I'm new! And I have CF

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sweetblood
New Member


Date Joined Nov 2007
Total Posts : 19
   Posted 11/10/2007 12:22 AM (GMT -7)   
Hey!
I'm Leah, I'm 14 and I love to run and play basketball. I'm one of the fastest runners on my track team! I love to play point guard on my basketball team.I also run cross country.I'm a feirce fighter and I stand up for what I believe in. I'm kind of short tempered, one time, a kid at school said I was weak and her got hit in the stomach for his troubles.dont thin I go around hitting people becuase they make me mad with the littlest thing I only get really angry when people insult me becuase of my cf. They often learn the error of their ways. If you treat me with respect, I'll treat you with respect. I like to read and write, but I want to be  nurse. I listen to bands like: Fall Out Boy, Three Days Grace, and I like artist like Avril Laviegn, Pink, Taylor Swift, and others. Music has quite literally save my life a few times.I have two really good friends that dont have CF, but they try to understand. I have never met someone else with CF before, we are kept far away from each other. If you want to talk ( and I wouldn't mind chatting  with you too.^^) My email address is leah_hollis94@yahoo.com
-Leah

A mighty oak is the result of a nut that held it's ground.


Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 11/10/2007 4:26 AM (GMT -7)   
Hi there Leah, welcome too Healingwell!

Wow, well done you, for all the sport you do. I find a lot of people just give up the fight after a while. But it is incredibly good to see someone who is fightng back so strongly!
Basketball used to be my favourite game at school, as noone could tell if I started too flake and lose my balance. It was also tremendous fun. I also used to do karate, but had too stop that because of a muscle condition. The proof is definately there though, since stopping all excercise my lung function has dropped in the last year by 10%. Physio just isn't enough to keep your lungs happy, so keep up the excercise girl!

Going round hitting people isn't the best of ideas-no. I also have anger problems, but I have an inflatable punchbag at home. I just completely batter that to bits when something gets me mad. It does mean smoke coming out of my ears, as I try too hold all the anger in, till I get home though. It's very upsetting when people poke fun at you because of CF, and it really hurts deep down, as it's not your fault your have CF. It's not like the people who smoke who make themselves have bad lungs. We should be able too point and laugh at them. Yet a lot of the time it's the oppsite way around isn't it?

Lol, your postis like reading about me, I used to love English lessons and reading and writing. Even now, I usually have my nose stuck in a book, when I'm not online. I wanted desperately too be a nurse, or a special needs teacher.

Music is good, and again, I use it the same. If I'm feeling happy, or need some energy before I go out-Build me up buttercup by the foundations or Girlfriend by Avril Lavigne, goes straight on. If I'm feeling low, then I end up listning too fall out boy, manic street preachers, Simple Plan, My chemical romance, green day, system of a down. If I'm missing my friends who've died, I tend to listen to Tammy Cochran-Angels in waiting or put on my Alice Martineau sound track.
Music can speak volumes for how you are feeling, and can also help you, get your thoughts into a better order.

I've met many people with CF. One of my best friends is a pwcf. Its handy too talk too him, as he has total understanding when I feel bad, and we support each other a lot. Last time we were in hopsital, one of my other CF friends died. Tony didn't know her, but was instantly there for me, to offer advice and just a friendly ear, and a huge cuddle.

Meeting people with CF, is usually very un-advisable, due too cross-infection issues. There are particular strains of psuedomonas, that are more virulant than others, and cause a quicker rate of deteriation. With other friends, we keep keep a distance of 5ft, and meet outside if possible. This is to protect both ourselves and others with CF.
When we were little cross-infection wasn't such an issue, so me and Tony have both got exactly the same infections, at the same strains. We both have the worst strain, so it's never going to be an issue us meeting, and ignoring cross-infection rules. Just wanted too make sure I said all that. Email and phoning is the safest way.

I'll email you later!
Gem
Co-moderator in the: Cystic Fibrosis Forums
 
 Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild liver cirrohsis, mild osteopenia. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
 Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ciprofloxacin, Ursodeoxycholic Acid, Saline neb/PEP system, Piriton, Mirtazapine, Diazepam, slow-sodium, Skandishake and Fresubin.
Had a Port-a-cath fitted on chest wall since Nov 05


sweetblood
New Member


Date Joined Nov 2007
Total Posts : 19
   Posted 11/10/2007 4:56 PM (GMT -7)   
Thanks! I'm to stubborn to give up without a fight. I try to do everything I can to stay healthy.

Like I said, I've only hit somebody once, and I dont plan to do it again. The next time he called me weak, I said, "I may not me the strongest person to walk the earth, but at least I'm not weak minded." I run and turn up my favorite music up on my mp3 to calm me down, I am also and archer, so shooting arrows at the scarecrow in my yard calms me down too. =D

Thers is one kid in my school with CF, but I haven't said one word to him since the 1st grade, we arent relly alike. He doesnt play sports or stay active and I relly want to help him, but I dont know how. He's a nice kid and all but, it's hard.
I get relly scared and down sometimes, espessially when I'm in the hospital, but I try to make the best of it. I rent my favorite episodes of House and have a House-a-thon in my hospital room. =D
A mighty oak is the result of a nut that held its ground.


Another Day
Veteran Member


Date Joined Mar 2007
Total Posts : 1055
   Posted 11/12/2007 9:56 PM (GMT -7)   
Sweetblood,
 
While I don't understand too much about CF, I am trying to learn, I can tell you that you have hooked up with the smartest, strongest and bravest lady with CF.  Listen to her and she will teach you a lot.  You sound a lot like her, so you should be a fast learner.  Just please always take good care of yourself.  This disease seems to pick on people like you all.
 
Love and Prayers to you and Gem,
 
Carla

Moderator, Allergies/Asthma
 
Help support the forums so we can support you:  http://www.healingwell.com/donate
 
 
Epilepsy, asthma, GERD, depression, hypothyroidism, tinnitus


Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 11/13/2007 4:45 AM (GMT -7)   
Awwwww thankyou Carla! *massive hugs*

Leah-I've never watched House, although been meaning too, I always forget.
I usually have a Scrubs-a-thon, an Eddie Izzard-a-thon or a Wrestling-a-thon in my room when I'm in hospital.

Wrestling is my other thing I love. I think I've become even more hooked, now I know one wrestler has CF. We found out when we were organising a charity show. It was weird, as he was one of my fave's anyway. It was so inspiring too see someone like him, with CF. He's so muscular and fit. He has too have IV's occasionally, but other than that he goes too the gym every day, and it keeps him so well. I'm not very keen on WWE, but I love UK wrestling, where the guys aren't so big, meaning they can do more high flying moves.
It probably helps that my husband is a wrestler too:P

I guess it must be hard with the kid in your school. One thing I have learnt, is unfortunately some people won't accept help. One of my friends with CF died in August, because she'd simply had enough of everything. She wouldn't go on the transplant list, because of her fear of needles, and the pain she would be in afterwards. Nobody could change her mind on this, no matter how much we tried. It's weird though, even now, I feel I should have tried harder. I really wish I could have helped her, and at times even feel angry, though I shouldn't as it was her choice too make. The point I guess I'm trying too make, is don't feel bad, if you don't suceed. At the end of the day, that kid is going to know what he faces, and know what the best thing for him will be. But, if he chooses too take a different road, it's his road too take, and I don't think anyone will be able too persuade him otherwise. (perhaps because we all have such strong determination too get our own way.)

Gem


Co-moderator in the: Cystic Fibrosis Forums
 
 Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild liver cirrohsis, mild osteopenia. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
 Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ciprofloxacin, Ursodeoxycholic Acid, Saline neb/PEP system, Piriton, Mirtazapine, Diazepam, slow-sodium, Skandishake and Fresubin.
Had a Port-a-cath fitted on chest wall since Nov 05

Post Edited (Darkies Gem) : 11/13/2007 4:50:20 AM (GMT-7)


sweetblood
New Member


Date Joined Nov 2007
Total Posts : 19
   Posted 11/13/2007 12:29 PM (GMT -7)   
I love to watch scrubs too. It's funny. :)
A wrestler with CF, thats awesome! It's very inspiring. I know its odd for a girl with CF, but sports are my passion. I love the thrill and the feeling that I can do anything I get from it. I think it would be cool to meet that wrestler someday.

I try to talk to him (over the phone of course), but he doesnt listen. I feel kind of guilty that I cant do anything more, though I guess it shouldnt and it is his choice to make. I will try to support him and be there for him as best I can, I guess thats all I can do at this point.

-Leah
A mighty oak is the result of a nut that held its ground.


cheerchix
New Member


Date Joined Nov 2007
Total Posts : 3
   Posted 11/26/2007 10:49 AM (GMT -7)   
Hi, I'm Chelsea. I'm new.
I'm 14 too.I have CF too. I understand about getting mad at that kid.
I like sports too, but, I like Cheerleading, figure skating and just having fun.
I actually just got out of the hospital, the day before Thanksgiving.
It sucked.
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