I Have Everything..........

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justwaiting
New Member


Date Joined Oct 2008
Total Posts : 6
   Posted 10/15/2008 3:11 PM (GMT -7)   
Hi I am new to this site and I am depressed and fed up. I do not know where exactly to post as I seem to have everything. I am 37 female mother of three. I have the following conditions: Gastroparesis, Gerd, Ibs, Hypothyroidism, history of mallory weiss tears, barrett's esophagus, migraine headaches, tachycardia, left adrenal adenoma, anxiety, depression, recurrent uti's and the very new thing candida esopagitis. I dont understand what is going on. I have a gastrointerologist, a pcp, an endocranologist, cardiologist and a nerologist. I am not HIV positive I have been tested, but at this poit the candida is not getting better. I cant seem to get any of my doctors to talk together and I do this whole cat and mouse thing every time I want to talk to the docs. I dont know what eles to do to figure out why these things are happening and I am desprete to know. All of this pain and confusion is leaving me very depressed. Can anyone help me to at least make me feel as though I am not crazy. Please all post are welcome
 

Post Edited By Moderator (stkitt) : 10/16/2008 8:59:10 AM (GMT-6)


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 10/15/2008 7:38 PM (GMT -7)   

justwaiting,

You are not crazy. Welcome to HealingWell and know you will find many members here who are warm and caring.

Candida esophagitis is a fungal or yeast infection of the esophagus, the tube that carries food from the mouth to the stomach.

Candida esophagitis is caused by the yeast Candida. It occurs when the yeast spreads from the mouth down the esophagus.

The condition is often a sign of a weakened immune system. The following raise your risk for Candida infections:

  • AIDS
  • Chemotherapy
  • Diabetes
  • Leukemia or lymphoma
  • Organ transplants
  • Other conditions that suppress or weaken the immune system

Oral thrush or a yeast infection makes an immunocompromised person more likely to get esophagitis.

Antifungal medicines, taken by mouth or injection, are prescribed.

Esophagitis can usually be treated effectively. The outcome depends upon the underlying immune system problem that makes the person susceptible to the infection.
My sister just had this however she is receiving chemo.  The medication did cure it within a couple of days.
 
My sister has been hospitalized since 8/13 and I know what you mean by the team approach as my sister must have 10 different teams. Her primary physician is a GYN oncologist. Each team gives you a differnt opinion so it is a different story everyday.
 
Don't quit advocating for youself.  Knowledge is power.
Again Welcome
Kitt

Post Edited (stkitt) : 10/16/2008 9:01:45 AM (GMT-6)


justwaiting
New Member


Date Joined Oct 2008
Total Posts : 6
   Posted 10/16/2008 4:57 AM (GMT -7)   
Thank you so much for making me feel welcome and not crazy. I try so hard to talk to people like my family and husband but they just dont know what to say and dont know how fustrating this is for. I was a very healthy person before all these things started happening 5 years ago. I wish I could say that the antifungal is helping but it doesnt seem to be at this point as my esophgus is still very sore and hard to swalow. I am almost done the antifungal and dont know what they are gonna do next. It would be nice if all my doctors could work together but I cant seem to get them to do it. I wish I had the power to advocate for myself I just dont know how to go about that an dit seems that no matter what I ask of my docs it just doesnt happen the way I want. Thank you again. Please feel free to write back.

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 10/16/2008 8:13 AM (GMT -7)   

justwaiting,

For my sister we requested a care conference with her primary physician.  We had a list, a long list, of questions.  The physician was very pleasant and answered all of our questions. The Social Worker was with her. We did a lot of scenario questions such as asking how she would survive surgery and would she ever be able to come off the ventilator. We asked about each med and we also questioned any nurse that came in to give her a new med.  When the nurse answered "I don't know why this med was ordered"  We politely reqeusted she find out before giving the med.

My sister is at a teaching hospital thus so many teams. One of us has stayed with her everday and night that she has been in the hospital.

That is advocating for your self.  Patients have the right to be included in their own care and to say yes or no to treatments.  They have the right to pain relief.

Ask for a copy of the Patient's Bill of Rights.  Your hospital will have one for sure.

Take care
Kitt


 

Kitt, Co-Moderator: Anxiety/Panic & Depression
& GERD  Forums
*~*
http://www.healingwell.com/donate *~*
Not a mental health professional of any kind
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~
Clickable Link: Anxiety-Panic Resources


justwaiting
New Member


Date Joined Oct 2008
Total Posts : 6
   Posted 10/17/2008 4:46 AM (GMT -7)   
Kitt thank you so much for sharing how you and your sister advocate for themselves.I never thought about doing that.I have an appointment with the endocranologist on monday and then on november 6th with the gastro doctor and somewhere in between there an appointment with my neurosurgeon and I will try to generate a list of all my questions for them. I take 13 meds a day and dont understand why I have to take most of them. I would like to throw all of them in the garbage and start all over but I know that there will be great consequences. I was trying to get in earlier for my gastro doctor as I really do belive that after being in the hospital three times in the last month I should beable to see him sooner but I guess I am mistaken. I will let you know how I am doing but as of this morning it does not seem to be going well. Thanks alot Elaine

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 10/17/2008 6:23 AM (GMT -7)   

Elaine,

Oh yes, I have wanted to toss all the pill bottles in the garbage too.  But I do not want to be back in a deep depression so I kee taking them.

I am glad I was able to help you.

Please do keep us posted on how you are doing.

Hugs
Kitt

 


 

Kitt, Co-Moderator: Anxiety/Panic & Depression
& GERD  Forums
*~*
http://www.healingwell.com/donate *~*
Not a mental health professional of any kind
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~
Clickable Link: Anxiety-Panic Resources


Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 10/17/2008 9:06 AM (GMT -7)   
Elaine,
 
You're life sounds similar to mine. Especially wanting to throw the meds out. I'm on over 100 pills a day, and I get confused about why half of them are even there. It makes me very hard to deal with when a doc wants to put me on a new med lol.
 
I also find there is a massive communtication problem with my clinics. I have a Cystic Fibrosis team, a neurologist, and psychiatrist, 3 physio therapists (although I used to have 5!!) all on my case. None of them can communicate, and far to often different people give very contradicting advice.
 
Hospitals can be vey confusing places, you are definately not alone in thinking that, and definately not crazy! One way I've found to sligthly overcome the communication problems, is for all you're doctors to agree to send you letters saying what's been discussed in clinic. That way you can keep everyone else who looks afer you, up-to-date.
 
Hope things get easier soon,
Gem
Moderator of the Cystic Fibrosis Forums
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ursodeoxycholic Acid, Saline neb/PEP system, Mirtazapine,slow-sodium, Skandishake and Fresubin.
Had a Port-a-cath fitted on chest wall since Nov 05
Help support the forums so we can support you:  http://www.healingwell.com/donate
Sometimes, I feel that I should go and play with the thunder-In The Shadows by The Rasmus


justwaiting
New Member


Date Joined Oct 2008
Total Posts : 6
   Posted 10/17/2008 3:20 PM (GMT -7)   
Hey Kitt wanted to let you know that I talked to my gastro doctor today and he was told by my insurance company that if he didnt call me he would be refused payment. Well it looks like he is going to go over all my medications with me on nov.6th as well as repeat the edoscopy and do a complete autoimmune disorder panel. I think I might be getting somewhere. Any suggestions as far as what eles to talk to him about. Thank you so much you do not know how much strenght you have given me. Elaine

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 10/17/2008 4:30 PM (GMT -7)   

Elaine,

When you go in with your list tell him you want to know what tests are being done and what they would be indicative of.  Also that you do not want to be spared any details as you need to know what is going on with your body.

You have the right to have a copy of your medical record and that is usually arranged through Information Management.  You can go to that department after all the tests are in and get a copy of your chart.  You will have to sign a form and also may have to pay a small fee for making a copy for you but then you can read your own results and the physicians comments. Sometimes now with paperless chart you will receive ad CD for your computer of you records.

Remember to ask about your meds, the reason for why you need to take them and side effects as well as withrawal sx and interactions with other drugs and with foods.

If all the test come up negative, then ask them what next as something is wrong somewhere?

You are becoming assertive....................good for you. 

Keep me posted. :-)

Gentle Hugs

Kitt


 

Kitt, Co-Moderator: Anxiety/Panic & Depression
& GERD  Forums
*~*
http://www.healingwell.com/donate *~*
Not a mental health professional of any kind
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~
Clickable Link: Anxiety-Panic Resources


justwaiting
New Member


Date Joined Oct 2008
Total Posts : 6
   Posted 10/17/2008 4:57 PM (GMT -7)   
Gem thank you for your advise and for sharing with me. Everything so over whelming and I guess I need to do alot mor advocating for myself. The longer I am on this site the more I am knowing this, God I thought 13 pills a day were bad lol. Thank you and hope to talk soon

justwaiting
New Member


Date Joined Oct 2008
Total Posts : 6
   Posted 10/18/2008 6:15 PM (GMT -7)   

Thank You that was so much help for me. I am trying to become more arrertive but its so hard to. Toady was not a great day as I could not swallow anything. I dont think the candida is getting better and I will be done with the antifungal tommorow. Dont know what I am gonna do if it doesnt get better or it gets worse. Thank you so much kitt I Will talk soon

shakehead

beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 10/21/2008 6:45 AM (GMT -7)   
Hi Elaine,

I am so sorry that you are going through so many ailments at the same time. Life just isn't fair sometimes. You've received some excellent advice from Kitt and Gem, so I hope that you are prepared for your appt. On the subject of candida, it can be beneficial to take something called a probiotic to help repopulate your digestive tract with good bacteria. By killing off the candida, it leaves a void in your internal bacterial flora. Probiotics contain beneficial bacteria that can fill the void before some other bad guy decides to settle in. I know it is taking another couple of pills a day, but if you weren't aware of probiotics, you might want to look into using them. Good luck at your appt. If you stick to the game plan laid out by Kitt, I think you'll get what you need from your doctor. Just remember that if at any time, he doesn't explain something to your satisfaction, keep questioning until you feel comfortable that you understand.
Brandon
 
36 y.o. male
Diagnosed w/ moderate UC in May '06
Meds & supplements:  Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort enema every other night, Prednisone (down to 5mg), flaxseed oil, L-glutamine.


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40579
   Posted 10/21/2008 10:31 AM (GMT -7)   
Have you tried acidophulis? It is a probiotic that helps with yeast.

hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies

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