How can i not be?

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New Member

Date Joined Jan 2009
Total Posts : 17
   Posted 1/6/2009 5:15 PM (GMT -6)   
I am 16 years old and have a child's form of fibromyalgia called Amplified Pain Syndrome. I got it in October and have had it ever since. I go to PT twice a week and fitness 3 times a week. I'm being home schooled because it's too difficult going to school. No medications so far, have helped. Last year, (my freshmen year) I got Epstein Barr virus which caused mono so I was out of school for about 2 months. It also caused a constant (24/7) headache. I got that last January and have had it for a whole year now. Now I have amplified pain syndrome and I've just been diagnosed with plantars fasciitis. It's not commonly found among children my age. So it's hard to walk.

I'm always having CAT scans, MRI's, bloodwork done, etc... I'm missing my high school experience. The only real "social time" I get is with my PT and fitness trainer and my family. The doctor said I could probably have the pain for years. I'm sick of people watching me because i have trouble walking and moving around. People come up to me to ask me what's wrong and I despise attention. I've never been one to love the spot light. I cry a lot, I'm not going to lie.

Any thoughts, advice, personal experience, anything?

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 40402
   Posted 1/6/2009 6:35 PM (GMT -6)   
You are young to have fibromyalgia. And that makes me sad. You have probably had some kind of pain most of your life. But you can adjust and live a somewhat normal life. I have had fibro for eight years and I know that it isn't any fun. We also have a 17 year old on the forum who has it.

Have you checked out the fibro forum? I also moderate over there and it is a wonderful forum. So feel free to check it out if you haven't already.

Stay with us, this is a nice forum with many helpful people. Also check out the fibro forum. There are a bunch of wonderful people there too.

Try to take your life one day at a time. I am sure you are already learning that. With fibro, we never know if we are going to get out of bed the next morning. So I completely understand how you feel. I have gotten a lot better, especially since I started the malic acid and magnesium. It might work for you too. Also vitamin D helps a lot.

I hope that you feel better soon,
hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Veteran Member

Date Joined Apr 2008
Total Posts : 585
   Posted 1/7/2009 3:23 AM (GMT -6)   
Heej Kayla,

I am sorry to hear all this. But bear in mind, you are not the only one who missed their high school experience. I know people from around here that missed their experience, and it isn't a big town in which I live. Also, I can say I missed the experience myself because I was too absorbed with my own problems during high school.

But in a way, most of us want things to change. And it might be a lot harder for you, because of the diseases you have now. But in a way, most of us want to change. But that is so much harder, if not impossible. Thinking about what you "should" be like, what your life "should" look like etc. can be saddening. But the truth is, are life is happening now, and our fantasies about what it should be like are just that, fantasies.

Maybe you can, baby steps at a time, come to terms with your situation. Instead of thinking how it should or could be, enjoy whatever you can enjoy. I know this is hard, very hard, but it might be helpful in the long term.

But Kayla (beautiful name btw), how is your time on the internet? There are a lot of wonderful members here which you can socialize with. And maybe there is a fibromyalgia-group close to you. I haven't been to a group before, but I heard they can be so wonderful.

Take care Kayla, and all the best!
Acceptance is the key

The World is but a reflection. Smile, and it will smile back.

Try to keep smiling! :)

Regular Member

Date Joined Apr 2008
Total Posts : 363
   Posted 1/7/2009 4:47 AM (GMT -6)   
Hey Kayla,

I'm not sure I have much to add here, other then take one day at a time, also can you not invite any of the friends you had when you were in school over to your house to spend some time with you?

It must be hard missing out on things, but you will build your own set of experiences which are unique to you.
"The Optimist sees the rose and not its thorns; the pessimist stares at the thorns, oblivious of the rose."
"Life isn't about waiting for the storm to pass, its about learning to dance in the rain"

Forum Moderator

Date Joined Apr 2007
Total Posts : 32602
   Posted 1/7/2009 8:40 AM (GMT -6)   
Welcome to HealingWell, this is Kitt.  I am so glad you found us.  It is good therapy to be able to talk about your feelings and know that there are many members here to support and care about you.
I understand your feelings as you had dreams of attending a regular high school and now this disease has taken that from you.  Please know that you will have much good in your future.  You are learning to deal with health problems as a very young age but let it make you stronger and know you can beat this disease.
My wish, for you, is that this life becomes all that you want it to. Bless you sweetie and stick with us, we will help you through.
Gentle Hugs

Kitt, Co-Moderator: Anxiety/Panic & Depression
&  Moderator GERD  Forums

*~* *~*
Not a mental health professional of any kind
Peace does not dwell in outward things, but within the soul
Clickable Link: Anxiety-Panic Resources

Veteran Member

Date Joined Jul 2007
Total Posts : 1303
   Posted 1/7/2009 10:14 AM (GMT -6)   
Like I said on the Fibro forum, email me, I will be glad to talk to you about it.

I have gone through alot more than just this Fibro stuff. And I know how it can be. I really refuse most of the time to give up, I just keep going like its nothing, holding everything in. Im supposed to start talking to a doctor recommended that along with the PT for the amplified pain stuff. He said its good to get to the root of stuff. So, maybe look into that, see if theres a good counselor near by. Or ask your doctor, he/she could probably recommend someone if you arent already seeing someone. But, its okay if you dont want to do that, just an idea.

Its good to express yourself. You can come on here anytime you want and vent, we will listen and try to help. We are here to talk, and it really does help to know so many people out there understand what you are going through and are willing to help. I suppose we are all in this together. We like to think of ourselves as a sort of "fingertip family"-a group of people who care for each other; that you can talk to anytime you need because
words are on the tips on your fingers!

Take Care, Im about to head out to the doctor... yippy.... I'd almost rather be at school right now!
Lyrica and Paxil (both working quite well might I add!)
   "Cracks in the concrete are just reminders that you fall apart no matter how strong you are"
    "Sometimes it is best to forget what you feel and remember what you deserve"
    "Im going to smile like nothing is wrong, talk like everything is perfect, act like its all a dream, and pretend its not hurting me."

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