I am sorry this is ongoing for you and I wish I had magic words to make it better. Behavior therapy is currently the non-pharmacological treatment of choice in the treatment of OCD.
Finding the most effective medication is important and useful. A series of trials on different medications is not uncommon. Psychiatrists can prescribe medications for OCD. Is your son on medication or did I miss that part somewhere? Seroquel has been found to be helpful in some patients. Luvox CR is another drug that I have read helps people with OCD.
CBT is often the best therapy.
Deep Brain Stimulation is being hailed as one of the new promising treatments for people with severe OCD. I am not a professional but these may give you some ideas on what to talk with your son's doctor about the next time you have the chance.
Thanks for your help, Kitt. CBT seems to be the only way we may be able to accomplish anything with my son. Because of all the epilepsy meds he is on he is not able to take the OCD meds that help as they can cause seizures. I too meet with his counselor and she tells me to ignore his behavior, not to say a word about getting to work on time and letting him figure it out. If he loses this job he will be in real trouble because he may not be able to find another one. This school hired him because he went to school there in junior high and the principal new him well and liked. him. She is no longer there. There is not enough money to afford his meds so he will have no choice but to take generics and hope they work. He can get cobra insurance for 18 mos. but when that runs out if he doesn't find a job he will have to go on medicaid and I know that is not good. Also, if this happens this spring it is really going to create problems for us since my younger son is getting married and we are trying to concentrate on those plans and not have anything else interfere or cause problems. I am just so upset. I have searchedd the web for info on OCD and there really is not a lot out there. It is a problem few admit they have, it is just swept under the carpet. If any one else can help me please reply. Thanks.
Thank you all for your replies. I know that my son cannot take any other medication because of his seizures. And Karen, I am sure medicaid copays are less, however, medicaid probably only allows for the generics and I have read about the generics for his meds and they are not made to follow the same guidelines as the brand. They are not up to standard. And this has also been told to us by his neurologist and he has never allowed my son to have generics. I contacted the OCD foundation where I live and they gave me a link to some support groups so I am hoping this will help. I know I have posted on this before - my problem is that I am so tortured by the whole situation that it is difficult for me to lead a normal life these days. And I have times when I can't even stand to look at my son knowing what he is doing that could ruin his life. He won't allow me to talk to him, he gets so nervous and says he has headaches and is dizzy so we have to stop the talk. All I can do at this point is give him the info and hope he doesn't go nuts on me. I ordered 2 very good books on OCD and hope he will read them. You can lead a horse to water but you can't make them drink. And, luckily so far no one has mentioned letting him go. He is late but he take no days off and is devoted to the kids so I hope they will see this as a good thing for the school. Again thanks for your help and please excuse me for being repetitious. I guess it comes from being so stressed.
Thank you Erik for your caring response. You have been such a good friend and I appreciate how much you do to help me. I think we both are good at helping each other. I think you are an amazing person.
Dear, sweet Karen, your post has helped me to feel so much better. It is such a relief to know that pre authorization from the dr. to medicaid will take care of getting the brand meds my son needs. You are right about my anxiety. I am trying to overcome these bad feelings. I know I should not worry about his job until and if anything should happen. He says no one notices when he comes in because they only get together starting at 8:45am in the gym. And my son is supposed to wait outside for his class to arrive before going into the gym so hopefully I am worrying for nothing. I am going to see my regular therapist tomorrow and she is wonderful and always helps me. I am going Wed. to see the epilepsy counselor that both me and my son see separately. She knows a lot about OCD so I am hoping she can clear up some things for me. I did join a parents support group for adult children with OCD so maybe that will help. At least I can say I am putting effort into this. If only I would put less effort into worrying! Many thanks both Erik and Karen.