MY VNS AND LIFE, WHAT MORE CAN GO WRONG?

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faithfully4you
Veteran Member


Date Joined Jan 2007
Total Posts : 870
   Posted 9/5/2008 9:19 AM (GMT -7)   
I wanted to let everyone know that lately I have been having problems with my VNS implant.  I went to the dctor on Wednesday and he stated that with all the presenting visible symptoms he thinks that I need another surgery to repair a wire that has been frayed and is causing severe damage to my nerves and vocal cords around the implant.  This is required and I have the choice of having it taken out or repair, either way we are looking into the $30,000 range with Medicare fighting to cover it.  I told the doctor that it is pretty sad that I cannot get help with a NECESSARY SURGERY for prevention of damage to my brain and nerves.  I told him that I guess that being poor means that I will have to take it out myself with what "surgical tools" are in my kitchen.
 
Along with this everything in my life that could go wrong, has and I am feeling once again extremely hopeless and uncertain of what I feel.
 
Just when you think you are going to get out of the woods you are right back where you were.
" Be an angel to someone else whenever you can, as a way of thanking God for the help your angel has given you."
Quoted in The Angels' Little Instruction Book by Eileen Elias Freeman, 1994
 
Teresa


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40581
   Posted 9/5/2008 9:37 AM (GMT -7)   
Teresa,

Let's look at this as just a bump in the road. I think that you will still be feeling good after the procedure. You have come a long way Teresa and I would hate to see you give up now.

Keep your chin up. Have you decided on the VNS? Are you going to have it fixed or removed? Either way, we are here for you. You have been working hard to feel better, and I hope you can have the strength to continue. And remember all of us are praying for you.

Luv and hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 9/5/2008 7:48 PM (GMT -7)   

Teresa,

I understand the medical bills and I have been paying huge bills for my skin cancer.................so far the total of the bills has been $8,000.  And now my hubbies surgery is going to be huge.  but somehow we will make it through.

So you want to operate in your kitchen, well we will get all the nurses together and help you out.  Your the surgeon so you will have to guide us............... rolleyes

Do not give up the fight with medicare, you need the surgery.  Can your physician help you in getting SS to cover the bill?

I am so sorry you have hit a big hill to climb but we will help you get over the top so take our hands and hold on tight.  We will not let go.

Prayers are coming your way and email me anytime.  I always have time to read a message or a vent.

Gentle Hugs

Kitt


 

Kitt, Moderator: Anxiety/Panic & Depression
& GERD  Forums
*~*
http://www.healingwell.com/donate *~*
Not a mental health professional of any kind
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~
Clickable Link: Anxiety-Panic Resources


faithfully4you
Veteran Member


Date Joined Jan 2007
Total Posts : 870
   Posted 9/8/2008 6:35 AM (GMT -7)   
Kitt~
Girl, you always know how to bring a smile to my face in on my darkest days :-) !  As far as the procedure goes, I received a phone call from the surgeons office stating that Medicare is denying to pay for the "repair" of a faulty lead because the VNS is currently under scrutiny because of recent FDA concerns!  So I guess i dont have a choice on what to do because there is no way a surgeon will do the surgery without insurance.  I can relate with you on the bills.  With my medicare I would have paid 20% which for the surgery would still had left me with over 6,000 dollars to pay.  Now if it would be done, I would be looking at almost 15, 000 for everything not including doc fees which usually are around another 4,000 for office and of course the surgery.  I guess if you are poor you wait it out and hope that nothing else can go wrong with you until a miracle happens and you can get the surgery.  I keep telling myself that this is another bump in the road but as you know, my road has not been paved in so many years!  Filling the potholes here and there is getting old! rolleyes , you know what I mean?
 
Anyway, the car thing is leaving me stressed as I find myself so depressed that I cant find the strength or the intelligence enough to speak to anyone that can help me.  I have tried to get the media involved but as usual they are not interested.
 
Actually, I am putting out a plea to anyone that might be able to assist me.  Send to my personal email any information you might have about any negative issues about a " popular shopping and bidding site".  You do not have to include your name or personal info.  I am thinking about starting a petition involving not only my state but all states.  Do not post anything about it on here as HW has no relationship with any dealings surrounding my plight.
 
Well I must get out of my pjs and try to do something productive.  I have found that lately I have been neglecting evrything that I usually find important such as working in my yard and doing necessary chores that never go undone.  I fear that my depression may be trying to take hold and I am having a hard time fighting it off.
 
Thanks you guys
" Be an angel to someone else whenever you can, as a way of thanking God for the help your angel has given you."
Quoted in The Angels' Little Instruction Book by Eileen Elias Freeman, 1994
 
Teresa


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 9/8/2008 10:13 AM (GMT -7)   

Teresa

Ok girlfriend, I am off to the store to buy some gold and we will fill those pot holes and pave your road with gold.

Yes you have had way to many bumps in your road and Dips that you have had to deal with........... shocked

So I believe I know which company they are investigating re your lead problem.................ah perhaps you will be compensated for having this product placed to begin with.

So what are they doing for others with a Vagus Nerve Stimulator that fails?

Humph, that is very worrisome to you I know but know we all support you.

Don't give up on the lemon, you have been doing well and you will wear them down.  It is so  frustrating I know but keep it as your special project and stay in the moment, don't quit on your project.  We are all praying for a good outcome.

I wish you peace and happiness but most of all I wish you love.

Special Hugs

Kitt 


 

Kitt, Moderator: Anxiety/Panic & Depression
& GERD  Forums
*~*
http://www.healingwell.com/donate *~*
Not a mental health professional of any kind
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~
Clickable Link: Anxiety-Panic Resources


faithfully4you
Veteran Member


Date Joined Jan 2007
Total Posts : 870
   Posted 9/15/2008 10:07 AM (GMT -7)   
Kitt,
Been really depressed lately and I have been still sick.  Found out that I may have acquired asthma along with everything else wonderful in my life.
 
as far as the vns, I have completely let it go and figure that if i do lose any functional ability to speak then I can sue for physical harm.  Maybe then I would win a case that should have never happened.
 
I am in financial distress so bad so that doesnt help things.  It is really hard to be positive right now.
Thanks for being here :-)
" Be an angel to someone else whenever you can, as a way of thanking God for the help your angel has given you."
Quoted in The Angels' Little Instruction Book by Eileen Elias Freeman, 1994
 
Teresa


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40581
   Posted 9/15/2008 10:35 AM (GMT -7)   
Teresa,

I am so sorry that you are having such a difficult time right now. Just wanted to pop in and let you know how I feel.

I hope that you feel better soon.

Hugs, Karen...
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


faithfully4you
Veteran Member


Date Joined Jan 2007
Total Posts : 870
   Posted 9/16/2008 2:26 PM (GMT -7)   
Thanks gb~
My depression seems to be getting worse and for the first time in a very long time, I dont know what to do.  I know that all the crap in my life right now is probably the main reason but what do you do when you keep trying and trying but nothing changes.  I try not to be a baby and feel sorry for myself but you know I am so tired of spending the good days that I do have worrying about the crap that I cant seem to change.  It seems as if my whole focus on life is changing and I dont know whether I like it or not.
" Be an angel to someone else whenever you can, as a way of thanking God for the help your angel has given you."
Quoted in The Angels' Little Instruction Book by Eileen Elias Freeman, 1994
 
Teresa


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40581
   Posted 9/16/2008 7:47 PM (GMT -7)   
Hi Teresa,

You aren't being a baby or feeling sorry for yourself. You are just experiencing a depressing situation and dealing with it the best way you can and that is all any of us can do.

You have been going at it a long time over this car and that grows weary on us. Try not to worry about the things that you can't do anything about. Just go one day at a time. Just don't give up. You can do this. But take a break when you need to from it, just to rest your mind.

Thinking of you,
hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies

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