sad.. diagnosed with Crohn's

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confusedgirl22
Regular Member


Date Joined Dec 2007
Total Posts : 228
   Posted 12/30/2008 8:35 PM (GMT -7)   
I knew the past few months something was wrong with me. I would get diarrhea about 3 to 4 times every day. Sometimes I had chills and fever with it. I thought it was just the flu or maybe irritable bowel syndrome. I thought I was lactose intolerant as well. Well today I had a colonoscopy done, and my doctor diagnosed me with Crohn's. He said I probably had it for a few years. I'm supposed to talk to a specialist on Friday to discuss medications. I'm really scared and sad about this. I also am being treated for an anxiety disorder. I'm so scared. I'm also really sad and worried. Any advice anyone can give me would be great. I also posted on the Crohn's forum.

Also, for those of you who have seen my previous posts, school is going really well. I am no longer talking to my ex-bf. I have finally moved on! :-)

Confusedli
Regular Member


Date Joined Apr 2008
Total Posts : 363
   Posted 12/31/2008 3:21 AM (GMT -7)   
Hi ConfusedGirl,
 
I'm really sorry to hear that you have Crohns, I don't know too much about that, but I do know that being anxious and stressing isn't going to help it, maybe you should try some relaxation techniques to help with that.  Try not too be too scared and see what the specialist has to say.
 
Anyway I am so so pleased to hear that you have moved on!!!  Well done. and I am glad you are doing well in school!!
Confusedli
 
"The Optimist sees the rose and not its thorns; the pessimist stares at the thorns, oblivious of the rose."
 
"Life isn't about waiting for the storm to pass, its about learning to dance in the rain"


djdaz_1985
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Date Joined Jan 2006
Total Posts : 2408
   Posted 12/31/2008 4:14 AM (GMT -7)   
Hi Confused,

I am sorry to hear of your diagnosis. Crohns is something that can be controlled though so please dont let it dominate your life. I know what it is like to be diagnosed with a chronic disorder/disease and I know how hard it can be to start with but it will get much easier. I dont know a huge amount about Crohns but my dad has something similar so I know a little

Darren
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getting by
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Date Joined Sep 2007
Total Posts : 40568
   Posted 12/31/2008 8:19 AM (GMT -7)   
Hi Confused,

I am sorry to hear of your diagnosis. Take care, try not to worry too much. Just deal with it, you will be able to keep this under control. And we are here for you. I understand that it is painful, but if you follow the correct eating habits and take meds as needed, I think you can get a grip on this,.

Keep posting sweetei, we are here for you.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


*elmo*
Regular Member


Date Joined Dec 2008
Total Posts : 27
   Posted 12/31/2008 9:08 AM (GMT -7)   
Hi Confused,
Sorry to hear that you've been diagnosed with Crohns, but at the same time it must be a relief to know what you are dealing with and with the help of the specialist you can move forward. I can still remember when i was told last year after my colonoscopy that they'd found crohns. The key is to be honest with the specialist and to take your medication as prescribed and eat sensibly etc. I promise you there is absolutely nothing to be scared of. I always take a list of questions that i want to ask my specialist when i go to see them, as i'd never remember to ask everything i wanted to off the top of my head! Someone also comes into the room with me for the same reason, as i find it helps if someone else takes in all the information in case i forget something etc.

Michelle

beartooth
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Date Joined Dec 2006
Total Posts : 517
   Posted 1/1/2009 10:32 PM (GMT -7)   
Hi Michelle,

Truly sorry to hear that you have Crohn's, but as has been mentioned, at least you have a reason for why your body has been acting so poorly in the last few months. That is a cause for some relief I would think.

As someone who suffers from Ulcerative Colitis, which is pretty close to the same thing as Crohn's, I can tell you that your life will seem a little topsy-turvy while you are learning how to control your Crohn's. It is a whole new way of living, but the thing to remember is that it doesn't have to control you! There are many medicines available, as well as naturopathic remedies. Not everything you try will help you, but don't lose hope! Keep trying things until you find what works for you. I'm sure that the members on the Crohn's board will tell you the same thing. You might want to peek into the UC forum as well. Things that help one disease oftentimes help the other.

I hope your appointment with the specialist (a GI doc, right?) goes well. It really might help to take someone along with you as suggested. It will relieve some anxiety, and also give you another set of ears to gather whatever info the doc gives out. Do some research on the net about Crohn's before your appt, and get some advice from Crohnies and UCers also. One other thing that I would stress: Be completely honest with your doc about things, because the more that your medical practitioner knows, the better they'll be able to help you. If you aren't comfortable talking about somethings, let the doc know that, and hopefully they can guide the conversation in a way that lets you express yourself.

Good luck Michelle. Keep us updated about how things are going with you.
 
36 y.o. male
Diagnosed w/ UC in May '06, had symptoms since '99
Meds & supplements: VSL#3, Lialda, Allegra, multi-vitamin, Wellbutrin XL, Prednisone, fluoxetine, Omega 3 caps, and vit B-12.


confusedgirl22
Regular Member


Date Joined Dec 2007
Total Posts : 228
   Posted 1/2/2009 10:40 AM (GMT -7)   
Thanks for all your responses. I just got back from the specialist and I have ulcerative colitis. Not Crohn's. I'm so scared. I was prescribed an anti-inflammatory medicine. He told me I have an increased risk of getting colon cancer. I burst out crying. I'm so sad. :-(

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40568
   Posted 1/2/2009 11:10 AM (GMT -7)   
Confused,

I am so sorry to hear all of this, but you can handle it. You will get the medications that you need, and can change your life style to acccomodate this disorder.

Remember that we are here for you. Keep your chin up and never give up. Studying for a doctor will help you to understand this problem better. Keep up the good work.

Just don't forget that we are here for you.

Luv and hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Osprey101
Regular Member


Date Joined Apr 2008
Total Posts : 227
   Posted 1/2/2009 1:57 PM (GMT -7)   
Sorry to hear about your UC.

In "Life Without Bread," Dr. Wolfgang Lutz suggests that a carbohydrate-restricted diet can put patients into remission; although other gastrointestinal disorders respond more quickly, some 90-95% of his patients responded to carbohydrate restriction. The big problem is it can take several years, although he notes that by year 2, some 60% of patients were asymptomatic. I strongly recommend reading his book; the relevant section is from pages 123 to 126.

Good luck.

beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 1/2/2009 3:12 PM (GMT -7)   
So the GI doc changed you over from the Crohn's column to UC? They are closely related, but actually UC is the lesser of the two. Neither is much fun to find out you have though. Try not to focus on any potential long term effects, such as colon cancer. An increased chance doesn't mean you'll get it. There are lots of people over on the ulcerative colitis board who have been living with UC for years, and no cancer. I think your doctor was just trying to let you know some of the things that COULD happen. When you feel up to it, take a gander over to the UC board. Really supportive people, and a lot of experience to help you learn to cope with UC.

It can really overwhelming when you get your first dx of UC. After my dx, I spent a couple of months worrying a great deal about my UC. Then I spent a year or so in denial, thinking to myself that they misdiagnosed me, and really I just had a sensitive stomach. I knew that soon enough they'd do another colonoscopy and find their mistake. Deep down I must've known they got it right, because I took the meds they prescribed me religilously. I'd advise you to do the same. For many people, finding the right med is the difference between feeling good and feeling not so good.

Michelle, I know that your new dx seems like you've been given a life sentence, but it really doesn't have to be. Once you get over the initial shock, you'll realize you can still have a life. A few adjustments in your life for sure, but nothing too drastic hopefully. One thing that coming to terms with UC did for me was help me to live a lot healthier. I eat better, drink alcohol way less, stay away from excess sweets, and actually feel better physically. It has been a blessing in disguise, although I wouldn't wish this blessing on anyone else! LOL

The most important thing is that you know that you have a disease, and now you can do what is needed to help yourself feel better. That has got to be better than not knowing and wondering what the heck is going on with your body. Hang in there. Check in every couple of days to let us know how you are doing. And don't forget to start taking your new meds. They'll help out.
 
36 y.o. male
Diagnosed w/ UC in May '06, had symptoms since '99
Meds & supplements: VSL#3, Lialda, Allegra, multi-vitamin, Wellbutrin XL, Prednisone, fluoxetine, Omega 3 caps, and vit B-12.


stkitt
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Date Joined Apr 2007
Total Posts : 32602
   Posted 1/2/2009 4:44 PM (GMT -7)   

VIEW IMAGE
confusedgirl22

My hubby has had Crohn's for 33 years.  He has had 3 major surgeries and at this time he is not on any meds other then occasional Questran. 

I know this is all new and scary to you but try to stay in the present and do not get hung up on the what ifs?

My prayers are with you.

Hugs

Kitt


 

Kitt, Co-Moderator: Anxiety/Panic & Depression
&  Moderator GERD  Forums

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confusedgirl22
Regular Member


Date Joined Dec 2007
Total Posts : 228
   Posted 1/2/2009 7:18 PM (GMT -7)   
Yes. I have ulcerative colitis, not Crohn's. It was difficult for the pathologist to tell but they diagnosed it as UC.

LondonGirl22
Veteran Member


Date Joined Jan 2006
Total Posts : 1629
   Posted 1/12/2009 7:57 AM (GMT -7)   
Hi confused girl,

I also have UC and am recently diagnosed. It is very hard at first to get your head around and cope with it as it is a chronic condition but the treatment is very good and changing your lifestyle and diet helps too.
The UC forum is excellent and there are loads of people there with lots of advice.
If you are feeling depressed, it is most probably reactive due to your physical illness. This can happen when you have been ill for a while. Don't let it go on for too long and if you are feeling depressed, visit your doctor and talk about it. Sometimes anti depressant medication is helpful with bowel disorders.

Take care

Victoria x

 

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