IMPENDING DOOM THIS WEEKEND

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CRANKY 1
Veteran Member


Date Joined Aug 2005
Total Posts : 616
   Posted 7/4/2008 10:06 AM (GMT -7)   
Well, the doom and gloom is starting already.  This lovely holiday weekend is going to be painful and miserable and I am helpless to stop it.  My big problem is that I have horrible chronic migraines, and my major trigger is bad weather, and the forecast is for thunderstorms on and off all weekend.  My medication to abort my migraines is a narcotic nasal spray, and my PCP will only prescribe one bottle a month.  It lasts less than a week most of the time.  Of course, I'm out for another 2 1/2 weeks.  Thus, I am a sitting duck, at the mercy of mother nature, and there's not a darn thing I can do about it. 
 
Knowing the pain is going to inevitably come is pure tortue.  I can't watch any regular television stations, cuz they will be running the continuous severe weather warnings every few minutes, probably most of the weekend.  It's agony just thinking about it, and considering I have panic/anxiety disorder as well, trying to remain calm is a hurdle unto itself. 
 
Once I get the migraine that will definitely come, my only option will be a trip to the Emergency Room, and that's going to be a total nightmare.  Sitting in a room full of noisy, cranky people and bright flourescent lights for hours, wondering once I finally get to see a doctor, if I will be treated like a legitimate pain sufferer or as a phony drug seeker.  I have a standing treatment order from my PCP, to be treated with a specific dose of dilaudid and phenergan, the only thing that will make the migraine go away. 
 
The last time I went to the ER, some new doctor flat out refused to follow the treatment order, saying that she did not treat migraines with narcotics.  After discussing my situation for several minutes, with my father doing a lot of the talking(I'm not very good at pleading my case in that condition), she said she would have to think about it, and just left my room.  Needless to say, I was a bit distraught, and started crying, which didn't help the migraine at all.  I'm lying there in agony, wondering if I'm going to get any help at all. 
 
The doctor finally came back about 45 minutes later, telling me that she wasn't going to give me the prescribed injection, but she would give me a shot of Imitrex.  I had previously explained to the doctor that Imitrex makes me violently ill, but it was basically a take it or leave it situation.  My father requested to see another doctor, and was told that someone would be in when time allowed.  Another 45 minutes later, a male nurse came in and said that none of the other doctors would see me, as they wouldn't second guess a collegue's position.  Whatever happened to the second opinion?  At this point, it's about 3am, and my Dad and I were just totally wrecked.  The male nurse basically said that I wasn't going to get any treatment, so I might as well leave.
 
Needless to say, I'm absolutely terrified about falling into the same situation again.  The doctors in Virginia are so paranoid about prescribing any kind of narcotic pain medication, many people I know with pain management issues are having to go out of state, just to be treated like human beings.  Chronic pain or recurring pain make you feel less than human.  The medical community doesn't have to reinforce that feeling by treating people like cattle.
 
Thanks for listning to my whining,
Leigh Ann sad

Basic info:
  • On Disability for: Chronic Migraines, serious Back and Knee problems (will need surgery eventually), moderate Depression, Anxiety/Panic disorder, TMJ 
  • Divorced, 43, no children
  • Surgeries: Gastric Bypass, Gallbladder Removed (followed by a week in the hospital for a Blood Clot), Impacted Kidney Stone Removed, Broken Ankle, Major Dental work(four molars pulled, multiple cavities, root canals) 
  • Current Meds: Prozac, Klonopin, Atenelol, Stadol Nasal Spray, Lortab, Trazadone, Buspar, Nexium, Tramadol, Phenergan, PROHIBITED FROM ALL NSAIDS
  • Current Problem: Internal Bleeding, possible ulcer in location of Gastric Bypass
 
"The weather is here, I wish you were beautiful."
                                             - Jimmy Buffett
 
 


Shelter
Regular Member


Date Joined Feb 2007
Total Posts : 155
   Posted 7/4/2008 10:57 AM (GMT -7)   
Dear Friend

as a fellow migraine suffer,... I'm totally AGASHT!!!!!!!! at the treatment you were given
here where we live
the Hospital has a AUTOMATIC treatment for migraines


IV fluid.. plus Benedryl dose & Stymetil (spelling) sorry

which sometimes helps....

I'd seek treatment outside the state if I were you
.. you need something that works well.. and you need to get to root cause of the migraine...
starting in the first place


with much concern...

Drink extra amounts of water... and take some benedryl over the counter....
see if that helps at all...


ya never know
They that wait upon the Lord shall renew their Strength, they shall mount up on wings as eagles, they shall run & not grow weary, they shall walk & not faint..."  Ish   40 v. 31 
~
Sjrogrens Syndrome, Asthema, Chronic Fatigue, Chronic Pain, Head aches, Migraines, Gastro Intestinal Problems , Esophegial Spasms;   Fibro Myalgia , Kidney Stones,  & CP (SI joint,   low mechanical back pain..L4 & L5 Vertebrae Misaligned,  Spinal Stenosis and Degenerative Disc Disease, Bulging Disc, anterolisthesis L4 L5L4 -- S1 pain  caused by osteoarthristis ,bone spurs, causing pinching or pressure on spinal chord)


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 7/4/2008 3:04 PM (GMT -7)   

Hello and I am sorry you are going to be facing the migraine.

Your PCP can write  a standing order, however, the physician that sees you in the ER is the one that makes the decision as to what medication they choose to administer.  The ER physician is the one that has done the medical screening exam and they are the treating physician.  You PCP is not even in the building.

Some ER physicians will take the recommendation of what medication your PCP feels works best for you and others will make their own decision for treatment.

Many people get into this same position as it is not real clear to the patient how the hospital protocol works.

Other hospitals such as Shelters has only one treatment plan for all patients presenting with migraines and everyone gets the same med.  A lot of patients don't like this as they want a differnet med too and they have the choice of the one protocol or going without.

These protocols and policies are set up by the hospitals.  Is there a chance you can talk to your physician about increasing the amount of rescue medication you are allotted each month.

You have my empathy as I know how ill migraines can make you.

Take care and gentle hugs
Kitt


 

Kitt, Moderator: Anxiety, Panic & Depression 
*~*
http://www.healingwell.com/donate *~*
Not a mental health professional of any kind
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~


CRANKY 1
Veteran Member


Date Joined Aug 2005
Total Posts : 616
   Posted 7/4/2008 8:04 PM (GMT -7)   

Hey, thanks guys. 

I really appreciate the words of support.  I've had migraines for 35 years, since I was eight.  I've tried pretty much every treatment for migraines over the years.  I've never heard of Stymetil(sp?) before.  What kind of medication is that?   The benedryl wouldn't do much for me.  The only thing that I've found that works when I get a bad migraine is Phenergan and a heavy dose of Dilaudid.  The dose I need would knock most people on their ass.  I'm lucky if I can go to sleep and wake up with the migraine totally gone.   If I have the exact same migraine every time, my PCP's instruction would make sense.  What doesn't make sense to me is a single treatment across the board for every single person that has a migraine.  People are all different, and react differently to individual medications.  For instance, Imitrex works great for some people, but I have a very violent reaction to it.  The way medical facilities make policies seems to be completely arbitrary.  I don't get it and I guess I never will.  I just hope the new specialist I'm going to see in October will have an answer for me.

Leigh Ann cool


Basic info:
  • On Disability for: Chronic Migraines, serious Back and Knee problems (will need surgery eventually), moderate Depression, Anxiety/Panic disorder, TMJ 
  • Divorced, 43, no children
  • Surgeries: Gastric Bypass, Gallbladder Removed (followed by a week in the hospital for a Blood Clot), Impacted Kidney Stone Removed, Broken Ankle, Major Dental work(four molars pulled, multiple cavities, root canals) 
  • Current Meds: Prozac, Klonopin, Atenelol, Stadol Nasal Spray, Lortab, Trazadone, Buspar, Nexium, Tramadol, Phenergan, PROHIBITED FROM ALL NSAIDS
  • Current Problem: Internal Bleeding, possible ulcer in location of Gastric Bypass
 
"The weather is here, I wish you were beautiful."
                                             - Jimmy Buffett
 
 


Shelter
Regular Member


Date Joined Feb 2007
Total Posts : 155
   Posted 7/5/2008 5:04 AM (GMT -7)   
hi there again
Hows it going so far?
I've had migraine's since my teen years... Im now 48
and i remember Cafergot... being the first thing I was ever given
then imitrex; then.... amitryptaline daily... does ( thats what I'm supposed to take now)
but it really knocks me out & makes it hard to work the next day....

I get hte usual zigzag aura before hand..... like tin foil lighting bolts... before my eyes.... sometimes... my arms go numb...... and sometimes I loose my speech or get very confused....
(feels like a stroke- would feel & my specialist says... that my migraines are stroke like)

also have a paitant( sp) o'valley" again (spelling) in my heart a tiny howl that lets the smallest blood clots through... which apparently is something migraine suffers may all have in common....

Sometimes I can ward a head ache off if I take Mirgain stength Advil luquid gels before
but even then i Usually spend house... wanting dark/ no noise....

and it takes 24 hours fro me to ok


years ago in my 20's it would be 2-3 days.... of absolute debilitateing pain in my head....

i remember staying in my room....


** Stemotil - is like Gravol... family type drug....


and yes I also agree that its wrong to treat everyone with the same thing...
policies and treatments need to be individual as we are...
what works for one
may be different than the other


I always think of this

our Doctors are practicing Medicine................ they are not PERFECT


I hope you have a good weekend....

your are in my thoughts today
They that wait upon the Lord shall renew their Strength, they shall mount up on wings as eagles, they shall run & not grow weary, they shall walk & not faint..."  Ish   40 v. 31 
~
Sjrogrens Syndrome, Asthema, Chronic Fatigue, Chronic Pain, Head aches, Migraines, Gastro Intestinal Problems , Esophegial Spasms;   Fibro Myalgia , Kidney Stones,  & CP (SI joint,   low mechanical back pain..L4 & L5 Vertebrae Misaligned,  Spinal Stenosis and Degenerative Disc Disease, Bulging Disc, anterolisthesis L4 L5L4 -- S1 pain  caused by osteoarthristis ,bone spurs, causing pinching or pressure on spinal chord)


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40595
   Posted 7/5/2008 6:14 PM (GMT -7)   
Hi Shelter,

You are the first person other than myself that has mentioned the zigzag lines. I mean that you are the first person that I have heard of. I have the patterns in my eyes. That alone is scarey. The headaches are horrible. Then the nausea usually sets in.

But The zigzag lines is what got my attention. I am sorry that you have to go through that, but at least I know I am not the only one. I use to wonder if I had a brain tumor or something.

Thanks for the info

hugs, Karen...
  Moderator-Depression
 
fibromyalgia, Chronic fatigue, depression,allergies


CRANKY 1
Veteran Member


Date Joined Aug 2005
Total Posts : 616
   Posted 7/6/2008 12:36 AM (GMT -7)   

Hey gang,

I just figured out that we don't have Stemotil here in the States.  No wonder I haven't heard of it before.

I was going to participate in a study regarding closing the PFO in the heart to reduce migraines.  I read a lot about the procedure, but I wasn't comfortable going through the procedure, waiting a year, and then doing it again if I was in the "placebo" group. 

So far, no bad weather yet.
 
Leigh Ann cool
Basic info:
  • On Disability for: Chronic Migraines, serious Back and Knee problems (will need surgery eventually), moderate Depression, Anxiety/Panic disorder, TMJ 
  • Divorced, 43, no children
  • Surgeries: Gastric Bypass, Gallbladder Removed (followed by a week in the hospital for a Blood Clot), Impacted Kidney Stone Removed, Broken Ankle, Major Dental work(four molars pulled, multiple cavities, root canals) 
  • Current Meds: Prozac, Klonopin, Atenelol, Stadol Nasal Spray, Lortab, Trazadone, Buspar, Nexium, Tramadol, Phenergan, PROHIBITED FROM ALL NSAIDS
  • Current Problem: Internal Bleeding, possible ulcer in location of Gastric Bypass
 
"The weather is here, I wish you were beautiful."
                                             - Jimmy Buffett
 
 


ShynSassy
Veteran Member


Date Joined Dec 2005
Total Posts : 3036
   Posted 7/6/2008 5:03 AM (GMT -7)   
Hi Leigh

How are you doing? Just checking in and hoping that you are feeling better.
Shy


Mod- Depression

Chronic Depression, Panic Attacks,Anxiety Attacks,Anorexia

Please remember,I am not a professional..I am just a person who is also fighting depression.


I know I'm in my own little world, but it's ok. They know me here.


CRANKY 1
Veteran Member


Date Joined Aug 2005
Total Posts : 616
   Posted 7/6/2008 4:45 PM (GMT -7)   

Hey Shy,

Thanks for thinking about me.  Well, about one o'clock the inevitable migraine kicked in.  I had dodged the bullet Friday and Saturday, but the weather turned on me early this afternoon, so the pain started kicking my head like a soccer ball.  It stormed and rained for about four hours before I had to throw in the towell and go seek assistance.  I went to a walk-in clinic run by the same organization as my PCP's office, and the desk clerk recognized me right away.  Didn't even need my name or birthdate, guess she has them memorized by now. 

Saw some new doctor and he was a royal pain in my ass, as if my migraine wasn't enough pain.  He gave me a really hard time about my use of "narcotics" and made a big deal about my inevitable "addiction" to the pain meds.  He wanted to play a "million" questions, which I was neither in the mood to answer, much less have to justify the amount of pain meds I have to take to manage my migraines. 

My brain is still too fried from the darn Topamax I took years ago as a migraine preventative to follow an interrogation, much less compose a clear and concise argument regarding the years of treatment and the long list of medications I have been through that do not work effectivly.  He said he would "help me out THIS time", but indicated he was going to contact my PCP first thing tomorrow, as the clinic "would not be continuing" to give me frequent pain injectionsl  At that point, it was fine...whatever.  He did give me the appropriate pain injection to rememdy my migraine, but looks like I am screwed about going there in the future. 

Just great, one more place to refuse me required treatment.  I'm just so sick and tired of having a fight on my hands every time I have to seek outside treatment.  Nobody should have to live with this.  "We don't care about your pain, just if you are a "drug seeker" cuz you have AN ADDICTION!!!?  OOOOHHHH.....BAD PERSON!!!!!  Boy, really does suck to be me.

Leigh Ann sad


Basic info:
  • On Disability for: Chronic Migraines, serious Back and Knee problems (will need surgery eventually), moderate Depression, Anxiety/Panic disorder, TMJ 
  • Divorced, 43, no children
  • Surgeries: Gastric Bypass, Gallbladder Removed (followed by a week in the hospital for a Blood Clot), Impacted Kidney Stone Removed, Broken Ankle, Major Dental work(four molars pulled, multiple cavities, root canals) 
  • Current Meds: Prozac, Klonopin, Atenelol, Stadol Nasal Spray, Lortab, Trazadone, Buspar, Nexium, Tramadol, Phenergan, PROHIBITED FROM ALL NSAIDS
  • Current Problem: Internal Bleeding, possible ulcer in location of Gastric Bypass
 
"The weather is here, I wish you were beautiful."
                                             - Jimmy Buffett
 
 


CRANKY 1
Veteran Member


Date Joined Aug 2005
Total Posts : 616
   Posted 7/8/2008 7:25 AM (GMT -7)   

Well, my migraine came back full force Monday morning.  I tried to stay in bed all day and just deal with it, but it was true misery.  First, the landscaping guy was mowing, weed-eating, and pruning...basically just making a loud ruckus all morning. In the afternoon, the storms came in and I just tried to stay under the covers.  By eleven last night, I couldn't take the pain anymore, so I called my parents.  My only options were to stick it out or head to the Emergency Room and take my chances.  Well, I opted to try the ER, just in case I ran into a more reasonable doctor than the one that refused to treat me the last time.

Unbelievably, I got to the ER about midnight and there wasn't a single person waiting.  I went straight into triage, straight back to a room, in came the nurse, and in came the doctor even before the registration people got to me.  The DR examined me, said he'd order my regular pain meds and I was done.  I got my shot, waited around for a few minutes, then got my discharge papers.  I looked at the clock in the car when we were leaving and it was 12:38.  That has to be a new world record!!! 

Head is feeling much better this morning!!!

Leigh Ann cool


Basic info:
  • On Disability for: Chronic Migraines, serious Back and Knee problems (will need surgery eventually), moderate Depression, Anxiety/Panic disorder, TMJ 
  • Divorced, 43, no children
  • Surgeries: Gastric Bypass, Gallbladder Removed (followed by a week in the hospital for a Blood Clot), Impacted Kidney Stone Removed, Broken Ankle, Major Dental work(four molars pulled, multiple cavities, root canals) 
  • Current Meds: Prozac, Klonopin, Atenelol, Stadol Nasal Spray, Lortab, Trazadone, Buspar, Nexium, Tramadol, Phenergan, PROHIBITED FROM ALL NSAIDS
  • Current Problem: Internal Bleeding, possible ulcer in location of Gastric Bypass
 
"The weather is here, I wish you were beautiful."
                                             - Jimmy Buffett
 
 


Shelter
Regular Member


Date Joined Feb 2007
Total Posts : 155
   Posted 7/8/2008 3:56 PM (GMT -7)   
WOW Imagine that - you got TREATMENT
**Faints**


:D

..................NOW I have battled a Migraine coming on all day today-

we've had a heat wave here & YES Im trying to drink water.. and more water
....
I have this "stalled migraine type feeling"//

People at work notice somthing wrong with me
well
excuse me................... but the abck of my head feels likes its been sliced

my forehead is swety... and my eyes are giving me trouble...
no zig zags today

but as I type I ntoice
im haveing werid vsion

prob anm typingfunny too

any way


gald you got your SHOT....


ttfn
They that wait upon the Lord shall renew their Strength, they shall mount up on wings as eagles, they shall run & not grow weary, they shall walk & not faint..."  Ish   40 v. 31 
~
Sjrogrens Syndrome, Asthema, Chronic Fatigue, Chronic Pain, Head aches, Migraines, Gastro Intestinal Problems , Esophegial Spasms;   Fibro Myalgia , Kidney Stones,  & CP (SI joint,   low mechanical back pain..L4 & L5 Vertebrae Misaligned,  Spinal Stenosis and Degenerative Disc Disease, Bulging Disc, anterolisthesis L4 L5L4 -- S1 pain  caused by osteoarthristis ,bone spurs, causing pinching or pressure on spinal chord)


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40595
   Posted 7/8/2008 7:39 PM (GMT -7)   
Shelter,

I hope that you feel better soon.

hugs, Karen
  Moderator-Depression
 
fibromyalgia, Chronic fatigue, depression,allergies


CRANKY 1
Veteran Member


Date Joined Aug 2005
Total Posts : 616
   Posted 7/9/2008 6:25 AM (GMT -7)   

Hey Shelter,

I know what you mean by that "stalled" feeling.  I get that sometimes when a weaker weather from comes in and my head starts feeling the pressure.  I've got that feeling now. It's overcast and has been drizzling steadily overnight, but not an intense storm.  I've notice a new symptom since my migraine, and it's bugging the crap out of me.  My right eye has been blurry ever since.  It's like I've got this funky opaque mucus in it, like my allergies are acting up, but only in the one eye.  Yesterday, I was putting eye drops in all day to rinse it out, but it's doing the same thing this morning.  Very annoying. 

I got some pain medication yesterday since I've been having a problem with an old GI bleed, so maybe it will help my head indirectly.

Shelter, let us know how you're doing.

Leigh Ann eyes


Basic info:
  • On Disability for: Chronic Migraines, serious Back and Knee problems (will need surgery eventually), moderate Depression, Anxiety/Panic disorder, TMJ 
  • Divorced, 43, no children
  • Surgeries: Gastric Bypass, Gallbladder Removed (followed by a week in the hospital for a Blood Clot), Impacted Kidney Stone Removed, Broken Ankle, Major Dental work(four molars pulled, multiple cavities, root canals) 
  • Current Meds: Prozac, Klonopin, Atenelol, Stadol Nasal Spray, Lortab, Trazadone, Buspar, Nexium, Tramadol, Phenergan, PROHIBITED FROM ALL NSAIDS
  • Current Problem: Internal Bleeding, possible ulcer in location of Gastric Bypass
 
"The weather is here, I wish you were beautiful."
                                             - Jimmy Buffett
 
 


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 7/9/2008 7:01 AM (GMT -7)   

Leigh Ann

I am so happy you got quick treatment and relief from your pain med on your last visit to ER? Whoooo Hooooo  That was record time. cool
 
Shelter,
 
I am sorry you are in the throes of a migraine. May this one pass quickly.
Gentle hugs to you.
 
Kitt
 

Kitt, Moderator: Anxiety, Panic & Depression 
*~*
http://www.healingwell.com/donate *~*
Not a mental health professional of any kind
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~


CRANKY 1
Veteran Member


Date Joined Aug 2005
Total Posts : 616
   Posted 7/10/2008 4:27 PM (GMT -7)   

Hey Brian,

Thanks so much for checking back in on the board.  I hadn't seen any posts from you in the last few days and was getting concerned.  What happened to your computer?

Leigh Ann cool


Basic info:
  • On Disability for: Chronic Migraines, serious Back and Knee problems (will need surgery eventually), moderate Depression, Anxiety/Panic disorder, TMJ 
  • Divorced, 43, no children
  • Surgeries: Gastric Bypass, Gallbladder Removed (followed by a week in the hospital for a Blood Clot), Impacted Kidney Stone Removed, Broken Ankle, Major Dental work(four molars pulled, multiple cavities, root canals) 
  • Current Meds: Prozac, Klonopin, Atenelol, Stadol Nasal Spray, Lortab, Trazadone, Buspar, Nexium, Tramadol, Phenergan, PROHIBITED FROM ALL NSAIDS
  • Current Problem: Internal Bleeding, possible ulcer in location of Gastric Bypass
 
"The weather is here, I wish you were beautiful."
                                             - Jimmy Buffett
 
 


ShynSassy
Veteran Member


Date Joined Dec 2005
Total Posts : 3036
   Posted 7/11/2008 7:44 AM (GMT -7)   
Cranky

So glad to see that you are feeling better. Glad that finally someone was able to help you.. too bad you couldn't figure out when that doctor was on duty and just go to him if you can.
Shy


Mod- Depression

Chronic Depression, Panic Attacks,Anxiety Attacks,Anorexia

Please remember,I am not a professional..I am just a person who is also fighting depression.


I know I'm in my own little world, but it's ok. They know me here.

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