis Forums
 
 Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild liver cirrohsis, mild osteopenia. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
 Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ciprofloxacin, Ursodeoxycholic Acid, Saline neb/PEP system, Piriton, Mirtazapine, Diazepam, slow-sodium, Skandishake and Fresubin.
Had a Port-a-cath fitted on chest wall since Nov 05


mummyally
New Member


Date Joined Oct 2007
Total Posts : 2
   Posted 10/25/2007 10:43 AM (GMT -7)   
hi just a quick update,spoke to daughters DR this afternoon and asked about what the nurse said and yes they are testing her for CF   but a blood test not the sweat test . can someone explain  please.

Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 10/26/2007 5:22 AM (GMT -7)   
Hiya!
The blood test checks for the gene itself, where as the sweat test, tests for salt in the sweat. People with CF sweat out 100% more salt than a 'normal' person.

Hope this helps!
Gem
Co-moderator in the: Cystic Fibrosis Forums
 
 Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild liver cirrohsis, mild osteopenia. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
 Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ciprofloxacin, Ursodeoxycholic Acid, Saline neb/PEP system, Piriton, Mirtazapine, Diazepam, slow-sodium, Skandishake and Fresubin.
Had a Port-a-cath fitted on chest wall since Nov 05

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