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edw12345
New Member


Date Joined Mar 2008
Total Posts : 5
   Posted 3/11/2008 1:24 PM (GMT -7)   
Hi. I am going to be 16 very very soon and I am ready for the freedom of driving. I am on the softball team at school have many wonderful friends and a great family! So it would seem that I would be happy but I'm not! I am often sad and feel lost and don't know what to do. I often feel like I am in a box and can not get out. I can see the door but it want open. I lost my Granny to breat cancer when I was 7 and ever since then I have hide my emotions and have had a hard time seeing others express their emotions. My mom has had Fibromyalgia for 2 years now. It has had an big effect on my family. My mom is often in the bed and is unable to get out and spend time with the family. It is hard for me to see her like this and not being able to do anything to help her. I get mad often not at her I just get mad because of what her illness has done to our family. I would love to talk to a theripst and i think that would help me. I have mentionened this to my parents but it was not taken seriously. I think that they don't see how i feel because I never show my true feelings i keep them bottled up. I'm not always sad but i do get sad often and sometimes it seems unbarable.So if you have any advise on what I can do to feel better please let me know! Thanks and sorry for any spelling errors.
Thanks!

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40573
   Posted 3/11/2008 1:31 PM (GMT -7)   
Hi EDW,

I understand the fibromyalgia, I have it too. I spent a long time in bed, but am able to get up and do things now. I am not like I was before fibro, but I am a lot better than I was in the beginning.

Try to have patience with your mom, she will not always be in bed. HOpefully she can get some help and become active again. Though I know it is hard for you to see her there. Just try to help her with the things that she is not able to do. That will help you to feel better about yourself. Fibromyalgia cannot kill you so I hope that helps you to feel better. It is just such a strange disorder and takes time to learn your limitations.

Can you see a counselor at school? I sure hope so. Stress to your family how this is effecting you and hopefully they will understand that you need somebody to talk to. Also there is a fibromyalgia forum if you ever want to pop in there and read or post. They are a great group of people and they would love to try to help you. Maybe you can get your mom on there too.

I sure hope that this helps you.
hugs, Karen
  Moderator-Depression
 
fibromyalgia, Chronic fatigue, depression,allergies


edw12345
New Member


Date Joined Mar 2008
Total Posts : 5
   Posted 3/11/2008 1:40 PM (GMT -7)   
Thanks Karen! I am not sure if my school has a person for me to talk to. I might see though. What did you do to get better and be able to do things.

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40573
   Posted 3/11/2008 2:25 PM (GMT -7)   
Hi EDW,

I have to be honest and tell you that I spent close to two years in bed. It was horrible, I listened to my life going by through the bedroom window. I aged two years during this time. So I really felt a loss.

I have to use medications to be able to function. I have to take narcotic pain medications (hydrocodone, called Norco) to deal with muscle pain. I still have pain, but it is barable.

I take Adderall to be able to stay awake during daytime hours. If it weren't for that, I would be in bed.

Also I take antidepressants, effexor, xanax and abilify. The abilify is a more recent medication and helps a little with energy too. I do take ambien for sleep, though I could sleep forever, I don't get a restful sleep. I am still always tired.

There are others who use over the counter medications, also diet. I try to use meditation when I am stressed. Stress just makes the pain worse.

I really would encourage your mom to go to the fibro forum. With fibromyalgia you feel so isolated and alone. Like you are the only one with these symptoms. Also you tend to wonder if you are crazy. The forum reinforces that you aren't the only one, you are not alone and you are not crazy.

I wish you luck and if there is any thing else you would like to ask me, I am here. I might not get back right away, but I will be back.

hUgs, Karen
  Moderator-Depression
 
fibromyalgia, Chronic fatigue, depression,allergies


djdaz_1985
Veteran Member


Date Joined Jan 2006
Total Posts : 2408
   Posted 3/11/2008 2:46 PM (GMT -7)   

Hi EDW,

Firstly, congratulations on your nearly 16th birthday! I can (just about! lol) remember what was like being 16 (Im 23 now).

Second, lets talk about your problem. I can understand what it is like to lose a grandparent to cancer. I have lost 2 now. I was around 12/13 when I lost my paternal grandfather to bowel cancer and I was 21 when I lost my maternal grandfather to lung cancer. I will not pretend to undertstand Fibromyalgia but I know odds and ends from what I have learned on here. Keeping your feelings locked up inside is dangerous... they all have to come out sometime and if you lock them away, they often fester and when they come out, it is out of proportion. Talking to your school councillor is a great place to start. Talk to your mum as well. Strike up an honest relationship where you tell each other everything and you can bounce off each other.

Feel free to talk to us as well. We will always be here if you need to vent.

Darren


Everyone has a guardian angel. They help pick you up when you fall, comfort you through your times of need and help you appreciate the times when things are going well.
 
"A gold medal is a wonderful thing. But if your not enough without it, you will never be enough with it." - Irvine Blitzer (John Candy) in Cool Runnings
 
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edw12345
New Member


Date Joined Mar 2008
Total Posts : 5
   Posted 3/11/2008 3:16 PM (GMT -7)   
Thanks so much!
 

ShynSassy
Veteran Member


Date Joined Dec 2005
Total Posts : 3036
   Posted 3/11/2008 4:03 PM (GMT -7)   
Edw

I just wanted to step in and welcome you to the forum. We are very glad that you are here!
Everyone has given you great advice,I just wanted too add that you sound like a very sweet and caring guy! And very mature

Welcome aboard.
Shy


Mod- Depression

Chronic Depression, Panic Attacks,Anxiety Attacks,Anorexia


edw12345
New Member


Date Joined Mar 2008
Total Posts : 5
   Posted 3/11/2008 4:07 PM (GMT -7)   
Thanks! I have only been here for a few hrs and have recived wonderful advice!!

crohnie1985
Regular Member


Date Joined Nov 2007
Total Posts : 140
   Posted 3/11/2008 4:16 PM (GMT -7)   
I also spent so much time in bed due to illness, funny we made the best of it, my kids even played a joke on me, they put a blow up nurse doll in my bed as a prank. Wow was I surprised, we all had a good laugh. it's best if you communicate to your family, even if you feel uncomfortable. being the parent, I felt better to know what my kids were feeling, bad or good. Laughter has healing power.

edw12345
New Member


Date Joined Mar 2008
Total Posts : 5
   Posted 3/11/2008 4:24 PM (GMT -7)   
Your right it would be a good thing to talk about my feelings but sometimes it seems so hard...I don't want to talk to my mom about my issues becasue she seems to have enough to deal with herself and I just don't feel as
comfortable talking to my dad. So it is hard.

crohnie1985
Regular Member


Date Joined Nov 2007
Total Posts : 140
   Posted 3/11/2008 5:22 PM (GMT -7)   
If you feel uncomfortable talking, just try spending some time together. I have become more closer to all my kids because I know they were very concerned about me, and that they were part of my life. It made me feel better knowing someone cares. You can help yourself, helping someone else. Watch a movie together, you don't have to talk much unless you want to then.

ShynSassy
Veteran Member


Date Joined Dec 2005
Total Posts : 3036
   Posted 3/11/2008 5:23 PM (GMT -7)   
Ed

Start with your school counselor...let that person know that you want professional help but don't know how to approach your parents about it...hopefully then the counselor will contact your parents or give you a name of someone that you can see.

At least that is a start... I think you are doing good by talking to us here too..
Shy


Mod- Depression

Chronic Depression, Panic Attacks,Anxiety Attacks,Anorexia


Pressing
Regular Member


Date Joined Mar 2008
Total Posts : 89
   Posted 3/12/2008 1:09 PM (GMT -7)   
edw,
I am sorry about all you are going through right now. Its great that you are communicating that certainly helps.

Someone mentioned something about above going to see a school counselor. I am pretty sure that all schools have a counselor, or guidance counselor to help with situations like this. It may even be that your parents don't need to know you are speaking to the school counselor. I don't think the counselor has to share this information.
You can check into that. Don't be afriad to do so, it doesn't mean you are weak, your just going through something and talking is a big key of getting through. Glad your posting here!

Pressing
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