They're on a mission *rant*

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Gemsi
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Date Joined Feb 2007
Total Posts : 1050
   Posted 7/4/2008 5:58 AM (GMT -7)   
I don't know sometimes what my doctors are on, I don't know where they get there ideas from. I don't know how too shut them up saying silly stuff. It really is like they are on a mission too panic me, and see if they can break me somehow. I dunno.
 
All this is coming about because the wonderful doctors last week were suggesting I had clamydia, then decided I didn't fit into any of the symptoms. Which just seems like such an unecessary panic too have put me through. Today, it's HIV!!!!!!!! AND they want me too see a councillor too discuss having a test for it. On Monday I will be having blood taken for everything else under the sun, as they want too rule out absolutely everything that my muscle problem could be. But, they won't do any HIV test until I have seen a councilor, and apprently seeing my psychiatrist and social worker on Wednesday isn't good enough.
 
Then, to top it off, the doc says-well, it's probably not HIV, it doesn't fit any of your symptoms. So why send me too a councillor I don't need, to do a test for something which I'm showing no symptoms for.
 
I'm lost, seriously, what am I missing here-there has too be a point to this whole discussion wth this consultant somewhere. My brain feels like it may break soon.
 
Argghhh I'm so angry!!!!!!! mad
 
sad
 
Right.........Breathe.......I really should breath.....
darn, and it's my social group tonight, what I day, when I suddenly really don't feel like being sociable.....Infact solitary confinement might the best idea for the next hour or so.......Grrrr!!!!!!!!!
Moderator of the Cystic Fibrosis Forums
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ursodeoxycholic Acid, Saline neb/PEP system, Mirtazapine,slow-sodium, Skandishake and Fresubin.
Had a Port-a-cath fitted on chest wall since Nov 05
Help support the forums so we can support you:  http://www.healingwell.com/donate
Sometimes, I feel that I should go and play with the thunder-In The Shadows by The Rasmus


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 7/4/2008 6:23 AM (GMT -7)   

Holey Moley Batman, the lady is not happy...............chit. skull skull skull

I have know idea why you need to see a counselor before the blood work............now I am not a professional but why not just run all the blood tests amd then talk about the results when the answers are in.

Why get all anxious over something they say you probably don't have but you have to see a counselor b/4 we draw the test..........ugh.

Is this a national rule in the UK? I think you have a right to be upset but now deep breathe and then let it all out and stay in the moment.  One step at a time my dear Gems.................I am right here and I hear you girlfriend.  You have my hugs.

Luvs ya
Kitt


 

Kitt, Moderator: Anxiety, Panic & Depression 
*~*
http://www.healingwell.com/donate *~*
Not a mental health professional of any kind
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~

Post Edited (stkitt) : 7/4/2008 4:06:30 PM (GMT-6)


Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 7/4/2008 7:44 AM (GMT -7)   
I have no idea about it being a ntional rule. If it is-it's a ridiculous one! Why not let people actually decide if they need a councillor or not. Or even better like you say, do the blood work, and deal with the answers later. Why get me all worked up, and discussing all possible outcomes with a person I don't know, or for that matter automically do not trust because of the way this has been brought up. When I have a perfectly briliant psychiatrist and a superb socialworker, who both sort me out with anything I need the rest of the time.

Ok, Well, I've decided I can't worry about it now, I have too go to this social group. Until today, I was looking forward too it, and I'll regret it if I don't go. That's where my heads going, I can do this. I can force this just you watch.

Then on Monday, I can calmly go into the CF unit, and ask my CF nurse too speak in Gemma language what is going on. Why my neurologist is trying too break my brain and stress me out more. Then, when I find out, I will change my appointments with my neurologist too 8 monthly, as the 6 month gap obviously isn't long enough to make me forgive the rest of the stupid stuff they said last time.

Breathe.......Still trying this whole breathing thing........It's not working too well

Kitt, thankyou for listening/reading and responding. I needed that rant, and it's good too know it doesn't make sense too someone else. I thought it was maybe just me going loopy again.

Off too go get some makeup on, and some glitter, and some glitter mosturiser over my tattoo. The law-I can't be upset if I'm wearing black eye liner-or it will smudge and then I'll look stoopid! I can't get my tattoo wet with tears, or it will dry funny and look nasty, I can't get my hair wet with tears, or I will send the white top I'm wearing pink, having only redyed yesterday.

Hugs back
luvs ya too hun,thankyou my friend!!!!!! x


Moderator of the Cystic Fibrosis Forums
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ursodeoxycholic Acid, Saline neb/PEP system, Mirtazapine,slow-sodium, Skandishake and Fresubin.
Had a Port-a-cath fitted on chest wall since Nov 05
Help support the forums so we can support you:  http://www.healingwell.com/donate
Sometimes, I feel that I should go and play with the thunder-In The Shadows by The Rasmus

Post Edited (Darkies Gem) : 7/4/2008 8:48:11 AM (GMT-6)


Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 7/6/2008 11:35 AM (GMT -7)   
Well, I went to the social group and enjoyed it.
Went to a disability awareness day, again really enjoyed it and got shed loads of freebies and yet more work with the mentory group.

Yet, I'm still panicking over this doctors comments. With a hospital appointment tomorrow with my CF team.
It's ruining my brain, all good stuff is getting blown out of the window, and I just feel down again. What's wrong with me!?!:( I'm hoping this will clear up tomorrow after my appointment. If not tomorrow, the Wednesday after seeing my psych and social worker.
Moderator of the Cystic Fibrosis Forums
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ursodeoxycholic Acid, Saline neb/PEP system, Mirtazapine,slow-sodium, Skandishake and Fresubin.
Had a Port-a-cath fitted on chest wall since Nov 05
Help support the forums so we can support you:  http://www.healingwell.com/donate
Sometimes, I feel that I should go and play with the thunder-In The Shadows by The Rasmus


janet s.
Regular Member


Date Joined Feb 2005
Total Posts : 67
   Posted 7/6/2008 12:34 PM (GMT -7)   
I cannot believe how insensitive and unfeeling this doctor of yours is. Why should he/she put you through panic when it is totally not necessary. We all go through tests, hoping for the best, and this is no exception. Doctors might be book smart, but sometimes they are so downright stupid and horrible people.

Hang in there, and hopefully everything will be fine, and if not you will receive treatment. Don't panic, but consider changing your doctor to one who has a good bedside manner and is compassionate. It is nerve wracking enough for you right now, and you need someone who really cares about you personally.

I will pray that everything works out for you, so for now, just ignore the doctor's nastiness and stupidity, and take it from there. I am sure many of us at this website care very much about you and your health. Take care.

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40587
   Posted 7/6/2008 1:10 PM (GMT -7)   
I hope that you get the answers that you need soon so you can stop worrying. I know that things like this make me very anxious. Even though all we can do is play the waiting game with the doctors and their tests that they put us through.

So try to relax my friend and continue to do the breathing exercises. Remember that we are here for you.

Luv and hugs, Karen
  Moderator-Depression
 
fibromyalgia, Chronic fatigue, depression,allergies


Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 7/9/2008 8:32 AM (GMT -7)   
Hmmmm, somethings wrong though I don't know what.

I haven't been feeling entirely happy this week, and it parts just feeling really really low. Everything still feels really hard though.
I have somehow just managed too convince my psych I am completely happy. This isn't usually an easy task, even when I pretend too be happy, she can usually tell. I'm wondering whether these underlying things I'm feeling, aren't actually affecting me as much as I think they are. Or I've just got better at hiding.

Still really annoyed with consultant, there is no way of changing doctors either, due too lots of little complications. I've decided it's a definate that I'm making gap between appointments even longer though. I can't be doing with him upheaving everything every 6 months.

My psych doesn't see why I'd need a councillor. She is going too send a letter to find out what is actually going on.

Seen my social worker today. I'm so sad that she is leaving, her last day is tomorrow. It's going too be a while before they ge in a replacement, but I can't be doing with a replacement anyway. I've decided I am forming no more bonds with medical staff, as it hurts to much too say goodbye. Knowing that everything is going too change again.

On an upside, the hospital are the only downfall in my life right now, and it is the only thing I can stumble on. Much easier too just avoid them/ignore just them, than having billions of little things like I used too have.

Test results are due back soon I hope. I am hoping, I can get the results straight away, and not have too wait for my next appointment with anyone.
Moderator of the Cystic Fibrosis Forums
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ursodeoxycholic Acid, Saline neb/PEP system, Mirtazapine,slow-sodium, Skandishake and Fresubin.
Had a Port-a-cath fitted on chest wall since Nov 05
Help support the forums so we can support you:  http://www.healingwell.com/donate
Sometimes, I feel that I should go and play with the thunder-In The Shadows by The Rasmus


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40587
   Posted 7/9/2008 9:21 AM (GMT -7)   
That is odd, My psychiatrist insisted that I see a therapist of some sort. I can't understand why yours would be suprised that you do. I hope that you get the help that you need through a kind and compassionate counselor.

Good luck to you,
hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 7/9/2008 3:08 PM (GMT -7)   
Darkie, that is insane! I see no sense in seeing an HIV counselor before you're diagnosed especially when they don't even think you really have it!!! What a ridiculous thing to put people through. Why won't they just let you see the psychiatrist you're already seeing instead of going through someone else?? So weird. I hope everything works out and you can figure out what it really is. Hopefully it's not something serious either.

I'm curious, where's your tattoo at? Tattoos are one thing that make me happy, I have seven now and the only reason I don't have more is I'm broke at the moment, haha.
I have noticed though I definitely get different treatment when people see I have tattoos, even with doctors- I went to the dentist once and I was in such excrutiating pain after the first visit that when I went to the second I asked for some pain meds and he basically told me that since I have tattoos and peircings I could OBVIOUSLY deal with the pain, and refused to give me ANYTHING. And I have never asked for pain meds from anyone but nothing else worked, that's how bad it was. Needless to say I never went there again.

Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar region of the spine from long term prednisone use. 

Currently unmedicated and flaring :(
Waiting for my appointment with the new GI on July 18th. Insurance finally kicked in, hooray!

 
 
 


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 7/9/2008 3:59 PM (GMT -7)   

Tats are cool.................if I was not afraid of needles and had a body to show them off on I would have one...........but Granny here is to old.

You guys go for it if you like them. Send me pictures.

Hugs

Kitt


 

Kitt, Moderator: Anxiety, Panic & Depression 
*~*
http://www.healingwell.com/donate *~*
Not a mental health professional of any kind
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 7/9/2008 4:48 PM (GMT -7)   
 
yeah  That's my most recent one and my favorite, my orchid flower- it has faded out a tiny bit and I need to get it touched up, only problem is the artist (Michele Wortman) is in Illinois and I'm now in Florida!! sad But I hope to see her again soon to have her go over it and extend it down a bit with a hummingbird and a few accenting flowers and butterflies. I'm such a girl, hahah.

Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar region of the spine from long term prednisone use. 

Currently unmedicated and flaring :(
Waiting for my appointment with the new GI on July 18th. Insurance finally kicked in, hooray!

 
 
 


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40587
   Posted 7/9/2008 7:57 PM (GMT -7)   
I really love the three dementional look of the flower petals. Orchids are my favorite flower. Looks cool...

I have people tell me that they wished that I did tattoos. But I think that I will stick to the canvas. I am afraid of making a mistake.

hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 7/10/2008 3:55 AM (GMT -7)   
 
Lol, tattoos can be painful, this is my recent.
 
I also get told that I should be able too cope with pain better because of tattoos and piercings. I remind them though, that a tatooist is an artist, and are nice and gentle and slow. Phlebs are just in the job too steal blood from people, and are going fast to rush through patients. There for they pull and tug and hurt more...........That's my excuse and I'm sticking too it cool
Also notice how it very nicely covers my vein. this is because they scared me and bruised me, when they tok blood last. So I decided too have it all covered over. My cf doc (nice doc) has decided I'm just weird.  tongue  
 
Drooling at yours ediekristen! The colours are so bright! Much better than you get here!

Karen, you can always design tattoos for people, it would be like having your artwork drawn onto people, even if you dont do the actual tattooing :-)

Feeling very tired today, rest day today. Got too get some z's in ready for a busy day tomorrow. This social life is excellant, but if I'm already feeling mentally exhausted, I have too rest so much more often too be able too cope with it all. I'm trying not too think. If I don't think, then nothing can hurt me.........I hope!


Moderator of the Cystic Fibrosis Forums
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ursodeoxycholic Acid, Saline neb/PEP system, Mirtazapine,slow-sodium, Skandishake and Fresubin.
Had a Port-a-cath fitted on chest wall since Nov 05
Help support the forums so we can support you:  http://www.healingwell.com/donate
Sometimes, I feel that I should go and play with the thunder-In The Shadows by The Rasmus

Post Edited (Darkies Gem) : 7/10/2008 5:10:00 AM (GMT-6)


sheryl=jk
Veteran Member


Date Joined Oct 2004
Total Posts : 4083
   Posted 7/10/2008 4:16 AM (GMT -7)   
Gems im sorry what you are going thorugh an agre with the other why put you through crap when they dont even know whats going on.
Prayers are with you.
 
Kitt my body isnt one for tats anymore either, althougth at 39 I am aiming to change that, i can lose weight and have a tatuiful body.
no seriously no more tats for me, but i did think wisely when i got them thinking what would happen if i got old(of course im gonna get old!!) i put them in places the aretn likely to get fat or to wrinkly, my shoulder and top of my foot. I like my foot one. I really want rings for the toes cant wear the other ones so why not have them tatooed on :-) .
 
God Bless,and have a Great Day!!.......Love.....Sheryl
xcema,hypermobile,Chronic Bronchitus,Fatigue,Positive ANAFibro-05--Had surgery on left & right knees 06, Interstial Cystitis-06 Spondlylosis/Disc Degernation Disease severe arthitis lower back -08,implantedInterstim-06 hysterectomy & IBS-06 Arthiritus-04 Depression-04GERDS/ Hiatial hernia -07   Anxiety-07 Gastroparesis-08--Occasional Migraines
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getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40587
   Posted 7/10/2008 8:47 AM (GMT -7)   
Gems,

I love yout tattoo too. that is so pretty.

Sheryl,
that was smart.

hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies

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